Kin relationship of caregivers and people with dementia: stress and response to intervention

2011 ◽  
Vol 27 (1) ◽  
pp. 59-66 ◽  
Author(s):  
Kyungmin Kim ◽  
Steven H. Zarit ◽  
Elia E. Femia ◽  
Jyoti Savla
Keyword(s):  
Response To Intervention ◽  
People With Dementia ◽  
Kin Relationship ◽  
Relationship Of

scholarly journals TRATAMIENTO DE LA FRAGILIDAD Y APATÍA A TRAVÉS DE ACTIVIDADES PSICOMOTRICES EN LA ENFERMEDAD DE ALZHEIMER

2016 ◽  
Vol 1 (2) ◽  
pp. 103
Author(s):  
Claudia Guillen-Betancort ◽  
Guillermo Da Silva-Domingo ◽  
Josefa González Santos ◽  
Raquel De la Fuente-Anuncibay ◽  
Álvaro Da Silva González ◽  
...  
Keyword(s):  
Longitudinal Study ◽  
Occupational Therapy ◽  
Elderly People ◽  
Disease Type ◽  
Initial Assessment ◽  
Spearman Correlation ◽  
Vital Functions ◽  
People With Dementia ◽  
Relationship Of ◽  
Therapy Treatment

Abstract.Objective: To implement an Occupational Therapy treatment in elderly people with dementia and frailtyMethod: A longitudinal study of a sample of 23 users, 14 women and 9 men aged between 71 and 92 is performed, the average age 84.66 years, users of a residence, presenting frailty and dementia. Carried out an initial assessment and final tests with Short Physical Performance Battery (SPPB) and Dementia Apathy Interview and Rating (DAIR), participants attend occupational therapy sessions.Statistical analysis: it was performed nonparametric Wilcoxon, Spearman correlation and Mann Whitney U test.Results: We observed that the levels of fragility do not improve, there is no relationship of age with frailty, the level of apathy does not decrease with the intervention, there is no difference in the score of apathy or fragility by sex.Conclusions: the results indicate a maintenance of vital functions on both scales, which can be considered beneficial when dealing with degenerative processes.Keywords: fragility, apathy, dementia of Alzheimer’s disease type, psychomotor activities.Resumen.Objetivo: Implementar un tratamiento de Terapia Ocupacional en personas mayores con demencia y fragilidadMétodo: Se realiza un estudio longitudinal sobre una muestra de 23 usuarios, 14 mujeres y 9 hombres con edades comprendidas entre 71 y 92, siendo la edad media 84.66 años, usuarios de una residencia, que presentan fragilidad y demencia. Se lleva a cabo una evaluación inicial y otra final con las pruebas Batería Corta del Desempeño Físico (SPPB) y Dementia Apathy Interview and Rating (DAIR), los participantes asisten a sesiones de Terapia Ocupacional.Análisis estadístico: se llevan a cabo pruebas no paramétricas de Wilcoxon, Correlación de Spearman y U de Mann Whitney.Resultados: se observa que los niveles de fragilidad no mejoran, que no hay relación de la edad con la fragilidad, el nivel de apatía no disminuye con la intervención, no existen diferencias en la puntuación de apatía ni fragilidad según el sexo.Conclusiones. los resultados indican un mantenimiento de las funciones vitales en ambas escalas, lo que se puede considerar beneficioso al tratarse de procesos degenerativos.Palabras clave: fragilidad, apatía, demencia tipo Alzhéimer, actividades psicomotrices.

