scholarly journals Impact of Teduglutide on Quality of Life Among Patients With Short Bowel Syndrome and Intestinal Failure

2019 ◽  
Vol 44 (1) ◽  
pp. 119-128 ◽  
Author(s):  
Kristina Chen ◽  
Fan Mu ◽  
Jipan Xie ◽  
Sneha S. Kelkar ◽  
Clément Olivier ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Intestinal Failure ◽  
Short Bowel

Equative: quality of life in adult patients with short bowel syndrome treated by teduglutide, a french real-world study

2021 ◽  
Vol 46 ◽  
pp. S665
Author(s):  
F. Joly ◽  
D. Quilliot ◽  
C. Chambrier ◽  
S. Schneider ◽  
G. Fotsing ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Real World ◽  
Adult Patients ◽  
Short Bowel

Development and validation of the disease-specific Short Bowel Syndrome-Quality of Life (SBS-QoL™) scale

2013 ◽  
Vol 32 (5) ◽  
pp. 789-796 ◽  
Author(s):  
P. Berghöfer ◽  
K.C. Fragkos ◽  
J.P. Baxter ◽  
A. Forbes ◽  
F. Joly ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Short Bowel ◽  
Development And Validation ◽  
Disease Specific

Improvement in the quality of life using both Bianchi’s procedure and the closure of a jejunostomy in a case with short bowel syndrome

2006 ◽  
Vol 23 (3) ◽  
pp. 285-288 ◽  
Author(s):  
Kouji Masumoto ◽  
Ryouta Souzaki ◽  
Kouji Nagata ◽  
Toru Uesugi ◽  
Yuko Nishimoto ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Short Bowel

PP059-MON DEVELOPMENT AND VALIDATION OF A SHORT BOWEL SYNDROME (SBS) SPECIFIC QUALITY OF LIFE SCALE

2011 ◽  
Vol 6 (1) ◽  
pp. 137
Author(s):  
K. Fragkos ◽  
J.P. Baxter ◽  
A. Forbes ◽  
F. Joly ◽  
H. Heinze ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Short Bowel ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Development And Validation

Quality of life in short-bowel syndrome: Impact of fatigue and gastrointestinal symptoms

2008 ◽  
Vol 43 (9) ◽  
pp. 1057-1065 ◽  
Author(s):  
Evangelos Kalaitzakis ◽  
Eva Carlsson ◽  
Axel Josefsson ◽  
Ingvar Bosaeus
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Gastrointestinal Symptoms ◽  
Short Bowel

Impact of Short Bowel Syndrome on Quality of Life and Family: The Patient's Perspective

2018 ◽  
Vol 29 (02) ◽  
pp. 196-202 ◽  
Author(s):  
Federica Pederiva ◽  
Basem Khalil ◽  
Antonino Morabito ◽  
Sarah Wood
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Emotional Functioning ◽  
Normal Population ◽  
Care Facility ◽  
Measurement Model ◽  
Family Impact ◽  
Term Care ◽  
Short Bowel

Background Short bowel syndrome (SBS) has an impact on children and their families not only physically, but also emotionally, mentally, and socially. This study aimed to evaluate quality of life and family impact in patients with SBS, using the Pediatric Quality of Life Inventory (PedsQL) measurement model. Materials and Methods PedsQL questionnaires were administered to patients with SBS followed at the Pediatric Surgery of Royal Manchester Children's Hospital. The scores were compared between two groups differing in age (children <5 y vs. >5 y) and with known-groups from literature published by Varni et al. Results Forty-three patients were sent the questionnaires, and 30 (70%, 17 < 5 and 13 > 5) responded. Family Impact Module failed to distinguish between families of children younger and older than 5 years of age. In contrast, it distinguished between families with SBS children and the ones with children in a long-term care facility. Healthcare satisfaction was worse in families of children over 5 years regarding information received, inclusion of the family, and communication. When compared with normal population, SBS children scored worse on Generic Core Scales for all domains except for emotional functioning. Conclusion Although advances have been made on the treatment of children with SBS, and improvements have been reached on home PN, this condition is still significantly affecting the quality of life of children and their families. The future quality control of medical care must have greater focus on psychosocial and emotional functioning, aiming for the best possible quality of life.

Quality of life and concerns in patients with short bowel syndrome

2003 ◽  
Vol 22 (5) ◽  
pp. 445-452 ◽  
Author(s):  
E Carlsson ◽  
I Bosaeus ◽  
S Nordgren
Keyword(s):  
Quality Of Life ◽  
Short Bowel Syndrome ◽  
Short Bowel
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