Education on cancer risk assessment and genetic counseling to address cancer health disparities among racial/ethnic groups and rural populations: Implementing culturally tailored outreach through community health educators

2020 ◽  
Vol 29 (2) ◽  
pp. 243-246
Author(s):  
Sandra L. San Miguel‐Majors ◽  
Damiya E. Whitaker ◽  
Brian C. Davis ◽  
LeeAnn O. Bailey ◽  
Sanya A. Springfield
2019 ◽  
Vol 29 (3) ◽  
pp. 505-512 ◽  
Author(s):  
Marilyn S. Sommers ◽  
Jamison D. Fargo ◽  
Yadira Regueira ◽  
Kathleen M. Brown ◽  
Barbara L. Beacham ◽  
...  

The Fitzpatrick Skin Phototypes (FSP) were developed to classify skin color and response to ultraviolet radiation. FSP are used clinically to assess risk for sunburn and skin cancer. Our aim was to determine the criterion-related validity of self-reported FSP when compared with skin color and sunburn history, controlling for age, race/ ethnicity, and seasonality/geography. We performed a secondary analysis of data (N=466) from an observational study. The racial/ethnic composition of the sample was 45% White/White Hispanic (WWH), 40% Black/Black Hispanic (BBH), and 15% Other Identities. Outcome measures were self-reported FSP and sunburn history, as well as physiological measures of skin color (L* lightness/darkness, a* redness/greenness, b*yellowness/blueness). Correlation between FSP and L* was -.77 (95% CI -.81, -.73; P<.001). Although 60% of the variance in FSP was accounted for by L* values for the entire sample, only 5% of the variance was accounted for among BBH participants (r=-.23), and up to 30% for WWH/Other Identity participants (r=-.48 and -.52). Mul­tiple regression analysis indicated L* and b* values, sunburn history, and race/ethnicity, but not geography/seasonality or a* values significantly and collectively accounted for 72% of the variance in FSP. While the criterion validity of FSP was established by the strong relationship between L* values and FSP for the entire sample, when exam­ined at the level of individual racial/ethnic subgroups, criterion validity of FSP was not demonstrated. When self-reported FSP are used for clinical skin assessment and sun cancer screening, they provide a restricted range of options for people with darker skin that does not capture variations in their skin color. Inaccuracy of clinical data may lead to unequal treatment or inadequate cancer risk assessment. Ethn Dis. 2019;29(3):505-512. doi:10.18865/ed.29.3.505


Author(s):  
Sara Knapke ◽  
Kristin Zelley ◽  
Kim E. Nichols ◽  
Wendy Kohlmann ◽  
Joshua D. Schiffman

Overview: A substantial proportion of childhood cancers are attributable to an underlying genetic syndrome or inherited susceptibility. Recognition of affected children allows for appropriate cancer risk assessment, genetic counseling, and testing. Identification of individuals who are at increased risk to develop cancers during childhood can guide cancer surveillance and clinical management, which may improve outcomes for both the patient and other at-risk relatives. The information provided through this article will focus on the current complexities involved in the evaluation and management of children with cancer-predisposing genetic conditions and highlight remaining questions for discussion.


2015 ◽  
Vol 11 (4) ◽  
pp. e460-e467 ◽  
Author(s):  
Emily E. Anderson ◽  
Silvia Tejeda ◽  
Kimberly Childers ◽  
Melinda R. Stolley ◽  
Richard B. Warnecke ◽  
...  

Incorporation of US Preventive Services Task Force genetic counseling recommendations as part of primary care is feasible, and warrants further investigation as a strategy for addressing disparities in breast cancer mortality.


2010 ◽  
Vol 8 (SI) ◽  
pp. 101-111 ◽  
Author(s):  
Keola K. Beale

The causes of cancer health disparities amongst Pacific Islanders and other racial groups are complex and multifactorial. Both biologic and non biologic determinants have been identified as causal factors. Racial/ethnic classification can be used as a surrogate for non biologic determinants such as place of geographic origin, socioeconomic status, cultural practices, and diet. Given that non biologic and biologic determinants are not mutually exclusive, using racial/ethnic classification may be hypothesis generating and assist in the identification of biologic determinants such as infections, toxins, and/or environmental exposures that lead to carcinogenesis. This commentary provides several examples of cancer specific biologic determinants that may lead to cancer health disparities. It also discusses specific non biologic determinants of cancer health disparities that must be overcome in order to increase participation of underserved populations in clinical trial research. Taken together, these examples demonstrate the need to further our understanding of the determinants of cancer health disparities that can lead to the enactment of preventive measures and/or targeted therapies.


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