Future Expectations and Worst-Case Future Scenarios of Patients with Rheumatoid Arthritis: A Focus Group Study

2012 ◽  
Vol 10 (4) ◽  
pp. 240-247 ◽  
Author(s):  
Laurien Buitinga ◽  
Louise M. A. Braakman-Jansen ◽  
Erik Taal ◽  
Mart A. F. J. van de Laar
2007 ◽  
Vol 30 (4) ◽  
pp. 38
Author(s):  
S. Bernatsky ◽  
D. Feldman ◽  
M. Roper ◽  
E. Rosenberg

The objective of our work was to identify facilitators of optimal care, as well as potential barriers, for patients with rheumatoid arthritis (RA). The design was a focus group study. Individuals with established RA were identified through invitation letters sent using a random sample of the Quebec Arthritis Society mailing list. Patients were eligible for participation if they had a diagnosis of RA confirmed by a rheumatologist and if they had sought care within the McGill Réseau Universitaire Intégré de Santé network. We planned a series of focus group meetings (90 minutes each) to obtain sufficient data in terms of spectrum of ideas. In each moderator-led group, participants were asked to discuss five questions related to quality care. A co-moderator was available to document non-verbal communication, with audio-taping of all sessions and professional transcription for data analysis. Qualitative content analysis, based on grounded theory, was the chosen means of identifying recurring themes and categories. Two focus group sessions have been completed with two more scheduled. Preliminary findings indicate the importance of good communication between family physicians, specialists, and allied health care workers. Final coding of transcripts and computer-assisted content analysis is being completed. However it appears that focus group may be useful in studying optimal care for chronic diseases such as RA. Our preliminary findings emphasize the necessity of good communication among health care providers. Ultimately we hope to generate knowledge that can be transformed into better health for Canadians with arthritis and other chronic diseases.


2013 ◽  
Vol 32 (5) ◽  
pp. 557-566 ◽  
Author(s):  
Caroline Feldthusen ◽  
◽  
Mathilda Björk ◽  
Helena Forsblad-d’Elia ◽  
Kaisa Mannerkorpi

2011 ◽  
Vol 10 (1) ◽  
pp. 29-38 ◽  
Author(s):  
Tine Mechlenborg Kristiansen ◽  
Jette Primdahl ◽  
Rasmus Antoft ◽  
Kim Hørslev-Petersen

2010 ◽  
Vol 29 (6) ◽  
pp. 645-657 ◽  
Author(s):  
Sasha Bernatsky ◽  
Debbie Feldman ◽  
Mirella De Civita ◽  
Jeannie Haggerty ◽  
Pierre Tousignant ◽  
...  

2018 ◽  
Vol Volume 12 ◽  
pp. 349-358 ◽  
Author(s):  
Elke GE Mathijssen ◽  
Johanna E Vriezekolk ◽  
Agnes MM Eijsbouts ◽  
Frank HJ van den Hoogen ◽  
Bart JF van den Bemt

Rheumatology ◽  
2012 ◽  
Vol 51 (11) ◽  
pp. 2027-2033 ◽  
Author(s):  
L. Buitinga ◽  
L. M. A. Braakman-Jansen ◽  
E. Taal ◽  
M. A. F. J. van de Laar

2016 ◽  
Vol 26 (2) ◽  
pp. 109-113 ◽  
Author(s):  
Wan Pin Lee ◽  
Sharon Song-Song Lee ◽  
Xiaohui Xin ◽  
Julian Thumboo

Objective: To explore common reasons for non-adherence to treatment in patients with rheumatoid arthritis in Singapore. Methods: Patients diagnosed with rheumatoid arthritis for ⩾ 1 year being followed up at the Singapore General Hospital and meeting pre-defined criteria of non-adherence were invited to participate in focus groups to discuss issues related to adherence to their rheumatoid arthritis treatment. Each focus group was homogenous in terms of gender, language spoken and ethnicity. Discussions were audio recorded and subsequently transcribed verbatim for thematic analysis. Results: Of the 26 patients who participated in the study, seven reported non-adherence to medication, two reported non-adherence to doctors’ appointments, and 11 reported non-adherence to both. The most commonly mentioned reasons for non-adherence were forgetfulness ( n=13), low perceived need for treatment ( n=10), actual or perceived medication side effects ( n=6) and intentional delay due to busyness ( n=4). Eleven participants acknowledged more than one of these four reasons for non-adherence. Conclusion: There are multiple reasons for non-adherence to treatment among patients with rheumatoid arthritis in Singapore. Findings from this study provide important empirical evidence to inform strategies to improve adherence and in turn treatment outcomes for this group of patients in Singapore.


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