scholarly journals Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients

2021 ◽  
Author(s):  
Lorenzo Montali ◽  
Edoardo Zulato ◽  
Alessandra Frigerio ◽  
Elisa Frangi ◽  
Elisabetta Camussi
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Support Group ◽  
Online Support ◽  
Breast Cancer Patients ◽  
Online Support Group ◽  
Psychosocial Processes

scholarly journals A bibliometric analysis of the research hotspots in the applications of internet searches in breast cancer patients (Preprint)

2018 ◽  
Author(s):  
Mengyao Cui ◽  
Feng Jin ◽  
Zining Jin ◽  
Xinmiao Yu ◽  
Lei Cui
Keyword(s):  
Breast Cancer ◽  
Support Group ◽  
High Frequency ◽  
The Internet ◽  
Online Support ◽  
Breast Cancer Patients ◽  
Online Support Group ◽  
Treatment And Prevention ◽  
Mesh Terms ◽  
Research Hotspots

BACKGROUND Women diagnosed with breast cancer need information and support to cope with their illness. The internet has become a powerful way to disseminate health information. The aim of this study is to investigate the research hotspots in the field of the application of the internet in breast cancer patients for information exchange and dissemination. OBJECTIVE Papers published between 1998 and 2016 with major Medical Subject Headings (MeSH) from related citations were downloaded from the PubMed database. METHODS Terms appearing in more than 10 papers were kept as high frequency MeSH terms. Terms that appeared in more than 10 papers were considered high frequency MeSH terms and were retained. A co-occurrence matrix was built with co-occurrence times between each pair of high frequency MeSH terms. These terms were then clustered into four groups. Papers that fell outside of our initial search timeline (published in 2017-2018) were classified into one of the 4 existing clusters of hotspots to predict the emerging trends of the field. RESULTS A total of 459 MeSH terms appeared 1594 times in 313 citations and 26 MeSH terms presented more than 10 times in 809 citations. We clustered these high frequency MeSH terms into 4 groups. Topics of those 18 new papers include online support group related, diagnosis, treatment and prevention, but showed a significant content expansion of each cluster. CONCLUSIONS A total of 459 MeSH terms appeared 1594 times in 313 citations and 26 MeSH terms presented more than 10 times in 809 citations. We clustered these high frequency MeSH terms into 4 groups. Topics of those 18 new papers include online support group related, diagnosis, treatment and prevention, but showed a significant content expansion of each cluster.

scholarly journals Exploring Unmet Needs from an Online Metastatic Breast Cancer Support Group: A Qualitative Study

Medicina ◽  
2021 ◽  
Vol 57 (7) ◽  
pp. 693
Author(s):  
Aravinthan Kadravello ◽  
Seng-Beng Tan ◽  
Gwo-Fuang Ho ◽  
Ranjit Kaur ◽  
Cheng-Har Yip
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Support Group ◽  
Unmet Needs ◽  
Treatment Options ◽  
Metastatic Breast ◽  
Public Hospitals ◽  
Online Support ◽  
Online Support Group ◽  
The Public

Background and Objective: Despite the increasing treatment options for patients with metastatic breast cancer (MBC), unmet needs remain common, especially in low and middle-income countries where resources are limited and MBC patients face many challenges. They often join support groups to cope with their unmet needs. Currently, many MBC patients connect with each other via online support group in view of the constant availability of support and rapid information exchange. The objective of this study is to determine the unmet needs of women with MBC from an online support group. Material and Methods: Messages in an online support group of twenty-two MBC patients over a period of three years from August 2016 till August 2019 were thematically analyzed. Results: Three themes were generated, (1) unmet information needs (2) unmet financial needs (3) unmet support needs. Women needed information on side effects of treatment, new treatment options and availability of clinical trials. Although Malaysia has universal health care coverage, access to treatment remains a major challenge. When treatment was not available in the public hospitals, or waiting lists were too long, women were forced to seek treatment in private hospitals, incurring financial catastrophe. Insufficient private insurance and inadequate social security payments force many women to consider stopping treatment. Women felt that they were not getting support from their clinicians in the public sector, who were quick to stop active treatment and advise palliation. On the other hand, clinicians in the private sector advise expensive treatment beyond the financial capability of the patients. Women with families also face the challenge of managing their family and household in addition to coping with their illness. Conclusions: There is a need for healthcare professionals, policy makers, and civil society to better address the needs of MBC patients through patient-centered, multidisciplinary and multi-organizational collaboration.

scholarly journals Communicating about Self and Others within an Online Support Group for Women with Breast Cancer and Subsequent Outcomes

2008 ◽  
Vol 13 (7) ◽  
pp. 930-939 ◽  
Author(s):  
Bret R. Shaw ◽  
Jeong Yeob Han ◽  
Robert P. Hawkins ◽  
Fiona M. McTavish ◽  
David H. Gustafson
Keyword(s):  
Breast Cancer ◽  
Support Group ◽  
Online Support ◽  
Online Support Group

Mapping breast cancer survivors’ psychosocial coping along disease trajectory: A language approach

2020 ◽  
pp. 135910532091989
Author(s):  
Meng Chen ◽  
Liang Zhao
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Breast Cancer Survivors ◽  
Stage Iv ◽  
Psychosocial Adaptation ◽  
Breast Cancer Patients ◽  
Online Support Group ◽  
Course Of Illness ◽  
Disease Trajectory ◽  
Language Analysis

This article reports a language analysis of breast cancer patients’ posts in an online support group. Adopting web-scraping techniques, the study analyzed 27,078 online posts contributed by 1443 users along multiple linguistic dimensions to investigate the trajectory of the patients’ psychosocial adaptation of the disease. The findings suggested that breast cancer patients’ emotional experiences and adjustment in the course of illness vary from one stage to another. They reached the peak of emotional expression, struggle and despair, and self-focus at Stage III, whereas wiped out negative emotions and signaled a desire for connections with others at Stage IV.

