scholarly journals Construction and validation of the chronic acquired polyneuropathy patient-reported index (CAP-PRI): A disease-specific, health-related quality-of-life instrument

2015 ◽  
Vol 54 (1) ◽  
pp. 9-17 ◽  
Author(s):  
Kelly G. Gwathmey ◽  
Mark R. Conaway ◽  
Reza Sadjadi ◽  
Amruta Joshi ◽  
Carolina Barnett ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Life Instrument ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health

scholarly journals Development of a Disease-Specific Health-Related Quality of Life Instrument for Children in the United States With Celiac Disease

2011 ◽  
Vol 140 (5) ◽  
pp. S-686
Author(s):  
Nicole Jordan ◽  
Yuelin Li ◽  
Danielle Magrini ◽  
Norelle Rizkalla Reilly ◽  
Robbyn E. Sockolow ◽  
...  
Keyword(s):  
Quality Of Life ◽  
United States ◽  
The United States ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health

scholarly journals Preference-based disease-specific health-related quality of life instrument for glaucoma: a mixed methods study protocol

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012732 ◽  
Author(s):  
Sergei Muratov ◽  
Dominik W Podbielski ◽  
Susan M Jack ◽  
Iqbal Ike K Ahmed ◽  
Levine A H Mitchell ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health

Interviewer versus self-administered questionnaires in developing a disease-specific, health-related quality of life instrument for asthma

1993 ◽  
Vol 46 (6) ◽  
pp. 529-534 ◽  
Author(s):  
Deborah J. Cook ◽  
Gordon H. Guyatt ◽  
Elizabeth Juniper ◽  
Lauren Griffith ◽  
William McIlroy ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health

scholarly journals Explanatory Factors for Disease-Specific Health-Related Quality of Life in Women with Anorexia Nervosa

2021 ◽  
Vol 10 (8) ◽  
pp. 1592
Author(s):  
Laura Al-Dakhiel Winkler ◽  
Claire Gudex ◽  
Mia Beck Lichtenstein ◽  
Michael Ejnar Røder ◽  
Carol E. Adair ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Eating Disorder ◽  
Normal Weight ◽  
Health Related Quality ◽  
Explanatory Factors ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health

A better understanding of explanatory factors for disease-specific health-related quality of life (HRQoL) in anorexia nervosa (AN) could help direct treatment providers to aspects of the most relevance for patient wellbeing and recovery. We aimed to investigate whether factors associated with HRQoL are the same for women with AN and normal-weight controls. The participants in this study were women with AN recruited from specialized eating disorder centers in Denmark and healthy, normal-weight controls invited via online social media. Participants completed online questionnaires on medical history, disease-specific HRQoL (Eating Disorders Quality of Life Scale, EDQLS) and generic HRQoL (SF-36), eating disorder symptomatology, depression, psychological wellbeing, and work and social adjustment. Questionnaires were fully completed by 211 women with AN (median age 21.7 years) and 199 controls (median age 23.9 years). Women with AN had poorer scores on all measures, i.e., worse HRQoL, psychological health, and work/social functioning. Eating disorder symptomatology affected EDQLS score in both groups, but poorer HRQoL in women with AN was also significantly associated with worse scores on bulimia, maturity fears, depression, vitality, and with older age. The factors investigated together explained 79% of the variance in EDQLS score. Management of disordered self-assessment and thought processes may be of particular importance to women with AN. Greater emphasis on these aspects alongside weight gain could enhance patient–clinician alliance and contribute to better treatment outcomes.

Generic and Disease-Specific Health-Related Quality of Life in Pediatric Intestinal Failure

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Jessica K. McCaig ◽  
Owen S. Henry ◽  
Danielle A. Stamm ◽  
Gaby Dorval ◽  
Alexis Hurley ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intestinal Failure ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health
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