scholarly journals Ethical issues in pragmatic trials of “standard-of-care” interventions in learning health care systems

2018 ◽  
Vol 2 (1) ◽  
pp. e10045 ◽  
Author(s):  
Scott Y.H. Kim
10.2196/22269 ◽  
2021 ◽  
Vol 10 (2) ◽  
pp. e22269
Author(s):  
Varsha Chiruvella ◽  
Achuta Kumar Guddati

Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises ethical concerns of sharing patient data with entities that may exploit it for commercial interests and even target vulnerable populations. Recognizing that every breach in the confidentiality of large databases exposes millions of patients to the potential of being exploited is important in framing new rules for governing the sharing of patient data. Similarly, the ethical aspects of data voluntarily and altruistically provided by patients for research, which may be exploited for commercial interests due to patient data sharing between health care entities and third-party companies, need to be addressed. The rise of technologies such as artificial intelligence and the availability of personal data gleaned by data vendor companies place American patients at risk of being exploited both intentionally and inadvertently because of the sharing of their data by their health care provider institutions and third-party entities.


2020 ◽  
Author(s):  
Varsha Chiruvella ◽  
Achuta Kumar Guddati

UNSTRUCTURED Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises ethical concerns of sharing patient data with entities that may exploit it for commercial interests and even target vulnerable populations. Recognizing that every breach in the confidentiality of large databases exposes millions of patients to the potential of being exploited is important in framing new rules for governing the sharing of patient data. Similarly, the ethical aspects of data voluntarily and altruistically provided by patients for research, which may be exploited for commercial interests due to patient data sharing between health care entities and third-party companies, need to be addressed. The rise of technologies such as artificial intelligence and the availability of personal data gleaned by data vendor companies place American patients at risk of being exploited both intentionally and inadvertently because of the sharing of their data by their health care provider institutions and third-party entities.


2020 ◽  
Vol 23 (4) ◽  
pp. 394-396
Author(s):  
Mahesh Ramanan ◽  
◽  
Aidan Burrell ◽  
Andrew Udy ◽  
◽  
...  

To the Editor: The coronavirus disease 2019 (COVID-19) pandemic has resulted in 38 394 169 cases and 1 089 047 deaths worldwide as of 15 October 2020, although to date, Australia has been relatively spared, with only 11 441 cases and 118deaths. Globally, health care systems and intensive care units (ICUs) have been under immense pressure and wide regional variation in mortality has been observed, both between and within countries. It has been suggested that a higher ICU case volume of COVID-19 may be associated with increased mortality, although this has not yet been systematically investigated. Intuitively, a negative volume–outcome association is plausible under pandemic conditions, as a stretched system running above maximal capacity may not be able to deliver its usual standard of care.


2004 ◽  
Vol 171 (4S) ◽  
pp. 42-43 ◽  
Author(s):  
Yair Latan ◽  
David M. Wilhelm ◽  
David A. Duchene ◽  
Margaret S. Pearle

2014 ◽  
Vol 1 (1) ◽  
pp. 41-46
Author(s):  
Nevin Altıntop

What is the perception of Turkish migrants in elderly care? The increasing number of elder migrants within the German and Austrian population is causing the challenge of including them in an adequate (culturally sensitive) way into the German/Austrian health care system. Here I introduce the perception of elder Turkish migrants within the predominant paradigm of intercultural opening of health care in Germany as well as within the concept of diversity management of health care in Vienna (Austria). The qualitative investigation follows a field research in different German and Austrian cities within the last four years and an analysis based on the Grounded Theory Methodology. The meaning of intercultural opening on the one hand, and diversity management on the other hand with respect to elderly care will be evaluated. Whereas the intercultural opening directly demands a reduction of barriers to access institutional elderly care the concept of diversity is hardly successful in the inclusion of migrants into elderly care assistance – concerning both, migrants as care-givers and migrants as care-receivers. Despite the similarities between the health care systems of Germany and Austria there are decisive differences in the perception and inclusion of migrants in elderly care that is largely based on an 'individual care' concept of the responsible institutions. Finally, this investigation demonstrates how elderly care in Germany and Austria prepares to encounter the demand of 'individual care' in a diverse society.


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