Health-related quality of life and family function following pediatric liver transplantation

2008 ◽  
Vol 14 (4) ◽  
pp. 460-468 ◽  
Author(s):  
Estella M. Alonso ◽  
Katie Neighbors ◽  
Franca B. Barton ◽  
Sue V. McDiarmid ◽  
Stephen P. Dunn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Pediatric Liver Transplantation ◽  
Health Related Quality ◽  
Family Function ◽  
Pediatric Liver ◽  
Related Quality ◽  
Health Related

Health-related quality of life in long-term survivors of pediatric liver transplantation

2000 ◽  
Vol 6 (3) ◽  
pp. 333-339 ◽  
Author(s):  
Deborah E. Midgley ◽  
Tatum A. Bradlee ◽  
Christopher Donohoe ◽  
Kevin P. Kent ◽  
Estella M. Alonso
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Pediatric Liver Transplantation ◽  
Health Related Quality ◽  
Pediatric Liver ◽  
Related Quality ◽  
Health Related ◽  
Long Term Survivors

scholarly journals Health-Related Quality of Life after Pediatric Liver Transplantation: A Qualitative Analysis of the Perspectives of Health Care Providers

2017 ◽  
Vol 2017 ◽  
pp. 1-8 ◽  
Author(s):  
Mar Miserachs ◽  
David B. Nicholas ◽  
Anthony R. Otley ◽  
Vicky Lee Ng
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Liver Transplantation ◽  
Health Care Providers ◽  
Pediatric Liver Transplantation ◽  
Care Providers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

With improved survival outcomes after pediatric liver transplantation (LT), health-related quality of life (HRQoL) is an important outcome metric. Understanding the elements contributing to HRQoL after LT in children would enable more targeted strategies towards optimizing best outcomes. This qualitative study aimed to explore health care providers (HCP) perceptions about HRQoL after pediatric LT. Thirteen experienced HCP participated in two focus group discussions. Data analysis via a thematic analysis approach revealed 4 major themes: “LT as a facilitator of better HRQoL,” “coping and adapting to LT,” “living with a transplanted liver,” and “the family context.” HCP identified elements that both enhance (improved physical health, peer relationship, and activities of daily living) and challenge (need for immunosuppression, transplant follow-up, and restrictions) the multidimensional domains of HRQoL. HCP perceived LT to be a stressful life-changing event for children and their families. Patients and their parents’ ability to cope and adjust positively to LT was perceived as a key contributor to better HRQoL. HCP perspective highlights the importance of promoting psychosocial support and a family-centered care delivery model towards the overarching goal of optimizing durable outcomes.

scholarly journals Health-related quality of life and psychological correlates in patients listed for liver transplantation

2007 ◽  
Vol 1 (4) ◽  
pp. 437-443 ◽  
Author(s):  
Jolie J. Gutteling ◽  
Robert A. de Man ◽  
Jan J. V. Busschbach ◽  
Anne-Sophie E. Darlington
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Health Related Quality ◽  
Psychological Correlates ◽  
Related Quality ◽  
Health Related

454 Adolescent health related quality of life after liver transplantation

Hepatology ◽  
2003 ◽  
Vol 38 ◽  
pp. 380-380 ◽  
Author(s):  
S SUNDARAM ◽  
K NEIGHBORS ◽  
L AMARUSO ◽  
J SINACORE ◽  
E ALONSO
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Adolescent Health ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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