scholarly journals Hearing and vision health for people with dementia in residential long term care: Knowledge, attitudes and practice in England, South Korea, India, Greece, Indonesia and Australia

2021 ◽  
Author(s):  
Piers Dawes ◽  
Iracema Leroi ◽  
Nisha Chauhan ◽  
Woojae Han ◽  
Vijaykumar Harbishettar ◽  
...  
Keyword(s):  
South Korea ◽  
Long Term Care ◽  
Term Care ◽  
People With Dementia ◽  
Residential Long Term Care

Separate and Unequal: A Time to Reimagine Dementia

2021 ◽  
pp. 1-5
Author(s):  
Pia Kontos ◽  
Mary L. Radnofsky ◽  
Phyllis Fehr ◽  
Mike R. Belleville ◽  
Frances Bottenberg ◽  
...  
Keyword(s):  
Long Term Care ◽  
Care Homes ◽  
Centralized Control ◽  
Term Care ◽  
The Arts ◽  
People With Dementia ◽  
Health And Social Care ◽  
Separate And Unequal ◽  
Residential Long Term Care

The rapid emergence of COVID-19 has had far-reaching effects across all sectors of health and social care, but none more so than for residential long-term care homes. Mortality rates of older people with dementia in residential long-term care homes have been exponentially higher than the general public. Morbidity rates are also higher in these homes with the effects of government-imposed COVID-19 public health directives (e.g., strict social distancing), which have led most residential long-term care homes to adopt strict “no visitor” and lockdown policies out of concern for their residents’ physical safety. This tragic toll of the COVID-19 pandemic highlights profound stigma-related inequities. Societal assumptions that people living with dementia have no purpose or meaning and perpetuate a deep and pernicious fear of, and disregard for, persons with dementia. This has enabled discriminatory practices such as segregation and confinement to residential long-term care settings that are sorely understaffed and lack a supportive, relational, and enriching environment. With a sense of moral urgency to address this crisis, we forged alliances across the globe to form “Reimagining Dementia: A Creative Coalition for Justice. ” We are committed to shifting the culture of dementia care from centralized control, safety, isolation, and punitive interventions to a culture of inclusion, creativity, justice, and respect. Drawing on the emancipatory power of the imagination with the arts (e.g., theatre, improvisation, music), and grounded in authentic partnerships with persons living with dementia, we aim to advance this culture shift through education, advocacy, and innovation at every level of society.

scholarly journals Evidence for Publicly Reported Quality Indicators in Residential Long-Term Care: A Systematic Review

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 181-181
Author(s):  
Franziska Zúñiga ◽  
Magdalena Osinska ◽  
Franziska Zuniga
Keyword(s):  
New Zealand ◽  
Quality Indicators ◽  
Long Term Care ◽  
Grey Literature ◽  
Public Reporting ◽  
Assessment Instrument ◽  
Term Care ◽  
Data Set ◽  
Residential Long Term Care

Abstract Quality indicators (QIs) are used internationally to measure, compare and improve quality in residential long-term care. Public reporting of such indicators allows transparency and motivates local quality improvement initiatives. However, little is known about the quality of QIs. In a systematic literature review, we assessed which countries publicly report health-related QIs, whether stakeholders were involved in their development and the evidence concerning their validity and reliability. Most information was found in grey literature, with nine countries (USA, Canada, Australia, New Zealand and five countries in Europe) publicly reporting a total of 66 QIs in areas like mobility, falls, pressure ulcers, continence, pain, weight loss, and physical restraint. While USA, Canada and New Zealand work with QIs from the Resident Assessment Instrument – Minimal Data Set (RAI-MDS), the other countries developed their own QIs. All countries involved stakeholders in some phase of the QI development. However, we only found reports from Canada and Australia on both, the criteria judged (e.g. relevance, influenceability), and the results of structured stakeholder surveys. Interrater reliability was measured for some RAI QIs and for those used in Germany, showing overall good Kappa values (>0.6) except for QIs concerning mobility, falls and urinary tract infection. Validity measures were only found for RAI QIs and were mostly moderate. Although a number of QIs are publicly reported and used for comparison and policy decisions, available evidence is still limited. We need broader and accessible evidence for a responsible use of QIs in public reporting.

Quality in long-term care homes for people with dementia: an assessment of specialist provision

2006 ◽  
Vol 26 (4) ◽  
pp. 649-668 ◽  
Author(s):  
SIOBHAN REILLY ◽  
MICHELE ABENDSTERN ◽  
JANE HUGHES ◽  
DAVID CHALLIS ◽  
DAN VENABLES ◽  
...  
Keyword(s):  
Social Services ◽  
Research Evidence ◽  
Long Term Care ◽  
Term Care ◽  
North West ◽  
People With Dementia ◽  
National Service Framework ◽  
Specialist Services ◽  
Care Regimes

There has been debate for some years as to whether the best model of care for people with dementia emphasises specialist facilities or integrated service provision. Although the United Kingdom National Service Framework for Older People recommended that local authority social services departments encourage the development of specialist residential care for people with dementia, uncertainty continues as to the benefits of particular care regimes, partly because research evidence is limited. This paper examines a large number of ‘performance measures’ from long-term care facilities in North West England that have residents with dementia. Of the 287 in the survey, 56 per cent described themselves as specialist services for elderly people with mental ill-health problems (known familiarly as ‘EMI homes’). It was envisaged that EMI homes would score higher than non-EMI homes on several measures of service quality for people with dementia that were developed from research evidence and policy documents. The analysis, however, found that EMI homes performed better than non-EMI homes on only a few measures. While both home types achieved good results on some standards, on others both performed poorly. Overall, EMI and non-EMI homes offered a similar service.

Challenges in Research and Practice in Residential Long-Term Care

2016 ◽  
Vol 49 (1) ◽  
pp. 3-5 ◽  
Author(s):  
Mieke Deschodt ◽  
Franziska Zúñiga ◽  
Nathalie I.H. Wellens
Keyword(s):  
Long Term Care ◽  
Term Care ◽  
Research And Practice ◽  
Residential Long Term Care

scholarly journals Linguistic validation of the Alberta Context Tool and two measures of research use, for German residential long term care

2014 ◽  
Vol 7 (1) ◽  
Author(s):  
Matthias Hoben ◽  
Marion Bär ◽  
Cornelia Mahler ◽  
Sarah Berger ◽  
Janet E Squires ◽  
...  
Keyword(s):  
Long Term Care ◽  
Research Use ◽  
Term Care ◽  
Linguistic Validation ◽  
Alberta Context Tool ◽  
Two Measures ◽  
Residential Long Term Care
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