scholarly journals Myotonic Dystrophy Health Index: Initial evaluation of a disease-specific outcome measure

2014 ◽  
Vol 49 (6) ◽  
pp. 906-914 ◽  
Author(s):  
Chad Heatwole ◽  
Rita Bode ◽  
Nicholas Johnson ◽  
Jeanne Dekdebrun ◽  
Nuran Dilek ◽  
...  
Keyword(s):  
Myotonic Dystrophy ◽  
Outcome Measure ◽  
Initial Evaluation ◽  
Health Index ◽  
Specific Outcome ◽  
Disease Specific Outcome Measure ◽  
Disease Specific

The Myotonic Dystrophy Health Index: Italian validation of a disease-specific outcome measure

2017 ◽  
Vol 27 (11) ◽  
pp. 1047-1053 ◽  
Author(s):  
Valeria A. Sansone ◽  
Andrea Lizio ◽  
Lucia Greco ◽  
Gaia Gragnano ◽  
Alice Zanolini ◽  
...  
Keyword(s):  
Myotonic Dystrophy ◽  
Outcome Measure ◽  
Health Index ◽  
Italian Validation ◽  
Specific Outcome ◽  
Disease Specific Outcome Measure ◽  
Disease Specific

scholarly journals Development of a patient-oriented outcome measure for patients with hand and elbow disorder: HandQ

2019 ◽  
Author(s):  
Kosuke Uehara ◽  
Toshiki Miura ◽  
Takashi Ohe ◽  
Tokuhide Doi ◽  
Sakae Tanaka ◽  
...  
Keyword(s):  
Internal Consistency ◽  
Graphical Model ◽  
Outcome Measure ◽  
Intraclass Correlation ◽  
Reliability And Validity ◽  
Psychometric Characteristics ◽  
Specific Outcome ◽  
Disease Specific Outcome Measure ◽  
Test Retest Reliability ◽  
Disease Specific

Abstract Background: We aimed to develop a patient-oriented disease-specific outcome measure for patients with disorders of the hand and elbow, which we call the HandQ, and examine the practical applicability, reliability and validity of the HandQ for any patient with disorders of the hand and elbow. Methods: A total of 216 patients were surveyed with the HandQ, as well as the Hand20 and the DASH to assess psychometric characteristics. Results: Test-retest reliability and internal consistency determined using the intraclass correlation coefficient (0.942) and Cronbach’s alpha test (0.961) were excellent. The HandQ was well correlated with the other questionnaires. Scree plot showed uni-dimensionality of the HandQ, and the graphical model showed the questionnaire items of the HandQ had reasonable correlation among each item. Conclusions: The HandQ has a sufficient reliability and internal consistency, and an excellent validity, and was shown to be able to be practically applicable in all patients with hand and elbow disorders.

scholarly journals Development of a patient-oriented outcome measure for patients with hand and elbow disorder: HandQ

2020 ◽  
Vol 28 (3) ◽  
pp. 230949902095915
Author(s):  
Kosuke Uehara ◽  
Toshiki Miura ◽  
Ohe Takashi ◽  
Tokuhide Doi ◽  
Sakae Tanaka ◽  
...  
Keyword(s):  
Internal Consistency ◽  
Graphical Model ◽  
Outcome Measure ◽  
High Reliability ◽  
Intraclass Correlation ◽  
Score Test ◽  
Reliability And Validity ◽  
Specific Outcome ◽  
Disease Specific Outcome Measure ◽  
Test Retest Reliability

Purpose: The Disabilities of the Arm, Shoulder, and Hand (DASH) is the most widely used patient-oriented outcome measure for the upper extremities in the world, and high reliability and validity of it has already been confirmed. However, there are several problems with using the DASH, some of which are culturally related. We aimed to (1) develop a patient-oriented disease-specific outcome measure for patients with disorders of the hand and elbow, which we call the HandQ and (2) examine the practical applicability, reliability, and validity of the HandQ for any patient with disorders of the hand and elbow. Methods: A total of 216 patients were surveyed with the HandQ, as well as the Hand20 and the DASH to assess psychometric characteristics. Results: There were no considerable floor and ceiling effects regarding the total HandQ score. Test–retest reliability and internal consistency determined using the intraclass correlation coefficient (0.942) and Cronbach’s α test (0.961) were excellent. The HandQ was well correlated with the Hand20 and the DASH scores. Scree plot showed unidimensionality of the HandQ, and the graphical model showed the questionnaire items of the HandQ had reasonable correlation among each item. Conclusions: The HandQ has a sufficient reliability and internal consistency, and an excellent validity, and was shown to be able to be practically applicable in all patients with hand and elbow disorders.

scholarly journals Development of a Universal Disease-Specific Outcome Instrument for Spine Trauma: The AOSpine Clinician Reported Outcome Spine Trauma (AOSpine CROST)

2016 ◽  
Vol 6 (1_suppl) ◽  
pp. s-0036-1582907-s-0036-1582907
Author(s):  
Said Sadiqi ◽  
Jorrit-Jan Verlaan ◽  
A. Mechteld Lehr ◽  
F. C. Oner ◽  
Keyword(s):  
Spine Trauma ◽  
Outcome Instrument ◽  
Specific Outcome ◽  
Disease Specific

Disease-Specific Outcome Analysis of Palliation With the Modified Blalock-Taussig Shunt

2014 ◽  
Vol 6 (1) ◽  
pp. 67-74 ◽  
Author(s):  
Thierry Bove ◽  
Kristof Vandekerckhove ◽  
Joseph Panzer ◽  
Katya De Groote ◽  
Daniel De Wolf ◽  
...  
Keyword(s):  
Outcome Analysis ◽  
Specific Outcome ◽  
Disease Specific ◽  
Blalock Taussig Shunt
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