scholarly journals A patient-centered research agenda for the care of the acutely Ill older patient

2015 ◽  
Vol 10 (5) ◽  
pp. 318-327 ◽  
Author(s):  
Heidi L. Wald ◽  
Luci K. Leykum ◽  
Melissa L. P. Mattison ◽  
Eduard E. Vasilevskis ◽  
David O. Meltzer
2010 ◽  
Vol 67 (4) ◽  
pp. 476-484 ◽  
Author(s):  
Meredith B. Rosenthal ◽  
Howard B. Beckman ◽  
Deb Dauser Forrest ◽  
Elbert S. Huang ◽  
Bruce E. Landon ◽  
...  

2014 ◽  
Vol 22 (e1) ◽  
pp. e2-e6 ◽  
Author(s):  
Patti Flatley Brennan ◽  
Rupa Valdez ◽  
Greg Alexander ◽  
Shifali Arora ◽  
Elmer V Bernstam ◽  
...  

Abstract In alignment with a major shift toward patient-centered care as the model for improving care in our health system, informatics is transforming patient–provider relationships and overall care delivery. AMIA's 2013 Health Policy Invitational was focused on examining existing challenges surrounding full engagement of the patient and crafting a research agenda and policy framework encouraging the use of informatics solutions to achieve this goal. The group tackled this challenge from educational, technical, and research perspectives. Recommendations include the need for consumer education regarding rights to data access, the need for consumers to access their health information in real time, and further research on effective methods to engage patients. This paper summarizes the meeting as well as the research agenda and policy recommendations prioritized among the invited experts and stakeholders.


2015 ◽  
Vol 22 (12) ◽  
pp. 1427-1434 ◽  
Author(s):  
Amber K. Sabbatini ◽  
Lisa H. Merck ◽  
Adam T. Froemming ◽  
William Vaughan ◽  
Michael D. Brown ◽  
...  

Medical Care ◽  
2018 ◽  
Vol 56 ◽  
pp. S27-S32 ◽  
Author(s):  
Sarah C. Haynes ◽  
Lindsey Rudov ◽  
Elizabeth Nauman ◽  
Lindsay Hendryx ◽  
Rebekah S.M. Angove ◽  
...  

2010 ◽  
Vol 90 (3) ◽  
pp. 450-460 ◽  
Author(s):  
Ingvild Kjeken ◽  
Connie Ziegler ◽  
Jack Skrolsvik ◽  
Jan Bagge ◽  
Geir Smedslund ◽  
...  

Patient-centered research addresses the research agenda of patients and captures aspects of health and functioning that they consider important. Yet, those who live with a disease or condition have limited influence when it comes to setting the research agenda, and we know little about how they experience being participants in research studies. Furthermore, knowledge is limited concerning factors enhancing or hindering patients' participation in trials and the format that people with rheumatic diseases and their families prefer for dissemination of the results from clinical research. This perspective article describes the research priorities of people with rheumatic diseases in Scandinavia, their experiences and attitudes concerning participation in research projects, and which format for research information they prefer. Based on results from 3 surveys organized by the Scandinavian Rheumatism Associations and on related research literature, the possible implications for future research also are discussed.


Sign in / Sign up

Export Citation Format

Share Document