Parental decision making regarding consent to randomization on Children's Oncology Group AALL0932

2021 ◽  
Vol 68 (4) ◽  
Author(s):  
Kellee Parker ◽  
Erika Cottrell ◽  
Linda Stork ◽  
Susan Lindemulder
Keyword(s):  
Decision Making ◽  
Oncology Group ◽  
Parental Decision ◽  
Parental Decision Making

511: Factors Involved in Parental Decision-Making for Surgical Correction of Vesicoureteral Reflux

2007 ◽  
Vol 177 (4S) ◽  
pp. 170-170
Author(s):  
Pamela I. Ellsworth ◽  
Katherine Callaghan ◽  
Eileen Gray ◽  
Anthony Caldamone
Keyword(s):  
Decision Making ◽  
Vesicoureteral Reflux ◽  
Surgical Correction ◽  
Parental Decision ◽  
Parental Decision Making

Using messy map interviews to describe and analyse elements pertinent to interviewees

2020 ◽  
pp. 146879412097993
Author(s):  
Maja Nordtug
Keyword(s):  
Decision Making ◽  
Qualitative Research ◽  
Human Papillomavirus ◽  
Human Papillomavirus Vaccination ◽  
Parental Decision ◽  
Mapping Tool ◽  
Parental Decision Making ◽  
Interview Studies

In this article, I introduce and evaluate the use of messy map interviews. Based on messy situational maps, messy map interviews is an interview tool I have developed to facilitate understanding of elements pertinent to interviewees. I present and evaluate how the tool contributes to interview studies that aim to describe and analyse elements pertinent to interviewees. This is done by use of an exemplar of working with messy map interviews, exploring parental decision-making about human papillomavirus vaccination. Based on the results, the study shows that messy map interviews can help keep qualitative research loyal to what interviewees ascribe relevance to. Furthermore, the tool can potentially help nuance the analysis of how elements are understood by interviewees. The article concludes that messy map interviews can be a useful mapping tool that keeps interviewees’ perspectives in focus in interview studies.

Parental Decision-Making for Surgery and Anesthesia in Young Children

2021 ◽  
pp. 019394592110216
Author(s):  
Audrey Rosenblatt ◽  
Michael Kremer ◽  
Olimpia Paun ◽  
Barbara Swanson ◽  
Rebekah Hamilton ◽  
...  
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Young Children ◽  
Cognitive Processing ◽  
Emotional Processing ◽  
Theory Analysis ◽  
Parental Decision ◽  
Parental Decision Making ◽  
Health Care Context ◽  
The Relationship

Millions of young children undergo surgery and anesthesia each year, yet there is a lack of scientific consensus about the safety of anesthesia exposure for the developing brain. Also poorly understood is parental anesthesia-related decision-making and how neurotoxicity information influences their choices. The theoretical model of parental decision-making generated in this research explicates this process. Interviews with 24 mothers yielded a theoretical framework based on their narratives developed using a qualitative grounded theory analysis. Five major themes emerged from these interviews: emotional processing, cognitive processing, relationships as resources, the mother/child dyad, and the health care context. Mothers described a non-linear, iterative process; they moved fluidly through emotional and cognitive processing supported by relationships as resources and influenced by the health care context. A key element was the subtheme of the medical translator, an individual who provided context and information. The mother/child dyad grounded the model in the relationship with the child.

scholarly journals Factors contributing to parental decision-making in disclosing donor conception: a systematic review

2013 ◽  
Vol 19 (6) ◽  
pp. 714-733 ◽  
Author(s):  
A. Indekeu ◽  
K. Dierickx ◽  
P. Schotsmans ◽  
K.R. Daniels ◽  
P. Rober ◽  
...  
Keyword(s):  
Systematic Review ◽  
Decision Making ◽  
Parental Decision ◽  
Donor Conception ◽  
Parental Decision Making

scholarly journals Parental Decision-Making on Childhood Vaccination

2018 ◽  
Vol 9 ◽  
Author(s):  
Kaja Damnjanović ◽  
Johanna Graeber ◽  
Sandra Ilić ◽  
Wing Y. Lam ◽  
Žan Lep ◽  
...  
Keyword(s):  
Decision Making ◽  
Childhood Vaccination ◽  
Parental Decision ◽  
Parental Decision Making

Life-limiting fetal conditions and pregnancy continuation: parental decision-making processes

2021 ◽  
pp. bmjspcare-2020-002857
Author(s):  
Erin Denney-Koelsch ◽  
Denise Cote-Arsenault
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Medical Information ◽  
Healthcare Providers ◽  
Shared Decision ◽  
Parental Decision ◽  
Parental Decision Making ◽  
Case Comparison ◽  
Theme Identification ◽  
Iterative Coding

ObjectivesWhen parents are facing a life-limiting fetal condition (LLFC), decision making about prenatal and neonatal care is very stressful. To participate in successful shared decision making, interdisciplinary care teams need to understand factors that parents consider and the process by which they make decisions about care of their baby.MethodsThis study reports on findings about parental decision making from a larger longitudinal, naturalistic study of parents’ experiences of continuing pregnancy with an LLFC. Mothers and fathers over 18 were interviewed in person, on phone or via video, twice during pregnancy and twice after birth and death. Transcripts were professionally transcribed and verified. Data were analysed with iterative coding and theme identification, using within-case and cross-case comparison.ResultsThirty parents (16 mothers, 13 fathers, 1 lesbian partner) from multiple US states and a range of racial/ethnic backgrounds were interviewed. Parents’ experience with decision making was difficult, stressful and time-sensitive. They described a three-phase process: (1) identifying the decision to be made, (2) conducting a risk–benefit analysis to weigh objective medical information and subjective factors (values and spirituality, impact on self, partner, baby and the other children) and (3) making a decision. Parents considered diagnostic and prognostic certainty, likelihood of a good outcome and avoidance of suffering and regrets.ConclusionFor shared-decision making, healthcare providers must discuss objective medical information as well as recognise parents’ subjective values and priorities. This study expands on the literature on parental decision making around the numerous types of decisions after LLFC, informing obstetrics, neonatology and palliative care.

Payments for Participation of Children in Research

2018 ◽  
pp. 244-263
Author(s):  
Douglas S. Diekema
Keyword(s):  
Decision Making ◽  
Research Participation ◽  
Ethical Considerations ◽  
Parental Decision ◽  
Research Participants ◽  
Ethical Implications ◽  
Parental Decision Making ◽  
Participation In Research ◽  
Research Studies ◽  
Current Practices

Providing payment to those who participate is common practice for research studies involving both children and adults. While there may be good reasons for providing payment for research participation, there are also reasons to be concerned about the practice, especially when the subjects are children and the payment has the potential to distort parental decision-making by tempting parents to consider issues other than the welfare of their child. This chapter examines the ethical implications of providing payment to children and their parents for participation in research. After a brief survey of current practices regarding payments to research participants, the chapter will examine the distinct kinds of payments offered to research participants and their parents (Those intended to reimburse expenses and those intended to induce participation), evaluate the ethical considerations relevant to each kind of payment, and make some final recommendations concerning the provision of payments for research involving children.

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