Family storytelling about hereditary cancer: Framing shared understandings of risk

The potential exists to rebuild a more just economy in the wake of COVID-19. By illuminating the gap between what economic institutions promised and the reality billions of people face, this crisis is focusing attention and activism in new ways, particularly at the juncture of race and class. Advocates for racial and economic justice are effectively using this moment to forge new shared understandings of our history and what it will take to build an economy which truly serves human flourishing

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658 An Audit of Frequency of Cancer Genetics Referral in Patients with a Family History of Colorectal Cancer

British Journal of Surgery ◽

10.1093/bjs/znab134.464 ◽

2021 ◽

Vol 108 (Supplement_2) ◽

Author(s):

M Abbakar ◽

T James ◽

P Boxall ◽

M Lim

Keyword(s):

Family History ◽

High Risk ◽

Hereditary Cancer ◽

Risk Category ◽

Average Risk ◽

Insufficient Data ◽

High Risk Patients ◽

Amsterdam Criteria ◽

Family History Questionnaire ◽

Risk Patients

Abstract Introduction Guidelines on the management of hereditary colorectal cancers were updated in 2019. In this study, data from patients within the colonoscopy surveillance programme for hereditary cancer at York Teaching Hospitals Trust were analysed to assess category of risk and appropriateness of referrals to regional geneticists. Method After examination of electronic records and clinical notes, patients were assigned a risk category of average, moderate or high according to the Amsterdam criteria and latest BSG/ACPGBI/UKCGG guidelines. Patients were then assessed to see if a concurrent referral had been made to the regional cancer genetic services. Results There were 228 patients. 72(31.6%) patients were in the average, 81(35.5%) in the moderate and 41(18%) were in the high-risk category. 34 (14.9%) patients with insufficient data and/or assessments were in the indeterminate category. 18 of 72 (25%) patients with average risk were unnecessarily referred to the regional genetics team, while 5/41(12%) of high-risk patients were not. A large proportion of patients with insufficient data (19/34, 55.8%) were rightly or wrongly, referred to the regional genetics team. Conclusions Assessment of hereditary cancer risk is difficult in the absence of good quality information. Risk assessment may be improved with use of a dedicated family history questionnaire/template - this facilitates identification of high-risk patients that benefit most from referral to geneticists.

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Accountability through mutual attunement: How can parliamentary hearings connect the elected and the unelected?

Public Policy and Administration ◽

10.1177/0952076720977606 ◽

2020 ◽

pp. 095207672097760

Author(s):

Andreas Eriksen ◽

Alexander Katsaitis

Keyword(s):

Conceptual Model ◽

European Governance ◽

Accountability Mechanism ◽

Shared Understandings ◽

Working Out

The increased authority delegated to independent agencies raises questions about the conditions of politically accountable governance, and specifically parliament’s role as a representative institution. Focusing on committee hearings as an accountability mechanism, we ask: How can a parliament employ hearings to ensure that the ends pursued by agencies have a democratic foundation? We propose a model of “mutual attunement” where accountability relations presuppose a process of working-out shared understandings of the ends, means and circumstances of policy needs. We test our argument through a case study assessing the interaction between the European Parliament’s Committee on Economic & Monetary Affairs and the European Securities and Markets Authority. Theoretically, we contribute to discussions on agency accountability and European governance, while providing a novel conceptual model and the first analysis of its kind.

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Interdisciplinary conversations in STEM education: can faculty understand each other better than their students do?

International Journal of STEM Education ◽

10.1186/s40594-020-00266-9 ◽

2021 ◽

Vol 8 (1) ◽

Author(s):

Jeffrey M. Rabin ◽

Adam Burgasser ◽

Thomas J. Bussey ◽

John Eggers ◽

Stanley M. Lo ◽

...

Keyword(s):

Cultural Differences ◽

Stem Education ◽

Interdisciplinary Collaboration ◽

Rate Of Change ◽

Theory And Practice ◽

College Mathematics ◽

Instructional Videos ◽

Interdisciplinary Projects ◽

Shared Understandings ◽

Better Than

AbstractRate of change concepts from calculus are presented and applied rather differently in college mathematics, physics, biology, and chemistry classes. This is not simply a matter of pedagogical style but reflects real cultural differences between these disciplines. We describe the efforts of our interdisciplinary collaboration to understand and reconcile these differences as we designed and discussed instructional videos for students. We summarize our conversations about terminology, notation, functions, rates, units, and sign conventions across the disciplines. We present some strategies that enabled us to communicate effectively, resolve confusions, and reach shared understandings. Our work has implications for others involved in collaborative interdisciplinary projects and for STEM educators.In theory, there’s no difference between theory and practice. But in practice, there is.– Benjamin Brewster. Also attributed to Yogi Berra.

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The role of the genetic testing industry in patient education of hereditary cancer: An observational study assessing the quality of pre-test patient education videos

Gynecologic Oncology ◽

10.1016/j.ygyno.2020.07.062 ◽

2020 ◽

Vol 159 (2) ◽

pp. e22-e23

Author(s):

Danielle Collins Greenberg ◽

Daniella Kamara ◽

Zina Tatsugawa ◽

Marlene Mendoza ◽

Elizabeth Pineda ◽

...

Keyword(s):

Genetic Testing ◽

Patient Education ◽

Observational Study ◽

Hereditary Cancer ◽

Test Patient

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