Understanding decisions to participate in genomic medicine in children's cancer care: A comparison of what influences parents, health care providers, and the general community

2021 ◽  
Author(s):  
Richard De Abreu Lourenco ◽  
Maria C. McCarthy ◽  
Laura J. McMillan ◽  
Michael Sullivan ◽  
Lyn Gillam
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Cancer Care ◽  
Genomic Medicine ◽  
Care Providers ◽  
General Community

scholarly journals Building an oncology community of practice to improve cancer care

2018 ◽  
Vol 25 (6) ◽  
Author(s):  
W. Fingrut ◽  
L. A. Beck ◽  
D. Lo
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Cancer Care ◽  
Care Providers ◽  
Care Services ◽  
Standards Of Practice ◽  
Barriers To Access ◽  
Multidisciplinary Meetings ◽  
Knowledge Of Cancer ◽  
Effective Models

Background Communities of practice (cops) have been shown to be effective models for achieving quality outcomes in health care.Objective Here, we describe the application of the cop model to the Canadian oncology context.Methods We established an oncology cop at our urban community hospital and its networks. Goals were to decrease barriers to access, foster collaboration, and improve knowledge of guidelines in cancer care. We hosted 6 in-person multidisciplinary meetings, focusing on screening, diagnosis, and management of common solid tumours. Health care providers affiliated with our hospital were invited to attend and to complete post-meeting surveys. Likert scales assessed whether cop goals were realized.Results Meetings attracted a mean of 57 attendees (range: 48–65 attendees), with a mean of 84% completing the surveys and consenting to the analysis. Attendees included family physicians (mean: 41%), specialist physicians (mean: 24%), nurses (mean: 10%), and allied health care providers (mean: 22%). Repeat attendance increased during the series, with 85% of attendees at the final meeting having attended 1 or more prior meetings. Across the series, most participants agreed or strongly agreed that the cop reduced barriers (mean: 76.0% ± 7.9%) and improved access to cancer care services (mean: 82.4% ± 8.1%) and subject matter experts (mean: 91.7% ± 4.2%); fostered teamwork (mean: 84.5% ± 6.8%) and a culture of collaboration (mean: 94.8% ± 4.2%); improved knowledge of cancer care services (mean: 93.3% ± 4.8%), standards of practice (mean: 92.3% ± 3.1%), and quality indicators (mean: 77.5% ± 6.3%); and improved cancer-related practice (mean: 88.8% ± 4.6%) and satisfaction in caring for cancer patients (mean: 82.9% ± 6.8%). Participant feedback carried a potential for bias.Conclusions We demonstrated the feasibility of oncology cops and found that participants perceived their value in reducing barriers to access, fostering collaboration, and improving knowledge of guidelines in cancer care.

scholarly journals Defining and Achieving Health Equity in Genomic Medicine

2019 ◽  
Vol 29 (Suppl 1) ◽  
pp. 173-178 ◽  
Author(s):  
Sonya Jooma ◽  
Michael J. Hahn ◽  
Lucia A. Hindorff ◽  
Vence L. Bonham
Keyword(s):  
Health Care ◽  
Health Equity ◽  
Health Care Providers ◽  
Genomic Medicine ◽  
Genomic Research ◽  
Infrastructure Development ◽  
Care Providers ◽  
Health Care Settings ◽  
Traditional Research ◽  
Improve Health

The potential of genomics to improve health comes with the peril that the benefits will not be equitably available to all populations. Existing health disparities can be exacer­bated if the implementation of genomic medicine does not intentionally focus on health equity. Defining what health equity means in the context of genomics and outlining how it can be achieved is impor­tant for the future of the field. Strategies to improve health equity include addressing underrepresentation of diverse popula­tions in genomic research, investigating how genomic services can be deployed in diverse health care settings and underserved communities, increasing workforce diversity, supporting infrastructure development out­side traditional research centers, and engag­ing communities and health care providers. By employing these strategies, the genomic research community can advance health equity in genomic medicine. Ethn Dis. 2019;29(Suppl 1):173-178; doi:10.18865/ed.29.S1.173.

