Delays in diagnosis and treatment of childhood cancer in Indonesia

2016 ◽  
Vol 63 (12) ◽  
pp. 2189-2196 ◽  
Author(s):  
K. Handayani ◽  
M. N. Sitaresmi ◽  
E. Supriyadi ◽  
P. H. Widjajanto ◽  
D. Susilawati ◽  
...  
2007 ◽  
Vol 22 (5) ◽  
pp. 329-334 ◽  
Author(s):  
F. Karim ◽  
Md. A. Islam ◽  
A. Chowdhury ◽  
E. Johansson ◽  
V. K Diwan

JAMIA Open ◽  
2020 ◽  
Vol 3 (3) ◽  
pp. 472-486
Author(s):  
Yaffa R Rubinstein ◽  
Peter N Robinson ◽  
William A Gahl ◽  
Paul Avillach ◽  
Gareth Baynam ◽  
...  

Abstract The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community. Research into RDs has been limited by insufficient patient data and resources, a paucity of trained disease experts, and lack of therapeutics, leading to long delays in diagnosis and treatment. These issues can be ameliorated by following the principles and practices of sharing that are intrinsic to Open Science. Here, we describe how the RD community has adopted the core pillars of Open Science, adding new initiatives to promote care and research for RD patients and, ultimately, for all of medicine. We also present recommendations that can advance Open Science more globally.


2020 ◽  
Vol 87 (8) ◽  
pp. 641-643
Author(s):  
Nishant Verma ◽  
Sudipto Bhattacharya

1976 ◽  
Vol 23 (1) ◽  
pp. 3-9 ◽  
Author(s):  
Audrey E. Evans ◽  
Giulio J. D’Angio ◽  
C. Everett Koop

2014 ◽  
Vol 14 (1) ◽  
Author(s):  
Esther Buregyeya ◽  
Bart Criel ◽  
Fred Nuwaha ◽  
Robert Colebunders

2016 ◽  
Author(s):  
Timothy J. Triche ◽  
Jackie Biegel ◽  
Alex Judkins ◽  
Tracy Busse ◽  
Alan Wayne ◽  
...  

2008 ◽  
Vol 26 (15_suppl) ◽  
pp. 17559-17559
Author(s):  
S. Reganti ◽  
R. M. Eisner ◽  
C. Braden ◽  
M. St. Julien ◽  
B. P. Schmitt ◽  
...  

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