scholarly journals Intervention and efficacy of advance care planning for patients in intensive care units and their families: a scoping review protocol

Nursing Open ◽  
2020 ◽  
Author(s):  
Kanako Yamamoto ◽  
Junko Hayama ◽  
Kazuhiro Nakayama ◽  
Yuki Yonekura ◽  
Erika Ota
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Advance Care Planning ◽  
Scoping Review ◽  
Care Planning ◽  
Review Protocol ◽  
Advance Care

scholarly journals A scoping review of nurse-led advance care planning

2021 ◽  
Author(s):  
Phyllis Whitehead ◽  
Erica Frechman ◽  
Marianne Johnstone-Petty ◽  
Jeannette Kates ◽  
Djin L. Tay ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Scoping Review ◽  
Care Planning ◽  
Advance Care

scholarly journals Advance care planning evaluation: a scoping review of best research practice

2021 ◽  
pp. bmjspcare-2021-003193
Author(s):  
Sophie Gloeckler ◽  
Tanja Krones ◽  
Nikola Biller-Andorno
Keyword(s):  
Advance Care Planning ◽  
Scoping Review ◽  
Retrospective Chart Review ◽  
Evidence Base ◽  
Future Research ◽  
Care Planning ◽  
Completion Rates ◽  
Future Care ◽  
Actual Care ◽  
Advance Care

Various indicators have been used to evaluate advance care planning, including completion rates, type of care received, and satisfaction. Recent consensus suggests, though, that receiving care consistent with one’s goals is the primary outcome of advance care planning and assessment should capture this metric. Goal concordant care is challenging to measure, and there is little clarity about how best to do so. The aim of this scoping review is to explore what methods have been used to measure goal concordant care in the evaluation of advance care planning. PubMed, Embase, PsycINFO, CINAHL and Cochrane were searched in September 2020 to identify studies that aimed to track whether advance care planning affected the likelihood of patients receiving care that matched their preferred care. 135 original studies were included for review. Studies used retrospective chart review (36%, n=49), questionnaire (36%, n=48) and interview (31%, n=42), focusing on both patients and proxies. Studies considered both actual care received (55%, n=74) and hypothetical scenarios anticipating possible future care (49%, n=66); some studies did both. While the reviewed studies demonstrate the possibility of working towards a solid methodology, there were significant weaknesses. Notably, studies often lacked enough reporting clarity to be reproducible and, relatedly, key concepts, such as end-of-life or preferred care, were left undefined. The recommendations that follow from these findings inform future research approaches, supporting the development of a strong evidence base to guide advance care planning implementation in practice.

Advance care planning for patients with cancer in palliative care: A scoping review from a professional perspective

2020 ◽  
Vol 29 (13-14) ◽  
pp. 2069-2082
Author(s):  
Anne Kuusisto ◽  
Jenni Santavirta ◽  
Kaija Saranto ◽  
Päivi Korhonen ◽  
Elina Haavisto
Keyword(s):  
Palliative Care ◽  
Advance Care Planning ◽  
Scoping Review ◽  
Care Planning ◽  
Patients With Cancer ◽  
Professional Perspective ◽  
Advance Care

Factors influencing the engagement of cancer patients with advance care planning: A scoping review

2019 ◽  
Vol 28 (3) ◽  
Author(s):  
Evelien R. Spelten ◽  
Olaf Geerse ◽  
Julia Vuuren ◽  
Jennifer Timmis ◽  
Bev Blanch ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Advance Care Planning ◽  
Scoping Review ◽  
Care Planning ◽  
Factors Influencing ◽  
Advance Care

Health disparities in advance care planning at a safety-net hospital.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 125-125 ◽  
Author(s):  
Elizabeth Levin ◽  
Michael Ries ◽  
Jeffrey B Rubins ◽  
Andres Wiernik
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
Advance Care Planning ◽  
Safety Net ◽  
Stage Iii ◽  
English Speakers ◽  
Care Planning ◽  
Advance Care ◽  
English Speaking

125 Background: Advance health care directives (AHCDs) are recommended by ASCO as a strategy to improve compliance with patient wishes at the end-of-life, thereby facilitating appropriate use of health care resources. We already know too few cancer patients complete AHCDs, but we know less about barriers to their completion. This study assessed the frequency with which AHCDs were completed in different ethnic groups and whether hospice enrollment varied by ethnicity. Methods: Retrospective analysis conducted at Hennepin County Medical Center in Minneapolis, MN with review of the cancer registry data from 2008 to 2013. Data were collected for deceased patients with stage III-IV cancer from the time of diagnosis through death. Demographics, AHCD, hospital deaths, enrollment in hospice, and individual patient data were analyzed using logistic regression, adjusting for both race and language as covariates. Results: From 2008 to 2013, there were 273 patients diagnosed with stage III-IV cancer and followed through death. Fourteen percent of patients were non-English speaking. Thirty-one percent were African American (AA), 4% were Hispanic, and 4% were Asian. Only 21% of patients completed an AHCD during their care, and none were Asian or Hispanic. English speakers were almost five times more likely than non-English speakers to have an AHCD (OR = 4.66, 95% CI = (1.06, 20.46), p = 0.04). Fifty-one percent of English-speaking patients enrolled in hospice compared to 39% of non-English-speaking patients (p = 0.08). Sixty percent of patients with an AHCD enrolled in hospice compared to 46% of those patients without an AHCD (p = 0.10). Forty-three percent of patients with an AHCD died in the hospital, 33% of whom died in an intensive care unit (ICU), versus 46% without an AHCD, 49% of whom died in an ICU. Of patients with advanced cancer, 46% died in the hospital and 21% died in the intensive care unit (ICU). Conclusions: Non-English-speaking patients are far less likely to have an AHCD than English speakers. Some ethnicities in our study had no patients with an AHCD. Since completing an AHCD may increase hospice enrollment and decrease ICU deaths, strategies to promote advance care planning are urgently needed, particularly with non-English speaking patients.

scholarly journals Advance Care Planning in Neurodegenerative Disorders: A Scoping Review

2022 ◽  
Vol 19 (2) ◽  
pp. 803
Author(s):  
Andrea Giordano ◽  
Ludovica De Panfilis ◽  
Marta Perin ◽  
Laura Servidio ◽  
Marta Cascioli ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Scoping Review ◽  
Neurodegenerative Disorders ◽  
Health Professionals ◽  
Care Planning ◽  
Randomized Controlled ◽  
Quasi Experimental ◽  
Advance Care ◽  
Almost All ◽  
Lateral Sclerosis

Advance care planning (ACP) is increasingly acknowledged as a key step to enable patients to define their goals/preferences for future medical care, together with their carers and health professionals. We aimed to map the evidence on ACP in neurodegenerative disorders. We conducted a scoping review by searching PubMed (inception-December 28, 2020) in addition to trial, review, and dissertation registers. From 9367 records, we included 53 studies, mostly conducted in Europe (45%) and US-Canada (41%), within the last five years. Twenty-six percent of studies were qualitative, followed by observational (21%), reviews (19%), randomized controlled trials (RCTs, 19%), quasi-experimental (11%), and mixed-methods (4%). Two-thirds of studies addressed dementia, followed by amyotrophic lateral sclerosis (13%), and brain tumors (9%). The RCT interventions (all in dementia) consisted of educational programs, facilitated discussions, or videos for patients and/or carers. In conclusion, more research is needed to investigate barriers and facilitators of ACP uptake, as well as to develop/test interventions in almost all the neurodegenerative disorders. A common set of outcome measures targeting each discrete ACP behavior, and validated across the different diseases and cultures is also needed.

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