scholarly journals Patients' roles in governance of learning: Results from a qualitative study of 16 learning healthcare systems

2021 ◽  
Author(s):  
Rachel Grob ◽  
Katharine Gleason ◽  
Paul McLean ◽  
Sarah McGraw ◽  
Mildred Solomon ◽  
...  
2021 ◽  
pp. bmjinnov-2020-000498
Author(s):  
Stephanie Aboueid ◽  
Samantha B Meyer ◽  
James R Wallace ◽  
Shreya Mahajan ◽  
Teeyaa Nur ◽  
...  

ObjectiveSymptom checkers are potentially beneficial tools during pandemics. To increase the use of the platform, perspectives of end users must be gathered. Our objectives were to understand the perspectives and experiences of young adults related to the use of symptom checkers for assessing COVID-19-related symptoms and to identify areas for improvement.MethodsWe conducted semistructured qualitative interviews with 22 young adults (18–34 years of age) at a university in Ontario, Canada. Interviews were audio-recorded, transcribed, and analysed using inductive thematic analysis.ResultsWe identified six main themes related to the decision of using a symptom checker for COVID-19 symptoms: (1) presence of symptoms or a combination of symptoms, (2) knowledge about COVID-19 symptoms, (3) fear of seeking in-person healthcare services, (4) awareness about symptom checkers, (5) paranoia and (6) curiosity. Participants who used symptom checkers shared by governmental entities reported an overall positive experience. Individuals who used non-credible sources reported suboptimal experiences due to lack of perceived credibility. Five main areas for improvement were identified: (1) information about the creators of the platform, (2) explanation of symptoms, (3) personalised experience, (4) language options, and (5) option to get tested.ConclusionsThis study suggests an increased acceptance of symptom checkers due to the perceived risks of infection associated with seeking in-person healthcare services. Symptom checkers have the potential to reduce the burden on healthcare systems and health professionals, especially during pandemics; however, these platforms could be improved to increase use.


Author(s):  
Firoozeh BAIRAMI ◽  
Amirhossein TAKIAN ◽  
Ali AKBARI SARI ◽  
Iraj HARIRCHI ◽  
Minoo ALIPOURI SAKHA

Background: Healthcare systems are always facing increasing public demands to provide better services. Therefore, countries always need more resources and are constantly seeking more fiscal space for health. Freeing up resources through improving efficiency can be a practical option for all settings, particularly countries with low resources. This study aimed to identify feasible options for expanding fiscal space through efficiency within Iran’s healthcare system. Methods: This was a qualitative study. We conducted 29 semi-structured in-depth interviews with stakeholders at various levels of healthcare system in 2017 and 2018. We used mixed method (deductive and inductive) qualitative content analysis. Pre-defined themes extracted from literature and meanwhile new subthemes were developed and added to the initial framework. Results: We identified three main themes that affect the efficiency of healthcare system in Iran: administration, implementation, and monitoring. Problematic administration, inappropriate implementation and lack of good monitoring in healthcare initiatives may lead to inefficiencies and wasting resources. Recognizing these leakages in every healthcare system can free up some resources. Conclusion: Irrespective of their economic development, all countries may, to some extent, face limited resources to address ever-increasing needs in their healthcare systems. While generating new resources is not always possible, enhancing efficiency to expand fiscal space might be a feasible option. Healthcare systems should identify the leakages and respond to wastages with appropriate planning. Getting the most out of current resources is possible through proper administration, good implementation and a well-established monitoring system for healthcare initiatives.


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
C. Bamuya ◽  
J. C. Correia ◽  
E. M. Brady ◽  
D. Beran ◽  
D. Harrington ◽  
...  