The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review

2009 ◽  
Vol 22 (1) ◽  
pp. 43-55 ◽  
Author(s):  
Catherine Quinn ◽  
Linda Clare ◽  
Robert T Woods
Keyword(s):  
Systematic Review ◽  
Positive Impact ◽  
Empirical Studies ◽  
Care Recipient ◽  
Cultural Norms ◽  
Dementia Caregiving ◽  
People With Dementia ◽  
Two Factors ◽  
Kin Relationship ◽  
The Impact

ABSTRACTBackground: The majority of people in the early and middle stages of dementia are cared for at home by non-paid caregivers, the majority of whom will be family members. Two factors which could have an impact on the quality of care provided to the care-recipient are the caregiver's motivations for providing care and the meaning s/he finds in caregiving. The aim of this review is to explore the potential impact of both meaning and motivation on the wellbeing of caregivers of people with dementia. The review also explores individual differences in motivations to provide care.Methods: This was a systematic review of peer-reviewed empirical studies exploring motivations and meanings in informal caregivers of people with dementia. Four studies were identified which examined the caregiver's motivations to provide care. Six studies were identified which examined the meaning that caregivers found in dementia caregiving.Results: Caregivers' wellbeing could be influenced by the nature of their motivations to care. In addition, cultural norms and caregivers’ kin-relationship to the care-recipient impacted on motivations to provide care. Finding meaning had a positive impact on caregiver wellbeing.Conclusions: The limited evidence currently available indicates that both the caregiver's motivations to provide care and the meaning s/he finds in caregiving can have implications for the caregiver's wellbeing. More research is needed to explore the role of motivations and meaning in dementia caregiving.

Identity, mood, and quality of life in people with early-stage dementia

2012 ◽  
Vol 24 (8) ◽  
pp. 1306-1315 ◽  
Author(s):  
Lisa S. Caddell ◽  
Linda Clare
Keyword(s):  
Quality Of Life ◽  
Positive Impact ◽  
Early Stage ◽  
Well Being ◽  
Cross Sectional ◽  
Early Stages ◽  
The People ◽  
People With Dementia ◽  
Relationship Of

ABSTRACTBackground: There is little empirical research regarding the relationships between identity and well-being in people with dementia. The aim of the study was to explore the relationship of identity with mood and quality of life (QoL) in the people in the early stages of dementia.Method: This was a cross-sectional questionnaire-based study. Fifty people in the early stages of dementia completed measures pertaining to different aspects of identity, mood, and QoL. Multiple regression analyses were carried out to determine whether it was possible to predict any of the variance in mood and QoL from aspects of identity.Results: It was possible to predict 12.8% of the variance in anxiety, 23.4% of the variance in depression, and 25.1% of the variance in QoL from different aspects of identity. Predictors varied for each dependent variable.Conclusions: Aspects of identity predict a modest proportion of the variance in anxiety, depression, and QoL. This suggests that supporting identity in people with dementia who are experiencing difficulties in this regard might have a positive impact on mood and QoL. However, the majority of the variance in mood and QoL must be accounted for by other variables.

scholarly journals Relational care and co-operative endeavour – Reshaping dementia care through participatory secondary data analysis

Dementia ◽  
2018 ◽  
Vol 19 (4) ◽  
pp. 1151-1172 ◽  
Author(s):  
Charlotte L Clarke ◽  
Jane Wilcockson ◽  
Julie Watson ◽  
Heather Wilkinson ◽  
Sarah Keyes ◽  
...  
Keyword(s):  
Data Analysis ◽  
Social Inclusion ◽  
Ethic Of Care ◽  
Cultural Theory ◽  
Secondary Data ◽  
Secondary Data Analysis ◽  
People With Dementia ◽  
Operative Care ◽  
Relationship Of ◽  
Relational Care

Dementia is emerging from the shadows of societal exclusion and stigma. The engagement within society for people who are marginalised is co-constructed through the everyday practices that take place between them and those around them. However, this is inherently political, positioning people as active and activist in the relationship of their lives with their communities. The research aimed to interrogate an existing qualitative dataset in partnership with people living with dementia to inform the development of a way of working with people with dementia that is empowering. In this qualitative secondary data analysis project, we (1) analysed data through two theoretical lenses: Douglas’ cultural theory of risk and Tronto’s Ethic of Care, and (2) co-analysed the data together with people living with dementia during 16 workshops. The design involved cycles of presenting, interpreting, representing and reinterpreting the data and findings between multiple stakeholders. We identified a granular understanding of the way relationships change for people with dementia and how subtle factors and nuanced behaviour contribute to social exclusion, or support social inclusion. The results support relational care through the co-operative endeavour (of co-operative communication, co-operative action and co-operative care) in promoting the inclusion of people living with dementia.