Genomics and Precision Medicine: Implications for Critical Care

2018 ◽  
Vol 29 (1) ◽  
pp. 28-35 ◽  
Author(s):  
Christine Kessler
Keyword(s):  
Health Care ◽  
Precision Medicine ◽  
Health Care Providers ◽  
Care Delivery ◽  
Genomic Medicine ◽  
Hospital Setting ◽  
Disease Diagnosis ◽  
Care Providers ◽  
New Paradigm ◽  
Current State

A new paradigm for disease diagnosis and treatment is emerging that will bring about changes in health care delivery in and out of the hospital setting. Over the past several decades, genomic medicine has been one of the fastest growing fields in acute and chronic health care. This quick growth has created a lag in genomics knowledge and preparation among nurses and health care providers. Genomic medicine may lead to more precise evaluation, diagnosis, and management of selected acute care conditions. This article reviews the current state of genetic and genomics science and looks at the expanding field of genomic medicine’s integration into precision medicine. The aim of this article is to raise awareness and spark further inquiry to the remarkable field of genomics and precision medicine.

scholarly journals Spotlight on International Quality: COVID-19 and Its Impact on Quality Improvement in Cancer Care

2021 ◽  
pp. 1513-1521
Author(s):  
Douglas W. Blayney ◽  
Giovanni Bariani ◽  
Devika Das ◽  
Shaheenah Dawood ◽  
Michael Gnant ◽  
...  
Keyword(s):  
Health Care ◽  
Quality Improvement ◽  
United Arab Emirates ◽  
Health Care Providers ◽  
Cancer Care ◽  
Care Delivery ◽  
Global Scale ◽  
The Philippines ◽  
Care Providers ◽  
The Impact

This report from ASCO's International Quality Steering Group summarizes early learnings on how the COVID-19 pandemic and its stresses have disproportionately affected cancer care delivery and its delivery systems across the world. This article shares perspectives from eight different countries, including Austria, Brazil, Ghana, Honduras, Ireland, the Philippines, South Africa, and the United Arab Emirates, which provide insight to their unique issues, challenges, and barriers to quality improvement in cancer care during the pandemic. These perspectives shed light on some key recommendations applicable on a global scale and focus on access to care, importance of expanding and developing new treatments for both COVID-19 and cancer, access to telemedicine, collecting and using COVID-19 and cancer registry data, establishing measures and guidelines to further enhance quality of care, and expanding communication among governments, health care systems, and health care providers. The impact of the COVID-19 pandemic on cancer care and quality improvement has been and will continue to be felt across the globe, but this report aims to share these experiences and learnings and to assist ASCO's international members and our global fight against the pandemic and cancer.

scholarly journals Women’s Cancer Care in Iran

2019 ◽  
Vol 26 (1) ◽  
pp. 107327481984843
Author(s):  
Hassan Joulaei ◽  
Nooshin Zarei
Keyword(s):  
Health Care ◽  
Health Insurance ◽  
Early Diagnosis ◽  
Health Care Providers ◽  
Cancer Care ◽  
Pap Smear ◽  
Screening Method ◽  
Care Providers ◽  
Iranian Women ◽  
Poor Knowledge

Breast cancer (BC) and cervical cancer (CC) are the first and fifth common cancers in Iranian women. Although age-standardized incidence rate of BC and CC in Iran is low, the mortality to incidence ratio is high due to late diagnosis. Except an old and a quite comprehensive cancer registry, women’s cancer care encounter many challenges in Iran. Lack of a customized national and inclusive protocol to control cancer care along with the fragmented health system is the first and foremost cancer care challenge. Many high-risk women miss the opportunity of early diagnosis and treatment because of poor knowledge, low accessibility, or affordability to health care, stigma, and spouse negligence. Although the most effective BC screening method is mammography, it is not equally available for all Iranian women. Furthermore, the cost of BC is very high and screening is accompanied by stigmatized sociocultural beliefs. Unfortunately, while Iran has a good primary care system, low coverage of clinical breast examination and poor knowledge of women indicate that this system has not operated effective. Also due to the limited resources, the Pap smear test has not been applied to the majority of Iranian women. Despite the high basic health insurance coverage in Iran, it does not cover diagnostic test and full treatment of cancers which intensified underutilization of cancer care. In conclusion, developing a national policy and guideline for full coverage of early diagnosis of BC or CC should be prioritized. In this regard, health insurance companies should be committed to including BC and CC screening and care for their basic service packages. The second strategy could be training skillful, responsible, and motivated health-care providers. They are able to decrease the stigmatized view of doing mammography. Survivorship care including follow-up care, posttreatment issues, and psychosocial support should also be considered.