Abstract Background Diabetes Self-Management Education and Support (DSMES) programmes are vital for type 2 diabetes mellitus (T2DM) management. However, they are limited in Sub-Saharan Africa (SSA). To address this gap, a DSMES, namedEXTEND was developed in Lilongwe (Malawi) and Maputo (Mozambique). This qualitative study aimed to explore factors that influence the implementation of DSMES in these settings. Methods The Socio-ecological model was applied to explore factors influencing the implementation of DSMES in SSA. Data was analysed using the Framework method and constant comparative techniques. Sixty-six people participated in the study: people with T2DM who participated in the EXTEND programme; healthcare professionals (HCPs), EXTEND educators, EXTEND trainers, and stakeholders. Results Our findings indicate that there is a need to develop an integrated and dedicated diabetes services in SSA healthcare systems, incorporating culturally adapted DSMES and tailored diabetes training to all professions involved in diabetes management. Traditional media and the involvement of community leaders were proposed as important elements to help engage and promote DSMES programmes in local communities. During the design and implementation of DSMES, it is important to consider individual and societal barriers to self-care. Conclusion Findings from this study suggest that multi-faceted factors play a significant role to the implementation of DSMES programmes in LICs. In the future, EXTEND could be incorporated in the development of diabetes training and dedicated diabetes services in SSA healthcare systems, acting as an educational tool for both people with T2DM and HCPs. This project was supported by the Medical Research Council GCRF NCDs Foundation Awards 2016 Development Pathway Funding.


2022 ◽  
Vol 30 (1) ◽  
pp. 30-40
Author(s):  
Malihe Ghiasvand ◽  
Fatemeh Nahidi ◽  
Sedigheh Sedigh Mobarakabadi ◽  
Hamid Sharif Nia ◽  
Hamid Alavi Majd

Background Around 70% of women who give birth vaginally experience perineal injury during childbirth, which may happen spontaneously or as a result of the incision made to facilitate childbirth. There are very few studies on the perceptions of episiotomy recipients about these services. Therefore, investigating these women's perception is crucial for providing appropriate care. Methods This qualitative study examined 20 women from hospitals and health centres who had undergone episiotomy using in-depth semi-structured interviews. Data were analysed using conventional content analysis and the accuracy and rigour of the data were assessed using the Lincoln and Guba criteria. Results The ‘change in perception and behaviour’ theme encompassed one category of negative experiences and views about episiotomy and a second category covering positive views. Conclusions Women's perceptions of episiotomy contained both positive and negative views. Since healthcare systems should support mothers' physical and mental health, it is recommended that health policymakers devise plans to boost factors that lead to positive views and eliminate those contributing to negative experiences and views.


2020 ◽  
Author(s):  
JI YOUN YOO ◽  
Samia Valeria Ozorio Dutra ◽  
Dany Fanfan ◽  
Sarah Sniffen ◽  
Hao Wang ◽  
...  

Abstract Background: In late January, a worldwide crisis known as COVID-19 was declared a Public Health Emergency of International Concern by the WHO. Within only a few weeks, the outbreak took on pandemic proportions, affecting over 100 countries. It was a significant issue to prevent and control COVID-19 on both national and global scales due to the dramatic increase in confirmed cases worldwide. Government guidelines provide a fundamental resource for communities, as they guide citizens on how to protect themselves against COVID-19, however, they also provide critical guidance for policy makers and healthcare professionals on how to take action to decrease the spread of COVID-19. We aimed to identify the differences and similarities between six different countries' (US, China, South Korea, UK, Brazil and Haiti) government-provided community and healthcare system guidelines, and to explore the relationship between guideline issue dates and the prevalence/incidence of COVID-19 cases.Methods: To make these comparisons, this exploratory qualitative study used document analysis of government guidelines issued to the general public and to healthcare professionals. Documents were purposively sampled (N=55) and analyzed using content analysis.Results: The major differences in the evaluation and testing criteria in the guidelines across the six countries centered around the priority of testing for COVID-19 in the general population, which was strongly dependent on each country’s healthcare capacity. However, the most similar guidelines pertained to the clinical signs and symptoms of COVID-19, and methods to prevent its contraction.Conclusion: In the initial stages of the outbreak, certain strategies were universally employed to control the deadly virus’s spread, including quarantining the sick, contact tracing, and social distancing. However, each country dealt with differing healthcare capacities, risks, threats, political and socioeconomic challenges, and distinct healthcare systems and infrastructure. Acknowledging these differences highlights the importance of examining the various countries’ response to the COVID-19 pandemic with a nuanced view, as each of these factors shaped the government guidelines distributed to each country’s communities and healthcare systems.


