scholarly journals Relatives’ experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study

Nursing Open ◽  
2018 ◽  
Vol 6 (2) ◽  
pp. 276-282 ◽  
Author(s):  
Ewa Kazimiera Andersson ◽  
Helén Dellkvist ◽  
Ulrika Bernow Johansson ◽  
Lisa Skär
2020 ◽  
Vol 2020 ◽  
pp. 1-15
Author(s):  
Ashley E. Thompson ◽  
Anca M. Miron ◽  
Jonathan M. Rogers ◽  
Rudy Rice

Because the interpersonal skills of individuals with dementia often decline, family members may question their own ability to interact meaningfully. These family members may experience fear of incompetence (i.e., fear of being unable to relate in a meaningful way or take care of a close family member with dementia). Thus, the goal of this research was to develop, refine, and psychometrically validate a scale (Fear of Incompetence—Dementia Scale; FOI-D) assessing fear of incompetence in the context of relationships with a close family member diagnosed with dementia. Three online studies were conducted to accomplish the primary objective. In Study One, the factor structure of the FOI-D was assessed by conducting an exploratory factor analysis using data from 710 adults who indicated having a close living family member who had been diagnosed with dementia. In Study Two, the factor structure was validated via a confirmatory factor analysis and the psychometric properties were established using data from 636 adults who had a family member with dementia. Finally, Study Three determined the temporal consistency of the scale by retesting 58 participants from Study Two. The results from Study One indicated that the FOI-D Scale accounted for 51.75% of the variance and was comprised of three subscales: the Interaction Concerns subscale, the Caregiving Concerns subscale, and the Knowledge Concerns subscale. In Study Two, the three-factor structure was supported, resulting in a 58-item scale. Investigation of the psychometric properties demonstrated the FOI-D to be reliable and valid. In Study Three, the FOI-D Scale demonstrated excellent temporal consistency. This research provides future investigators, educators, and practitioners with an adaptable comprehensive tool assessing fear of incompetence in a variety of settings.


2020 ◽  
Vol 23 (2) ◽  
pp. 121-140
Author(s):  
Sanja Radetić-Lovrić ◽  
Aleksandra Pećanac

The research was conducted with the aim of understanding the far-reaching psychological consequences of the war that took place in the territory of former Yugoslavia (1991-1995). The study examines the relationships between wartime traumatic experience of loss, the quality of life and mental health, and the role of social support across three categories of respondents: the first consisting of the respondents who had lost a close family member in the war and whose remains have not been found to date; the second category consisting of the persons who had lost a close family member in the war, and the third category including the respondents who participated in the war socialization but did not experience the loss of a close family member in the war. The survey used the Psychosomatic symptoms lists, the Depression Symptoms Questionnaire, the Subjective Happiness Scale, the Life Satisfaction Scale, and the Social Support Significance Assessment Scale. The results show that the respondents who continue to search for the body of a missing family member have a lower quality of life than the other two categories of respondents, as well as a more pronounced presence of depressive and psychosomatic symptoms. The role of social support in the trauma recovery process remains unclear. The results of the study are discussed in relation to completed and prolonged traumatic loss, and point to further research into the complex emotional dynamics as a consequence of war socialization and the importance of professional psychological support.


2020 ◽  
pp. 268-318
Author(s):  
Reinhard Zimmermann

The compulsory portion of the German law of succession is a personal claim by a close family member of the deceased against the deceased’s heir, or heirs, to receive the value of one-half of his or her intestate share. The range of persons entitled to a compulsory portion is limited to the deceased’s descendants, his parents, and his surviving spouse. The right to a compulsory portion can be lost as a result of having been deprived of it by the deceased (which is possible in a limited number of situations), as a result of being ‘unworthy’ to receive a benefit from the deceased’s estate, or as a result of having waived the right. All in all, the system enacted in the German Civil Code (BGB) in 1900 has proved to be comparatively stable; even the amendments of 2010 as a result of the Act on the Reform of the Law of Succession and Prescription were rather modest and have shifted the balance between freedom of testation and family solidarity only very slightly in the direction of freedom of testation. This is often seen as confirmation that, essentially, the rules of the BGB provide a solution that is both pragmatic and reasonable. The Federal Constitutional Court has even, in 2005, ruled that a certain minimum participation for children in a deceased’s estate not only does not contravene the constitutional guarantee of ‘property and the right of inheritance’ in Article 14(1) GG, but is itself protected by that provision.


2008 ◽  
Vol 40 (4) ◽  
pp. 311-318 ◽  
Author(s):  
Erla Kolbrun Svavarsdottir ◽  
Brynja Orlygsdottir

2015 ◽  
Vol 46 (6) ◽  
pp. 1163-1173 ◽  
Author(s):  
K. D. László ◽  
J. Li ◽  
J. Olsen ◽  
M. Vestergaard ◽  
C. Obel ◽  
...  

