A Framework for Adapted Nutritional Therapy for Children With Cancer in Low- and Middle-Income Countries: A Report From the SIOP PODC Nutrition Working Group

2016 ◽  
Vol 63 (8) ◽  
pp. 1339-1348 ◽  
Author(s):  
Elena J. Ladas ◽  
Brijesh Arora ◽  
Scott C. Howard ◽  
Paul C. Rogers ◽  
Terezie T. Mosby ◽  
...  
2015 ◽  
Vol 63 (3) ◽  
pp. 387-391 ◽  
Author(s):  
Ramandeep Singh Arora ◽  
Julia M. Challinor ◽  
Scott C. Howard ◽  
Trijn Israels

2022 ◽  
pp. 105566562110698
Author(s):  
Matthew Fell ◽  
Michael Goldwasser ◽  
B.S. Jayanth ◽  
Rui Manuel Rodrigues Pereira ◽  
Christian Tshisuz Nawej ◽  
...  

A consortium of global cleft professionals, predominantly from low- and middle-income countries, identified adaptations to cleft care protocols during and after COVID-19 as a priority learning area of need. A multidisciplinary international working group met on a videoconferencing platform in a multi-staged process to make consensus recommendations for adaptations to cleft protocols within resource-constrained settings. Feedback was sought from a roundtable discussion forum and global organizations involved in comprehensive cleft care. Foundational principles were agreed to enable recommendations to be globally relevant and two areas of focus within the specified topic were identified. First the safety aspects of cleft surgery protocols were scrutinized and COVID-19 adaptations, specifically in the pre- and perioperative periods, were highlighted. Second, surgical procedures and cleft care services were prioritized according to their relationship to functional outcomes and time-sensitivity. The surgical procedures assigned the highest priority were emergent interventions for breathing and nutritional requirements and primary palatoplasty. The cleft care services assigned the highest priority were new-born assessments, pediatric support for children with syndromes, management of acute dental or auditory infections and speech pathology intervention. A collaborative, interdisciplinary and international working group delivered consensus recommendations to assist with the provision of cleft care in low- and middle-income countries. At a time of global cleft care delays due to COVID-19, a united approach amongst global cleft care providers will be advantageous to advocate for children born with cleft lip and palate in resource-constrained settings.


2021 ◽  
Author(s):  
Matthew John Fell ◽  
Michael Goldwasser ◽  
BS Jayanth ◽  
Rui Manuel Rodrigues Pereira ◽  
Christian Tshisuz Nawej ◽  
...  

Objective: A consortium of global cleft professionals, predominantly from low- and middle-income countries, identified adaptions to cleft care protocols during and after COVID as a priority learning area of need. Design: A multidisciplinary international working group met on a videoconferencing platform in a multi-staged process to make consensus recommendations for adaptions to cleft protocols within resource-constrained settings. Feedback was sought from a roundtable discussion forum and global organisations involved in comprehensive cleft care. Results: Foundational principles were agreed to enable recommendations to be globally relevant and two areas of focus within the specified topic were identified. First the safety aspects of cleft surgery protocols were scrutinised and COVID adaptions, specifically in the pre and peri-operative periods, were highlighted. Second, surgical operations and access to services were prioritized according to their relationship to functional outcomes and time-sensitivity. The operations assigned the highest priority were emergent interventions for breathing and nutritional requirements and primary palatoplasty. The cleft services assigned the highest priority were new-born assessments, paediatric support for children with syndromes, management of acute dental or auditory infections and speech pathology intervention. Conclusions: A collaborative, interdisciplinary and international working group delivered consensus recommendations to assist with the provision of cleft care in low- and middle-income countries. At a time of global cleft care delays due to COVID-19, a united approach amongst global cleft care providers will be advantageous to advocate for children born with cleft lip and palate in resource-constrained settings.


Author(s):  
Venkatraman Radhakrishnan ◽  
Jerin Ovett ◽  
Aruna Rajendran ◽  
Saikrishna Kolluru ◽  
Vishwajeeth Pai ◽  
...  

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 237s-237s
Author(s):  
A. Gagnepain-Lacheteau ◽  
S. Vougier

Background and context: 20% of the children with cancer live in the high-income countries, where the survival rate is 80%, while 80% live in low- and middle-income countries, where the survival rate is <40%, and even lower in the poorest countries. Aim: In 2006 Sanofi Espoir Foundation launched the My Child Matters program, to give all the children with cancer, wherever they live, the same chance to have access to diagnosis and care. Strategy/Tactics: This program is based on public–private partnerships in the field of pediatric oncology in low- and middle-income countries. Program/Policy process: The program works with calls for projects, with 3-year-cycle grants founded by Sanofi Espoir Foundation. The first call for projects was launched in December 2005 in 10 countries, leading to 14 projects supported by the foundation. The last call for project was launched in 2015, the next one is expected at the end of 2018. The projects are various, according to the local needs, strengths and opportunities, and can focus on early diagnosis improvement, psychosocial support, treatment abandonment reduction, capacity building, cancer registries, development of palliative care and pain management or a holistic approach. They are selected by an international expert committee. The engineering involves the medical direction of Sanofi Espoir, a scientific overview in partnership with St. Jude Children’s Research Hospital, a mentoring program with the commitment of various international experts and some training sessions for the team. Strong partnerships are established with UICC, SIOP, St. Jude Children’s Research Hospital, Alliance Mondiale Contre le Cancer (French branch of INCTR), Groupe Franco Africain d'Oncologie Pédiatrique and some local associations and foundations. Outcomes: 58 projects implemented in 42 countries in Asia, Africa and Latin America. 18 on-going projects; 75,000 children cared for; 20,000 healthcare professionals trained; ∼100 scientific articles related to the My Child Matters have been published. An ancillary call for projects, dedicated to the nurses in pediatric oncology, have been launched as well in 2015. What was learned: At the local level, the team leadership, the efficacy of the mentor–mentee duo, the commitment of the local government, the partnerships with local associations are decisive in succeeding and reaching a sustainable model. At the international level, reinforcing partnerships with NGO and other foundations increases the opportunities of collaborations for improving the life of children with cancer and contributing to reach the SDG 3.


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