Anxiety and depression in breast cancer patients before and after participation in a cancer support group

2001 ◽  
Vol 45 (3) ◽  
pp. 195-198 ◽  
Author(s):  
Ali Montazeri ◽  
Soghra Jarvandi ◽  
Shahpar Haghighat ◽  
Mariam Vahdani ◽  
Akram Sajadian ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Support Group ◽  
Anxiety And Depression ◽  
Breast Cancer Patients ◽  
Cancer Support ◽  
Before And After ◽  
Cancer Support Group

scholarly journals Psychological Well-Being of Patients with Breast Cancer: A Descriptive Study

Sainteks ◽  
2020 ◽  
Vol 16 (2) ◽  
Author(s):  
S. Widyaningsih ◽  
A. Istifaraswati
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Support Group ◽  
Healthcare Providers ◽  
Well Being ◽  
Breast Cancer Patients ◽  
Psychological Well Being ◽  
Low Levels ◽  
Relationship Of ◽  
The Relationship

The mental impact of cancer on patients is often severe. Patients who have been recently diagnosed with breast cancer tend to experience depression, emotional stress, disappointment, and even despair which later can damage their psychological well-being. This study aims to describe Psychological Well-being among breast cancer patients.134 breast cancer patients were recruited at the Out Patient Department (OPD) of Tugurejo Hospital Semarang city, Indonesia. The data were collected using Ryff Scale Psychological Well-being (RSPWB) questionnaire. Most of the respondents were middle-aged, married, unemployed and had been diagnosed with early stadium of breast cancer. Results showed approximately half of the total respondents (n=64%, 47.8%) experiencing low levels of psychological well-being over the entire period of the sickness. Among four subscales of psychological well-being, “positive relationship with others” subscale was reported to be very low among those respondents. However, almost two thirds of respondents perceived a higher degree of self-acceptance and life purpose while experiencing the illness. Nurses and healthcare providers need to be aware of the importance of counseling service and family/patients support group to improve the relationship of patients with others.Keywords: psychological well-being, breast cancer

scholarly journals Breast Cancer Support Group at Ocean Road Cancer Institute in Dar es Salaam

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 178s-178s
Author(s):  
S. Nyagabona ◽  
F. Rubagumya ◽  
A. Longombe ◽  
A. Manirakiza ◽  
T. Maniragaba ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Cancer Patients ◽  
Support Group ◽  
Breast Cancer Survivors ◽  
Psychosocial Support ◽  
Cancer Education ◽  
Developed Countries ◽  
Breast Cancer Patients ◽  
Cancer Support

Background and context: Breast cancer is a common type of cancer among women worldwide, with about 2 million new cases diagnosed in the yearly. It is the second common cancer and leading cause of cancer mortality among women in Tanzania, after cervical cancer. More than 70% of breast cancer patients in developed countries are diagnosed at early stages, whereas in low and middle-income countries, only 20%–60% of patients are diagnosed early. Physician in developed countries consults on average 15-20 breast cancer patients daily, while in developing countries the number triples. This high load does not allow a treating physician to spend ample time with patients explaining hence leaving patients not informed about their diagnosis, side effects of treatments and even living with the physical, emotional and psychological challenges of their disease. Residents at the Ocean Road Cancer Institute (ORCI), initiated a patient support group targeting breast cancer patients for feasibility. Aim: Provide forum for patients with same diagnosis to share common challenges Provide peer emotional, psychosocial support and cancer education Organize activities that will help to spread awareness to the community Initiate projects to improve socioeconomic status of breast cancer survivors in Tanzania Strategy/Tactics: Involved the ORCI administration from the beginning Involved the academic and research unit of ORCI Residents prepared session curriculum and teaching materials Sessions took place once a month Sessions were two hours long divided into three components, where the first is introduction of participants, then survivors led discussions or lectures prepared by an expert in the topic and lastly closing remarks by a physician Breakfast was provided Program/Policy process: Open membership for all breast cancer patients Physician lead face to face peer discussions Institutional acknowledgment of the support group Provision of primary registry of patients for follow-up Provision of a link to other social organizations Outcomes: Increase knowledge of cancer in general and breast cancer in particular A total of seven sessions were held to date For each session, participation ranged from 30-50 breast cancer survivors, and on average attendance was 4 sessions out of 7 Topics covered over a period of seven months included Coping with a cancer diagnosis and treatment Living with cancer and its changes to daily life Exercise Nutrition Breast cancer general knowledge Collaboration with other stake holders including IST secondary school students who initiated breast prosthesis knitting club What was learned: A need to reach out and give psycho-social support to ORCI patients Through education we can improve treatment adherence Possible partners are available if we reach out Exist a need to address misconceptions in the community so as to avoid stigma to patients.

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