BackgroundMaternal stress during pregnancy may increase the risk of preterm delivery (PD), but the associations between stress and subtypes of PD are not clear. We investigated maternal loss of a close relative and risks of very and moderately PD (<32 and 32–36 weeks, respectively) and spontaneous and medically indicated PD.MethodWe studied 4 940 764 live singleton births in Denmark (1978–2008) and Sweden (1973–2006). We retrieved information on death of women's family members (children, partner, siblings, parents), birth outcomes and maternal characteristics from nationwide registries.ResultsOverall, the death of a close family member the year before pregnancy or in the first 36 weeks of pregnancy was associated with a 7% increased risk of PD [95% confidence interval (CI) 1.04–1.10]. The highest hazard ratios (HR) for PD were found for death of an older child [HR (95% CI) 1.20 (1.10–1.31)] and for death of a partner [HR (95% CI) 1.31 (1.03–1.66)]. These losses were associated with higher risks of very preterm [HR (95% CI) 1.61 (1.29–2.01) and 2.07 (1.15–3.74), respectively] than of moderately preterm [HR (95% CI) 1.14 (1.03–1.26) and 1.22 (0.94–1.58), respectively] delivery. There were no substantial differences in the association between death of a child or partner and the risk of spontaneous v. medically indicated PD.ConclusionsDeath of a close family member the year before or during pregnancy was associated with an increased risk of PD, especially very PD. Possible mechanisms include both spontaneous and medically indicated preterm birth.


2019 ◽  
Vol 30 (6) ◽  
pp. 1545-1549
Author(s):  
Lirie Aliu ◽  
Gjylten Ademi

Albanian Diaspora is present throughout the world and is large in numbers. A substantial emigration from Kosovo has been taken place in various phases during the second half of the 20th century as Albanians in Kosovo, Macedonia and Albania as well. Albanians generally know the burden of migration. Albanian families have at least one of their close family member or a relative living and working outside Kosovo. For many decades main financial resources from our compatriots have been uncontested and a living source for Kosovo families! In addition, diaspora marks dynamics and drive of money as in construction and trade, and its peak is during the winter and summer holidays. Therefore, we were interested in the most inclusive way and locally to focus on remittances of our compatriots who are from the city of Vitia and surroundings. Interest to investigate this development realized since the municipality of Vitia this year (2016) continually supported the migrants to invest and aid them to channel their humanitarian resources through official and transparent channels by organizing different events and joint cultural gatherings. Maybe, a little bit to alleviate poverty in this city and to deepen cooperation further. The municipality of Vitia is located in south-eastern Kosovo. It covers an area of approximately 276 km² and includes Vitia town and 38 villages. The total population is approximately 47,000 (46,987 according to the Kosovo Population and Housing Census 2011).170 It's interesting that Vitia’s diaspora is very powerful and active always ready to help its people whenever it’s needed. Approximately more than 35% of Vitia’s inhabitants work and live in Switzerland and Germany. Approximately every second village has its respective association in the city where they live, in Switzerland or Germany.


Author(s):  
Sara Portnoy ◽  
Lori Ives-Baine

Most families do not expect to bury a child. Adults expect to die before their children, certainly before their grandchildren. Yet every year parents face the enormous grief of having their child die and many young people experience the death of their sibling. This chapter discusses the impact of a child’s death on families, adults, and children, and describes interventions, based on theory, that may help bereaved families. Although unimaginable, most children and their families will cope with the death of a close family member, especially if they can express their feelings and thoughts, if the family can talk about what is happening and about their memories of the deceased, and if they have the opportunity to meet others who have been bereaved.


2020 ◽  
Vol 295 (42) ◽  
pp. 14501-14509 ◽  
Author(s):  
Gun-Hee Lee ◽  
Morihisa Fujita ◽  
Hideki Nakanishi ◽  
Haruhiko Miyata ◽  
Masahito Ikawa ◽  
...  

PGAP6, also known as TMEM8A, is a phospholipase A2 with specificity to glycosylphosphatidylinositol (GPI) and expressed on the surface of various cells. CRIPTO, a GPI-anchored co-receptor for a morphogenic factor Nodal, is a sensitive substrate of PGAP6. PGAP6-mediated shedding of CRIPTO plays a critical role in an early stage of embryogenesis. In contrast, CRYPTIC, a close family member of CRIPTO, is resistant to PGAP6. In this report, chimeras between CRIPTO and CRYPTIC and truncate mutants of PGAP6 were used to demonstrate that the Cripto-1/FRL1/Cryptic domain of CRIPTO is recognized by an N-terminal domain of PGAP6 for processing. We also report that among 56 human GPI-anchored proteins tested, only glypican 3, prostasin, SPACA4, and contactin-1, in addition to CRIPTO, are sensitive to PGAP6, indicating that PGAP6 has a narrow specificity toward various GPI-anchored proteins.


Human Affairs ◽  
2020 ◽  
Vol 30 (3) ◽  
pp. 399-412
Author(s):  
Lucia Záhorcová ◽  
Andrea Prielomková

AbstractThe goal of this study was to examine the relationship between posttraumatic growth, ruminations, and core beliefs in grieving individuals after the loss of a loved one. The participants were 140 bereaved individuals (122 women, 18 men; M = 38.40; SD = 13.96). The results showed that posttraumatic growth was positively related to intrusive and deliberate ruminations; however, it was positively predicted only by deliberate ruminations. Core beliefs disruption was also positively related to deliberate and intrusive ruminations, but only deliberate ruminations positively predicted core beliefs. Moreover, posttraumatic growth is positively related to grief after the loss but unrelated to the time elapsed since loss. Higher posttraumatic growth was found in individuals who had experienced a sudden loss and loss of a close family member. Overall, the study shows that deliberate ruminations, for example about the meaning of the loss and its consequences, can stimulate posttraumatic growth in bereaved individuals.


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