CancerLinQ and the Future of Cancer Care

2013 ◽  
pp. 430-434 ◽  
Author(s):  
George W. Sledge ◽  
Robert S. Miller ◽  
Robert Hauser
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Health Care Providers ◽  
Cancer Care ◽  
Treatment Options ◽  
Tumor Biology ◽  
Real Life ◽  
Care Providers ◽  
The Right ◽  
Care System

Patients, health care providers, and payers all have a similar interest in a health care system that is both efficient and intelligent. The attributes of such a system are widely recognized: we want a system that provides widespread access to consistently high-quality, science-based medical care; we want that system to be efficient, avoiding unnecessary waste, while delivering the right treatments to the right patients in a timely fashion; we want a system that allows us to both learn from our experience and generate new knowledge that will inform future treatment options; and we want a system that is compassionate and caring. What we want from a health care system often runs up against real-life obstacles and challenges: a fragmented delivery system, varying levels (or lack of) insurance, a growing burden of regulation and paperwork, and an increasingly complex understanding of tumor biology and the therapeutic approaches derived from this biology. New challenges are on the horizon—emerging genomic and imaging technology, with their enormous cognitive and data burdens, and a looming demographic challenge, where inadequate personnel resources face an aging population and an explosion of new treatments. Not all problems have technologic solutions, but many of the issues described above have potential solutions related to information technology. ASCO's CancerLinQ, described in this article, is an evolving attempt by the Society to improve the quality and efficiency of cancer care, while supporting education and research in the cancer field.

Successful Strategies to Address Disparities: Insurer and Employer Perspectives

2020 ◽  
pp. 292-300
Author(s):  
Manali I. Patel ◽  
Richard Snyder ◽  
Otis Brawley
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Low Income ◽  
Cancer Care ◽  
Care Delivery ◽  
The United States ◽  
Cancer Disparities ◽  
Care Providers ◽  
High Quality ◽  
Quality Cancer Care

Disparities in cancer have been documented for decades and continue to persist despite clinical advancements in cancer prevention, detection, and treatment. Disparate cancer outcomes continue to affect many populations in the United States and globally, including racial and ethnic minorities, populations with low income and education, and residents of rural areas or low socioeconomic neighborhoods, among others. Addressing cancer disparities requires approaches that are multilevel. Addressing social determinants of health, such as removing obstacles to health (e.g., poverty, discrimination, access to housing and education, jobs with fair pay, and health care) can reduce cancer disparities. However, to achieve cancer health equity, multilevel approaches are required to ensure that access to high-quality cancer care and equitable receipt of evidence-based services can reduce cancer disparities. Policy, health system interventions, and innovative delivery and health care coverage approaches by private and public payers, employer-based payers, and labor union organizations can assist in ensuring access to and receipt of high-quality cancer care while addressing the high costs of care delivery. Partnerships among patients, caregivers, employers, health care providers, and health care payers can make impactful changes in the way in which cancer care is delivered and, in turn, can assist in reducing cancer disparities.

scholarly journals The role of family physicians in cancer care: perspectives of primary and specialty care providers

2017 ◽  
Vol 24 (2) ◽  
pp. 75 ◽  
Author(s):  
J. Easley ◽  
B. Miedema ◽  
M.A. O'Brien ◽  
J. Carroll ◽  
D. Manca ◽  
...  
Keyword(s):  
Health Care ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Cancer Care ◽  
Psychosocial Care ◽  
Family Physicians ◽  
Further Education ◽  
Theory Approach ◽  
Care Providers

Background Currently, the specific role of family physicians (fps) in the care of people with cancer is not well defined. Our goal was to explore physician perspectives and contextual factors related to the coordination of cancer care and the role of fps.Methods Using a constructivist grounded theory approach, we conducted telephone interviews with 58 primary and cancer specialist health care providers from across Canada.Results The participants—21 fps, 15 surgeons, 12 medical oncologists, 6 radiation oncologists, and 4 general practitioners in oncology—were asked to describe both the role that fps currently play and the role that, in their opinion, fps should play in the future care of cancer patients across the cancer continuum. Participants identified 3 key roles: coordinating cancer care, managing comorbidities, and providing psychosocial care to patients and their families. However, fps and specialists discussed many challenges that prevent fps from fully performing those roles:The fps described communication problems resulting from not being kept “in the loop” because they weren’t copied on patient reports and also the lack of clearly defined roles for all the various health care providers involved in providing care to cancer patients.The specialists expressed concerns about a lack of patient access to fp care, leaving specialists to fill the care gaps.The fps and specialists both recommended additional training and education for fps in survivorship care, cancer screening, genetic testing, and new cancer treatments.Conclusions Better communication, more collaboration, and further education are needed to enhance the role of fps in the care of cancer patients.

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