2020 ◽  
Vol 35 (10) ◽  
pp. 3000-3006
Author(s):  
Jazmine D. Kenny ◽  
Leah S. Karliner ◽  
Karla Kerlikowske ◽  
Celia P. Kaplan ◽  
Ana Fernandez-Lamothe ◽  
...  

2021 ◽  
Author(s):  
Eloise C. Salmon ◽  
Laura G Barr ◽  
Douglas L Hill ◽  
Judy A. Shea ◽  
Sandra Amaral

Pre-transplant evaluation is mandated by Centers for Medicare and Medicaid Services, but there is wide institutional variation in implementation, and the family experience of the process is incompletely understood. Current literature largely focuses on adult transplant recipients. This qualitative study begins to fill the knowledge gap about family experience of the pre-transplant evaluation for children through interviews with caregivers at a large pediatric transplant center. Prominent themes heard from caregivers include (1) the pre-transplant evaluation is overwhelming and emotional, (2) prior experiences and background knowledge frame the evaluation experience, and (3) frustration with communication among teams is common. These findings are relevant to efforts by transplant centers to optimize information delivery, minimize concrete barriers, and address healthcare systems issues.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Ji Youn Yoo ◽  
Samia Valeria Ozorio Dutra ◽  
Dany Fanfan ◽  
Sarah Sniffen ◽  
Hao Wang ◽  
...  

Abstract Background In late January, a worldwide crisis known as COVID-19 was declared a Public Health Emergency of International Concern by the WHO. Within only a few weeks, the outbreak took on pandemic proportions, affecting over 100 countries. It was a significant issue to prevent and control COVID-19 on both national and global scales due to the dramatic increase in confirmed cases worldwide. Government guidelines provide a fundamental resource for communities, as they guide citizens on how to protect themselves against COVID-19, however, they also provide critical guidance for policy makers and healthcare professionals on how to take action to decrease the spread of COVID-19. We aimed to identify the differences and similarities between six different countries’ (US, China, South Korea, UK, Brazil and Haiti) government-provided community and healthcare system guidelines, and to explore the relationship between guideline issue dates and the prevalence/incidence of COVID-19 cases. Methods To make these comparisons, this exploratory qualitative study used document analysis of government guidelines issued to the general public and to healthcare professionals. Documents were purposively sampled (N = 55) and analyzed using content analysis. Results The major differences in the evaluation and testing criteria in the guidelines across the six countries centered around the priority of testing for COVID-19 in the general population, which was strongly dependent on each country’s healthcare capacity. However, the most similar guidelines pertained to the clinical signs and symptoms of COVID-19, and methods to prevent its contraction. Conclusion In the initial stages of the outbreak, certain strategies were universally employed to control the deadly virus’s spread, including quarantining the sick, contact tracing, and social distancing. However, each country dealt with differing healthcare capacities, risks, threats, political and socioeconomic challenges, and distinct healthcare systems and infrastructure. Acknowledging these differences highlights the importance of examining the various countries’ response to the COVID-19 pandemic with a nuanced view, as each of these factors shaped the government guidelines distributed to each country’s communities and healthcare systems.


Author(s):  
Juan Antonio Herrera Tejedor

Oldest old people’s preferences are not taken into account though their importance in healthcare planning. To identify them, we undertook a qualitative study, using in-depth interviews, in a rural area of Toledo, Spain. The majority of participants rate the health care received as good. They favour building a trusting relationship with the physician, choosing to receive enough treatment to avoid the burden of suffering. They express the wish to die at home, but when an acute event occurs they want to be transferred to hospital. Knowing oldest old people health values will help to develop suitable healthcare systems.


