Valid informed consent and participative decision-making in children with cancer and their parents: A report of the SIOP working committee on psychosocial issues in pediatric oncology

2003 ◽  
Vol 40 (4) ◽  
pp. 244-246 ◽  
Author(s):  
John J. Spinetta ◽  
Giuseppe Masera ◽  
Momcilo Jankovic ◽  
Daniel Oppenheim ◽  
Antonio Gentil Martins ◽  
...  
Keyword(s):  
Decision Making ◽  
Informed Consent ◽  
Pediatric Oncology ◽  
Psychosocial Issues ◽  
Children With Cancer

Guidelines for assistance to siblings of children with cancer: Report of the SIOP working committee on psychosocial issues in pediatric oncology

1999 ◽  
Vol 33 (4) ◽  
pp. 395-398 ◽  
Author(s):  
John J. Spinetta ◽  
Momcilo Jankovic ◽  
Tim Eden ◽  
Daniel Green ◽  
Antonio Gentil Martins ◽  
...  
Keyword(s):  
Pediatric Oncology ◽  
Psychosocial Issues ◽  
Children With Cancer

Nutrition-Related Clinical Decision Making of Pediatric Oncology Nurses

2019 ◽  
Vol 36 (5) ◽  
pp. 352-360
Author(s):  
Amanda J. Lulloff ◽  
Judith A. Vessey ◽  
Lisa Bashore ◽  
Matt Gregas
Keyword(s):  
Decision Making ◽  
Nutritional Status ◽  
Pediatric Oncology ◽  
Clinical Decision Making ◽  
Nutritional Assessment ◽  
Clinical Decision ◽  
Oncology Nurses ◽  
Children With Cancer ◽  
Pediatric Hematology

Children with a cancer diagnosis have risk factors leading to unique nutritional challenges. Malnutrition in this population is correlated with worse patient outcomes. Nurses are responsible for providing holistic care to their patients; however, the quality of nutritional assessments by pediatric oncology nurses is unknown. The purpose of this study was to investigate staff nurses’ clinical decision making regarding nutritional assessment of children with cancer. A web-based survey composed of a demographic form, vignettes of patients with diverse nutritional status and the New General Self-Efficacy Scale, was distributed to members of the Association of Pediatric Hematology Oncology Nurses. Participants were also asked to rate their confidence in responses as well as select key nutritional cues. Nurses were significantly more likely to under-rate the nutritional status and select far fewer cues than the experts. Further research regarding nutritional assessment is warranted. Evidenced-based guidelines for nutritional assessment of children with cancer should be developed to ensure the highest quality of care is provided to this patient population.

scholarly journals Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology

Cancer ◽  
2015 ◽  
Vol 121 (14) ◽  
pp. 2439-2448 ◽  
Author(s):  
Liza-Marie Johnson ◽  
Angela C. Leek ◽  
Dennis Drotar ◽  
Robert B. Noll ◽  
Susan R. Rheingold ◽  
...  
Keyword(s):  
Decision Making ◽  
Informed Consent ◽  
Pediatric Oncology ◽  
Phase 1

Oncologist views of informed consent and joint decision making in pediatric oncology

2010 ◽  
Author(s):  
Robert Olson ◽  
Juliette Hukin ◽  
Suzanne Steenburgh ◽  
Rod Rassekh ◽  
Anita Ho ◽  
...  
Keyword(s):  
Decision Making ◽  
Informed Consent ◽  
Pediatric Oncology ◽  
Joint Decision

Certified Patient Decision Aids: Solving Persistent Problems with Informed Consent Law

2017 ◽  
Vol 45 (1) ◽  
pp. 12-40 ◽  
Author(s):  
Thaddeus Mason Pope
Keyword(s):  
Decision Making ◽  
Informed Consent ◽  
Medical Treatment ◽  
Shared Decision Making ◽  
Decision Aids ◽  
Shared Decision ◽  
Legal Doctrine ◽  
Patient Decision Aids ◽  
Patient Decision ◽  
Decision Making Processes

The legal doctrine of informed consent has overwhelmingly failed to assure that the medical treatment patients get is the treatment patients want. This Article describes and defends an ongoing shift toward shared decision making processes incorporating the use of certified patient decision aids.

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