Acceptability and feasibility of a parent‐targeted dietary intervention in young survivors of childhood cancer: “Reboot”

2020 ◽  
Vol 67 (9) ◽  
Author(s):  
Lauren M. Touyz ◽  
Jennifer Cohen ◽  
Sarah P. Garnett ◽  
Allison M. Grech ◽  
Paayal Gohil ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Dietary Intervention ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Body composition, dietary intake and physical activity of young survivors of childhood cancer

2019 ◽  
Vol 38 (2) ◽  
pp. 842-847 ◽  
Author(s):  
Alexia J. Murphy-Alford ◽  
Melinda White ◽  
Liane Lockwood ◽  
Andrew Hallahan ◽  
Peter S.W. Davies
Keyword(s):  
Physical Activity ◽  
Body Composition ◽  
Dietary Intake ◽  
Childhood Cancer ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

Young Survivors of Childhood Cancer

2008 ◽  
pp. 163-188 ◽  
Author(s):  
Angela de Boer ◽  
Jos Verbeek ◽  
Frank van Dijk
Keyword(s):  
Childhood Cancer ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

Poor diet quality and adverse eating behaviors in young survivors of childhood cancer

2021 ◽  
Author(s):  
Catharine A.K. Fleming ◽  
Alexia J. Murphy‐Alford ◽  
Jennifer Cohen ◽  
Michael R. Fleming ◽  
Claire E. Wakefield ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Diet Quality ◽  
Eating Behaviors ◽  
Poor Diet ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Health-related quality of life in young survivors of childhood cancer

2015 ◽  
Vol 24 (9) ◽  
pp. 2151-2161 ◽  
Author(s):  
L. Wengenroth ◽  
M. E. Gianinazzi ◽  
C. S. Rueegg ◽  
S. Lüer ◽  
E. Bergstraesser ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Childhood Cancer ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Childhood cancer survivorship: barriers and preferences

2019 ◽  
pp. bmjspcare-2019-002001
Author(s):  
Christina Signorelli ◽  
Claire Wakefield ◽  
Jordana K McLoone ◽  
Joanna Fardell ◽  
Janelle M Jones ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Late Effects ◽  
Age Groups ◽  
Patient Reported ◽  
Childhood Cancer Survivorship ◽  
Young Survivors ◽  
Adolescent And Young Adults ◽  
Survivors Of Childhood Cancer ◽  
To Receive

ObjectiveMany survivors are disengaged from follow-up, mandating alternative models of survivorship-focused care for late effects surveillance. We explored survivors’ barriers to accessing, and preferences for survivorship care.MethodsWe invited Australian and New Zealand survivors of childhood cancer from three age groups: <16 years (represented by parents), 16–25 years (adolescent and young adults (AYAs)) and >25 years (‘older survivors’). Participants completed questionnaires and optional interviews.Results633 survivors/parents completed questionnaires: 187 parents of young survivors (mean age: 12.4 years), 251 AYAs (mean age: 20.6 years) and 195 older survivors (mean age: 32.5 years). Quantitative data were complemented by 151 in-depth interviews. Most participants, across all age groups, preferred specialised follow-up (ie, involving oncologists, nurses or a multidisciplinary team; 86%–97%). Many (36%–58%) were unwilling to receive community-based follow-up. More parents (75%) than AYAs (58%) and older survivors (30%) were engaged in specialised follow-up. While follow-up engagement was significantly lower in older survivors, survivors’ prevalence of late effects increased. Of those attending a follow-up clinic, 34%–56% were satisfied with their care, compared with 14%–15% of those not receiving cancer-focused care (p<0.001). Commonly reported barriers included lack of awareness about follow-up availability (67%), followed by logistical (65%), care-related beliefs (59%) and financial reasons (57%). Older survivors (p<0.001), living outside major cities (p=0.008), and who were further from diagnosis (p=0.014) reported a higher number of barriers.ConclusionsUnderstanding patient-reported barriers, and tailoring care to survivors’ follow-up preferences, may improve engagement with care and ensure that the survivorship needs of this population are met.

scholarly journals Posttraumatic Stress Disorder and Illness Perception in Young Survivors of Childhood Cancer

2015 ◽  
Vol 4 (2) ◽  
pp. 86-98
Author(s):  
Elisa Kern de Castro ◽  
Renata Klein Zancan ◽  
Lauro José Gregianin
Keyword(s):  
Posttraumatic Stress Disorder ◽  
Childhood Cancer ◽  
Posttraumatic Stress ◽  
Stress Disorder ◽  
Illness Perception ◽  
Healthy People ◽  
Illness Perception Questionnaire ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

ObjetivoEste estudo teve como objetivo avaliar a presença de Transtorno de Estresse Pós-Traumático (TEPT) e a sua relação com a perceção da doença numa amostra de 65 jovens sobreviventes de cancro infantil, com uma média de idades de 19 anos (DP= 2,70) e que tinham terminado o tratamento, em média, há sete anos.MétodoForam aplicados instrumentos para obtenção de dados sociodemográficos e clínicos, de sintomas de TEPT – “Posttraumatic Stress Disorder Checklist – Civilian” (PCL-C) e de perceção da doença – “Revised Illness Perception Questionnaire for Healthy People” (IPQ-RH).ResultadosA presença de sintomas de TEPT variade 9,2% a 18,5% na amostra, e a perceção da doença esteve correlacionada com os sintomas deste transtorno. As subescalas Representação Emocional e Coerência da Doença (IPQ-RH), foram preditoras dos sintomas de Reexperiência (β = 0,0370; p < 0,01; β = 0,261; p<0,05, respetivamente). A subescala Representação Emocional (IPQ-RH) também foi preditora de sintomas de Esquiva (β = 0,330; p < 0,001).ConclusãoConcluiu-se que a perceção da doença deve ser investigada para prevenir os sintomas de TEPT em sobreviventes de câncer infantil.

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