2019 ◽  
Author(s):  
◽  
Cesiah Pimentel Melendez ◽  

Problem and Purpose Founding values and principles can help organizations stay focused on fulfilling their mission. This is especially true in faith-based organizations that seek to continue their founding principles as a governing commitment to their core identity. This study identified Adventist healthcare founding principles in Ellen G. White's early health visions and explored how Adventist healthcare leaders perceived these principles as governing principles applied to current Adventist healthcare practices. Conceptual Framework and Research Design Two metaphors and three areas of literature review guided my approach of this qualitative study of Adventist healthcare founding principles. My first metaphor of DNA helped me think about Adventist healthcare as having an original DNA that could guide its growth and identity as it interacted with the environment across time. The second metaphor I chose was metamorphosis, a biological process where the phenotype of an organism can change dramatically but the organism's identity and DNA stay the same. This metaphor applied to organizations would suggest that noticeable change could take place that makes the organization almost unrecognizable from its earlier original form. But even here, there could be evidence of original identity. Both these metaphors framed my study. Three areas of scholarship guided my conceptual framework. The first was sociology of organizations and how they are formed and change over time. I focused on organizational identity. The second area was social science scholarship on the nature and practice of faith-based organizations, especially healthcare institutions. The final area reviewed literature on SDA healthcare identity. My method included document analysis and focus groups. I distilled 12 principles from Ellen White's early visions on health and then secured feedback on my document analysis from Adventist historians. Second, I did focus group interviews with Adventist healthcare leaders and asked them what they thought of these 12 founding governing principles and if and how they applied to Adventist healthcare. Finally, I had two physicians and a Ph.D. scholar check or "triangulate" my process and findings. Results I distilled 12 principles from Ellen White's early visions on health: (a) health education and preventive medicine, (b) healthcare for Seventh-day Adventist (SDA) members, (c) indirect witnessing to non-believers patients, (d) sustain financial and administration model despite attention to all social classes, (e) unwavering biblical principles, (f) wholistic perspective, (f) physical activity as part of treatment, (g) preparing people to be whole before God, (h) prayer combined with treatment and obedience to the laws of health, (i) God-fearing personnel, (j) therapeutic nature interaction, and (k) altruistic and trusting institutional model. I labeled these as Adventist healthcare funding governing principles. I then used three experts' suggestions to make changes. I then asked four focus groups to comment on these 12 principles and explore their application to current Adventist healthcare. Several principles were seen as now universally shared by most healthcare institutions. Those were: (f) wholistic perspective, (a) health education and preventive medicine, and a general respect for the place of spiritual & religious integration in medical practice. Other principles were seen as challenging to apply to modern Adventist healthcare. This included (b) Adventist Healthcare for SDA members, (d) sustaining financial and administration model despite attention to all social classes, (f) Physical activity as part of treatment, (h) prayer combined with treatment and obedience to the laws of health, (i) God-fearing personnel, (j) therapeutic nature interaction and (k) altruistic and trusting institutional model. Finally, a few principles seemed to have limited or different application to modern practices. For example, it was hard to envision how (j) Physical activity as part of treatment would be appropriate as most hospitals have such acute care patients and (g) preparing people to be whole before God. Discussion, Conclusions, and Recommendations I drew five main conclusions. First, I found widespread support for these founding principles present among Adventist healthcare leaders. Second, many of the founding principles of Adventist healthcare were seen by these Adventist leaders as now widely accepted and practiced in many healthcare systems today. Third, there were some principles that Adventist healthcare struggle to apply, even as they believe in the essence of those principles. For example, employing God-fearing personnel. There were some differences and even resistance to a few of these principles as applied to modern Adventist healthcare systems because of the nature of acute care, insurance companies, local regulations, or other factors. For example, getting patients to work in a garden or other labor seemed unlikely given the acute care nature of the modern hospital patient. I recommended to Adventist healthcare leaders on ways to help institutions identify, celebrate, and promote founding governing principles, including ways to adapt to the international and intercultural difference in applying these principles. I also made recommendations for how further research on governing principles could use existing records from founders such as Ellen G. White to expand the analysis of governing principles through other stages in history.


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