Parental needs for information related to neurocognitive late effects from pediatric cancer and its treatment

2009 ◽  
Vol 52 (2) ◽  
pp. 273-279 ◽  
Author(s):  
Christine L. Trask ◽  
Jennifer J. Greene Welch ◽  
Peter Manley ◽  
Elissa Jelalian ◽  
Cindy L. Schwartz
Keyword(s):  
Pediatric Cancer ◽  
Late Effects ◽  
Neurocognitive Late Effects

Family estimates of risk for neurocognitive late effects following pediatric cancer: From diagnosis through the first three years of survivorship

2017 ◽  
Vol 64 (9) ◽  
pp. e26462 ◽  
Author(s):  
Emily L. Shultz ◽  
Vicky Lehmann ◽  
Joseph R. Rausch ◽  
Madelaine C. Keim ◽  
Adrien M. Winning ◽  
...  
Keyword(s):  
Pediatric Cancer ◽  
Late Effects ◽  
Neurocognitive Late Effects

Pediatric Cancer Survivors: Neurocognitive Late Effects

2012 ◽  
pp. 229-246
Author(s):  
Sarah Hile ◽  
Erica Montague ◽  
Bonnie Carlson-Green ◽  
Paul Colte ◽  
Leanne Embry ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Late Effects ◽  
Pediatric Cancer Survivors ◽  
Neurocognitive Late Effects

Neurocognitive late effects in pediatric cancer

2003 ◽  
Vol 27 (4) ◽  
pp. 177-197 ◽  
Author(s):  
Raymond K Mulhern ◽  
Shawna L Palmer
Keyword(s):  
Pediatric Cancer ◽  
Late Effects ◽  
Neurocognitive Late Effects

Supporting Pediatric Cancer Survivors With Neurocognitive Late Effects

2014 ◽  
Vol 32 (3) ◽  
pp. 134-142 ◽  
Author(s):  
Lisa Northman ◽  
Sarah Ross ◽  
Marybeth Morris ◽  
Sarah Tarquini
Keyword(s):  
Cancer Survivors ◽  
Pediatric Cancer ◽  
Late Effects ◽  
Pediatric Cancer Survivors ◽  
Neurocognitive Late Effects

Interventions for Cancer Late Effects and Survivorship

2006 ◽  
Author(s):  
Robert W. Butler ◽  
Donna R. Copeland
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Pediatric Cancer ◽  
Late Effects ◽  
Extended Family ◽  
Family Members ◽  
Current Status ◽  
Major Life ◽  
Term Outcome ◽  
Life Threatening Illness

It is now generally accepted that the diagnosis of many pediatric cancers and their treatments result in significant and long-lasting neurocognitive, psychological, and psychosocial impairments and difficulties. The current status of research in this field has been addressed by other chapters in this text. We would, however, like to emphasize at the onset of our chapter that we firmly believe pediatric cancer is truly a family affair. The effects of the diagnosis of a life-threatening illness and its often-chronic treatment not only result in significant impact on the child’s or adolescent’s neuropsychological and psychological state, but also cause psychological ramifications for the parents, siblings, and extended family members. In healthy, well-functioning families, this major life obstacle can serve as an impetus to rally family members in support of the child. When this happens, interventions for late effects are beginning to be identified as effective and of potential benefit. This field, however, is clearly in its infancy. If the family is chaotic and struggling with relationship issues, the prognosis is less positive. Our clinical observations of these relationships are supported both by preliminary data from studies conducted by our research group and others, and by published manuscripts in the field of pediatric traumatic brain injury (Yeates et al., 1997, 2001). In one of the only studies investigating the impact of familial variables on psychosocial and neuropsychological outcome in pediatric brain tumor patients, the results are extremely consistent with the traumatic brain injury population (Carlson-Green, Morris, & Krawjecki, 1995). Reduced maternal dependence on external coping resources, higher parental socioeconomic status, dual-parent families, and familial cohesion were all identified as improving long-term outcome in this population, as documented by intellectual and behavioral integrity. The late effects of pediatric cancer and its treatment are physical, cognitive, psychological, and social. When multiple effects are present, they can be expected to result in a synergistic impact not only on the child, but also on other family members. The important point is that late effects should not be viewed in isolation or summated but should be appreciated for their interrelatedness.

Parents’ understanding of the risk of late effects of pediatric cancer therapy.

2016 ◽  
Vol 34 (15_suppl) ◽  
pp. 10522-10522 ◽  
Author(s):  
Katie Greenzang ◽  
Angel Cronin ◽  
Tammy I Kang ◽  
Jennifer W. Mack
Keyword(s):  
Cancer Therapy ◽  
Pediatric Cancer ◽  
Late Effects

Pediatric Cancer Survivorship: Research and Clinical Care

2006 ◽  
Vol 24 (32) ◽  
pp. 5160-5165 ◽  
Author(s):  
Anna T. Meadows
Keyword(s):  
Pediatric Cancer ◽  
Late Effects ◽  
Clinical Care ◽  
Survival Rates ◽  
The United States ◽  
Term Survival ◽  
Pediatric Cancer Survivors ◽  
Effects Of Aging

Regardless of how one defines survivorship, more than 10 million individuals in the United States have been treated for a malignant disease; about 250,000 were younger than 21 years of age at diagnosis. Thirty years ago, pediatric oncologists recognized that children with cancer might be cured by adding chemotherapy to surgery and radiation. Studies were then begun of complications that could reduce survival or the quality of survival, and that might be associated with previous therapy. The complications were termed late effects, and studies focused on patients who were likely to be cured, or less likely to succumb to the original cancer than they were to experience disabilities. Clinical trials tested whether changes in therapy to reduce complications could maintain the same excellent survival rates. During the last 20 years, articles detailing late effects and the relationship between therapy and outcome have been published. This article reviews the progress made in understanding the outcomes reported and the efforts made to improve the quality of long-term survival for children and adolescents. Several questions remain regarding the long-term complications of therapy. Clinicians need more data regarding the effects of aging to guide them in managing former patients. Caregivers and pediatric cancer survivors who are now adults seek the optimal venue in which to receive care as independent adults. In addition, medical oncologists need to determine whether the models for research and clinical care of survivors created in pediatric oncology can be applied to survivors of adult-onset cancer.

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