Rapid genome‐wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences

2020 ◽  
Author(s):  
Caitlin E. Aldridge ◽  
Horacio Osiovich ◽  
Harold (Hal) Siden ◽  
Alison M. Elliott ◽  
◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Parental Experiences ◽  
Genome Wide ◽  
Qualitative Exploration

Systematic review of qualitative studies exploring parental experiences in the Neonatal Intensive Care Unit

2016 ◽  
Vol 25 (19-20) ◽  
pp. 2745-2756 ◽  
Author(s):  
Dua'a Fayiz Al Maghaireh ◽  
Khatijah Lim Abdullah ◽  
Chong Mei Chan ◽  
Chua Yan Piaw ◽  
Mariam Mofleh Al Kawafha
Keyword(s):  
Systematic Review ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Qualitative Studies ◽  
Parental Experiences

Genetic counseling considerations with rapid genome-wide sequencing in a neonatal intensive care unit

2018 ◽  
Vol 28 (2) ◽  
pp. 263-272 ◽  
Author(s):  
Emma E. Smith ◽  
Christèle du Souich ◽  
Nick Dragojlovic ◽  
Alison M. Elliott ◽  
◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Genetic Counseling ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Genome Wide

Parental experiences of family-centred care from admission to discharge in the neonatal intensive care unit

2018 ◽  
Vol 54 (11) ◽  
pp. 1227-1233 ◽  
Author(s):  
Anna Serlachius ◽  
Jessica Hames ◽  
Vanessa Juth ◽  
Dale Garton ◽  
Simon Rowley ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Parental Experiences

scholarly journals Parental experiences in neonatal intensive care unit in Ethiopia: a phenomenological study

2022 ◽  
Vol 54 (1) ◽  
pp. 121-131
Author(s):  
Endalkachew Worku Mengesha ◽  
Desalegne Amare ◽  
Likawunt Samuel Asfaw ◽  
Mulugeta Tesfa ◽  
Mitiku B. Debela ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Phenomenological Study ◽  
Parental Experiences

RAPIDOMICS: rapid genome-wide sequencing in a neonatal intensive care unit—successes and challenges

2019 ◽  
Vol 178 (8) ◽  
pp. 1207-1218 ◽  
Author(s):  
Alison M. Elliott ◽  
Christèle du Souich ◽  
Anna Lehman ◽  
Ilaria Guella ◽  
Daniel M. Evans ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Genome Wide ◽  
Successes And Challenges

The Psychosocial Aspects of Feeding in the Neonatal Intensive Care Unit and Beyond

2019 ◽  
Vol 4 (6) ◽  
pp. 1507-1515
Author(s):  
Lauren L. Madhoun ◽  
Robert Dempster
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Hospital Discharge ◽  
Neonatal Intensive Care ◽  
Oral Feeding ◽  
Medical Attention ◽  
Primary Role ◽  
Speech Language Pathologists ◽  
The Family

Purpose Feeding challenges are common for infants in the neonatal intensive care unit (NICU). While sufficient oral feeding is typically a goal during NICU admission, this can be a long and complicated process for both the infant and the family. Many of the stressors related to feeding persist long after hospital discharge, which results in the parents taking the primary role of navigating the infant's course to ensure continued feeding success. This is in addition to dealing with the psychological impact of having a child requiring increased medical attention and the need to continue to fulfill the demands at home. In this clinical focus article, we examine 3 main areas that impact psychosocial stress among parents with infants in the NICU and following discharge: parenting, feeding, and supports. Implications for speech-language pathologists working with these infants and their families are discussed. A case example is also included to describe the treatment course of an infant and her parents in the NICU and after graduation to demonstrate these points further. Conclusion Speech-language pathologists working with infants in the NICU and following hospital discharge must realize the family context and psychosocial considerations that impact feeding progression. Understanding these factors may improve parental engagement to more effectively tailor treatment approaches to meet the needs of the child and family.

Sign in / Sign up

Export Citation Format

Share Document