Large variation in assessment and outcome definitions to describe the burden of long‐term morbidity in childhood cancer survivors: A systematic review

2020 ◽  
Vol 67 (11) ◽  
Author(s):  
Nina Streefkerk ◽  
Lisanne C.E. Fioole ◽  
Josien G.M. Beijer ◽  
Elizabeth (Lieke) A.M. Feijen ◽  
Jop C. Teepen ◽  
...  
2012 ◽  
Vol 58 (5) ◽  
pp. 665-674 ◽  
Author(s):  
Katja. I. Braam ◽  
Annelies Overbeek ◽  
Gertjan J.L. Kaspers ◽  
Cecile M. Ronckers ◽  
Annette Y.N. Schouten-van Meeteren ◽  
...  

2017 ◽  
Vol 114 ◽  
pp. 131-138 ◽  
Author(s):  
Christina Signorelli ◽  
Claire E. Wakefield ◽  
Joanna E. Fardell ◽  
W. Hamish B. Wallace ◽  
Eden G. Robertson ◽  
...  

2017 ◽  
Vol 120 ◽  
pp. 60-76 ◽  
Author(s):  
J. van Breeschoten ◽  
R. De Abreu Lourenco ◽  
C. Signorelli ◽  
M. Haas ◽  
R.J. Cohn ◽  
...  

PLoS ONE ◽  
2014 ◽  
Vol 9 (7) ◽  
pp. e103340 ◽  
Author(s):  
Lisa Ljungman ◽  
Martin Cernvall ◽  
Helena Grönqvist ◽  
Brjánn Ljótsson ◽  
Gustaf Ljungman ◽  
...  

2019 ◽  
Vol 8 (6) ◽  
pp. 3182-3195
Author(s):  
Michal Molcho ◽  
Maureen D'Eath ◽  
Audrey Alforque Thomas ◽  
Linda Sharp

PLoS ONE ◽  
2020 ◽  
Vol 15 (5) ◽  
pp. e0232708
Author(s):  
Nina Streefkerk ◽  
Wim J. E. Tissing ◽  
Joke C. Korevaar ◽  
Eline van Dulmen-den Broeder ◽  
Dorine Bresters ◽  
...  

BMC Cancer ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Maria Otth ◽  
Patrick Wechsler ◽  
Sibylle Denzler ◽  
Henrik Koehler ◽  
Katrin Scheinemann

Abstract Background The successful transition of childhood cancer survivors (CCSs) from pediatric to adult long-term follow-up care is a critical phase, and determining the right time point can be challenging. We assessed the feasibility of the use of existing transition readiness tools in the context of the Swiss health care system, assessed partly transition readiness in Swiss CCSs, and compared our findings with Canadian CCSs for which these tools were originally developed. Methods We officially translated the Cancer Worry Scale (CWS) and Self-Management Skill Scale (SMSS) into German and integrated them into this cross-sectional study. We included CCSs attending the long-term follow-up (LTFU) clinic in the Division of Oncology-Hematology, Department of Pediatrics, Kantonsspital Aarau. We used descriptive statistics to describe transition readiness. Results We randomly recruited 50 CCSs aged ≥18 years at participation. The CCSs had a median CWS score of 62 (interquartile range 55–71), indicating a moderate level of cancer-related worry. Despite high self-management skills, some answers showed a dependency of CCSs on their parents. Our experience shows that the CWS and SMSS are easy for Swiss CCSs to use, understand, and complete. The interpretation of the results must take differences in health care systems between countries into account. Conclusions The translated CWS and SMSS are appropriate additional measures to assess transition readiness in CCSs. These scales can be used longitudinally to find the individual time point for transition and the completion by CCSs enables the health care team to individualize the transition process and to support the CCSs according to their individual needs.


2014 ◽  
Vol 62 (2) ◽  
pp. 322-328 ◽  
Author(s):  
Morven C. Brown ◽  
Gillian A. Levitt ◽  
Eva Frey ◽  
Edit Bárdi ◽  
Riccardo Haupt ◽  
...  

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