‘Rydym Eisiau Gwybod’-the dementia diagnosis disclosure preferences of people in North Wales

2014 ◽  
Vol 30 (1) ◽  
pp. 108-110
Author(s):  
Sean Page ◽  
Ian Davies-Abbott ◽  
Sanjay Ingley ◽  
Penny Bee
Keyword(s):  
Dementia Diagnosis ◽  
Diagnosis Disclosure ◽  
North Wales ◽  
Disclosure Preferences

scholarly journals The Experiences of Family Caregivers in Response to a Dementia Diagnosis Disclosure

2021 ◽  
Author(s):  
Miao-Chuan Chen ◽  
Hung-Ru Lin
Keyword(s):  
Family Caregivers ◽  
Comparative Method ◽  
Medical Attention ◽  
Theory Approach ◽  
Dementia Diagnosis ◽  
Care Needs ◽  
Diagnosis Disclosure ◽  
Care Plans ◽  
Living Well ◽  
Diagnostic Disclosure

Abstract Background: Dementia is a serious disease that can lead to disability because it impacts the individual’s memory, cognition, behavior, and capacity to perform activities of daily living. While most people prefer to receive a full diagnostic disclosure, the actual care requirements of family caregivers, based on their perspectives, are often unknown. The primary aim of this study was to explore the experiences of family caregivers in response to a dementia diagnosis disclosure and analyze the care needs of caregivers.Methods: A qualitative study conducted in accordance with COREQ guidelines. The grounded theory approach was undertaken in 20 family caregivers of patients with dementia, who were selected using purposive sampling. Data were analysed using the constant comparative method.Results: Diagnostic disclosure: Start the long road of care challenges was identified as the core category of this study, which was defined as describing the experiences of family caregivers of patients with dementia after first being informed of the patients’ diagnosis, which activates their willpower to progress against the disease. Five major categories describing the experiences of family caregivers following a dementia diagnosis was developed: ‘deciding to seek medical attention,’ ‘the moment of disclosure,’ ‘conveying information,’ ‘maintaining the patients’ functioning,’ and ‘receiving support and living well with dementia.’ Subcategories within each major category also emerged.Conclusions: Clear diagnostic disclosure is important for ensuring that positive developments can occur in response to disclosure. Healthcare professionals must develop strategies to prevent disclosure from triggering overreactive emotions from patients with cognitive impairments, assist them in understanding their illness in a tactful manner, and ensure that they understand how to cooperate in any subsequent care plans.

Cancer diagnosis disclosure preferences of family caregivers of cancer patients in Egypt

2016 ◽  
Vol 26 (11) ◽  
pp. 1758-1762 ◽  
Author(s):  
Samy A. Alsirafy ◽  
Shady S. Abdel-Kareem ◽  
Noha Y. Ibrahim ◽  
Mohamed A. Abolkasem ◽  
Dina E. Farag
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Cancer Diagnosis ◽  
Diagnosis Disclosure ◽  
Disclosure Preferences

P1-428: Dementia diagnosis disclosure: Results of patient and caregiver perspectives

2006 ◽  
Vol 2 ◽  
pp. S223-S223
Author(s):  
Anna M. Byszewski ◽  
Frank Molnar ◽  
Faranek Aminzadeh ◽  
Marg Eisner
Keyword(s):  
Dementia Diagnosis ◽  
Diagnosis Disclosure

Dementia Diagnosis Disclosure

2007 ◽  
Vol 21 (2) ◽  
pp. 107-114 ◽  
Author(s):  
Anna M. Byszewski ◽  
Frank J. Molnar ◽  
Faranak Aminzadeh ◽  
Marg Eisner ◽  
Fauzia Gardezi ◽  
...  
Keyword(s):  
Dementia Diagnosis ◽  
Diagnosis Disclosure

A Brave New World for Dementia Diagnosis

PsycCRITIQUES ◽  
2007 ◽  
Vol 52 (35) ◽  
Author(s):  
F. Richard Ferraro
Keyword(s):  
New World ◽  
Dementia Diagnosis ◽  
Brave New World
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