Transgender patients’ perspectives on their cancer genetic counseling experiences

2021 ◽  
Author(s):  
Lathel Rolle ◽  
Kimberly Zayhowski ◽  
Diane Koeller ◽  
Dee Chiluiza ◽  
Nikkola Carmichael
Keyword(s):  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic

Correlates of Depressive Symptoms Among Women Seeking Cancer Genetic Counseling and Risk Assessment at a High-Risk Cancer Clinic

2006 ◽  
Vol 15 (4) ◽  
pp. 267-276 ◽  
Author(s):  
Molly Middlecamp Kodl ◽  
Judith W. Lee ◽  
Alicia K. Matthews ◽  
Shelly A. Cummings ◽  
Olufunmilayo I. Olopade
Keyword(s):  
Risk Assessment ◽  
Genetic Counseling ◽  
Depressive Symptoms ◽  
High Risk ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
High Risk Cancer ◽  
Cancer Clinic

A Survey of Patients’ Experiences with the Cancer Genetic Counseling Process: Recommendations for Cancer Genetics Programs

2006 ◽  
Vol 15 (6) ◽  
pp. 409-431 ◽  
Author(s):  
Dana T. Kausmeyer ◽  
Eugene J. Lengerich ◽  
Brenda C. Kluhsman ◽  
Dorothy Morrone ◽  
Gregory R. Harper ◽  
...  
Keyword(s):  
Genetic Counseling ◽  
Cancer Genetics ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Counseling Process

scholarly journals ‘We don’t know for sure’: discussion of uncertainty concerning multigene panel testing during initial cancer genetic consultations

2019 ◽  
Vol 19 (1) ◽  
pp. 65-76 ◽  
Author(s):  
Niki M. Medendorp ◽  
Marij A. Hillen ◽  
Pomme E. A. van Maarschalkerweerd ◽  
Cora M. Aalfs ◽  
Margreet G. E. M. Ausems ◽  
...  
Keyword(s):  
Genetic Counseling ◽  
Physician Assistants ◽  
Simulated Patient ◽  
Cancer Genetic Counseling ◽  
Simulated Patients ◽  
Cancer Genetic ◽  
Multiple Cancer ◽  
Panel Testing ◽  
Multigene Panel Testing ◽  
Multigene Panel

AbstractPre-test counseling about multigene panel testing involves many uncertainties. Ideally, counselees are informed about uncertainties in a way that enables them to make an informed decision about panel testing. It is presently unknown whether and how uncertainty is discussed during initial cancer genetic counseling. We therefore investigated whether and how counselors discuss and address uncertainty, and the extent of shared decision-making (SDM), and explored associations between counselors’ communication and their characteristics in consultations on panel testing for cancer. For this purpose, consultations of counselors discussing a multigene panel with a simulated patient were videotaped. Simulated patients represented a counselee who had had multiple cancer types, according to a script. Before and afterwards, counselors completed a survey. Counselors’ uncertainty expressions, initiating and the framing of expressions, and their verbal responses to scripted uncertainties of the simulated patient were coded by two researchers independently. Coding was done according to a pre-developed coding scheme using The Observer XT software for observational analysis. Additionally, the degree of SDM was assessed by two observers. Correlation and regression analyses were performed to assess associations of communicated uncertainties, responses and the extent of SDM, with counselors’ background characteristics. In total, twenty-nine counselors, including clinical geneticists, genetic counselors, physician assistants-in-training, residents and interns, participated of whom working experience varied between 0 and 25 years. Counselors expressed uncertainties mainly regarding scientific topics (94%) and on their own initiative (95%). Most expressions were framed directly (77%), e.g. We don’t know, and were emotionally neutral (59%; without a positive/negative value). Counselors mainly responded to uncertainties of the simulated patient by explicitly referring to the uncertainty (69%), without providing space for further disclosure (66%). More experienced counselors provided less space to further disclose uncertainty (p < 0.02), and clinical geneticists scored lower on SDM compared with other types of counselors (p < 0.03). Our findings that counselors mainly communicate scientific uncertainties and use space-reducing responses imply that the way counselors address counselees’ personal uncertainties and concerns during initial cancer genetic counseling is suboptimal.

scholarly journals Follow-up effects of a tailored pre-counseling website with question prompt in breast cancer genetic counseling

2015 ◽  
Vol 98 (1) ◽  
pp. 69-76 ◽  
Author(s):  
Akke Albada ◽  
Sandra van Dulmen ◽  
Peter Spreeuwenberg ◽  
Margreet G.E.M. Ausems
Keyword(s):  
Breast Cancer ◽  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Question Prompt
Sign in / Sign up

Export Citation Format

Share Document