scholarly journals 454 - Quality of Life: People with Dementia and Their Caregiver in Indonesia

2020 ◽  
Vol 32 (S1) ◽  
pp. 174-174
Author(s):  
Martina Wiwie Setiawan Nasrun ◽  
Petrin Redayani ◽  
Profitasari Kusumaningrum ◽  
Hasya Layalia Lahino
Keyword(s):  
Quality Of Life ◽  
Strong Correlation ◽  
Study Objective ◽  
People With Dementia ◽  
Binary Correlation ◽  
Guilty Feeling ◽  
Severity Of Dementia ◽  
Relationship Of ◽  
The Relationship

AbstractBackground:As a psychological being, quality of life is one of the most important part to human. Many things could affect one’s quality of life, in elderly, Dementia is one of them. In 2013 approximately there were 960.000 people with dementia (PWD) in Indonesia. Caregiver who take care of PWDs’ daily activity have an important role and maybe prone to stress, guilty feeling, anger and sad due to hardship of caregiving the PWD. Therefore caregivers’ quality of life is substantial as PWDs’ quality of life.Aims:This study objective was to know the relationship of quality of life people with dementia and their caregiver in Indonesia.Methods:A descriptive-analytic study was conducted in RSUPN Dr. Ciptomangunkusumo Hospital Jakarta. Eighty four subjects were participated (42 PWD and 42 caregivers). PWD subjects were interviewed using questionnaires EQ-5D and severity of dementia measured using MMSE. Meanwhile caregivers’ QOL was measured using WHOQOL-BREF. Data was analyzed using binary correlation between PWD and Caregivers’ quality of life.Results:There was no correlation of PWD physical health and caregivers’ quality of life. However there was strong correlation between quality of health PWD and caregivers’QOL notably in environmental domain (r = 0.839). And there were also a strong correlation between PWD severity of dementia and caregiver’s QOL inphysical domain (r = 0.946). Some of caregivers’ factor influencing quality of life were age (r = 0.805), duration of caregiving each day (r = 0.362) and experience of caregiving (r = 0.927)Conclusion:Study found that the quality of health PWD had a strong correlation with caregiver’s QOL specifically in environmental domain.Internal factors related to caregiversQOL were age, duration of caregiving each day and experience of caregiving. Future study should be focused on objective measurement of quantify health quality.These findings suggest that caregivers’ quality of life also an essential part in managing dementia.

scholarly journals Qualitative Meta-synthesis of Nurses' Caring Experience for People with Dementia

2021 ◽  
Vol 28 (3) ◽  
pp. 372-383
Author(s):  
Eun Young Kim ◽  
Sung Ok Chang
Keyword(s):  
Coping Strategies ◽  
Web Of Science ◽  
Daily Life ◽  
Qualitative Studies ◽  
National Assembly ◽  
The People ◽  
People With Dementia ◽  
Relationship Of

Purpose: The purpose of this study was to synthesize and integrate the results of qualitative studies on nurses' experience caring for people with dementia.Methods: We followed Noblit and Hare’s seven step of meta-ethnography to synthesize qualitative studies. Six databases (PubMed, Web of Science, EMBASE, RISS, National Assembly Library, KCI) were used to search for literatures that explored the nurses’ experience of caring for people with dementia. Based on the criteria, nine studies were included for the synthesis.Results: Five themes and ten sub-themes were identified: “Knowing the diversity of dementia”, “Building a relationship of trust”, “Finding the value in life”, “Willingness to overcome external obstacles”, “Establishment of nursing strategy to maintain routine of people with dementia”. The nurses considered their own life through the life of the people with dementia, and tried to establish a nursing strategy to maintain daily life for these people.Conclusion: This study provides a deeper understanding of nurses' caring experiences for people with dementia, and can be helpful in establishing various coping strategies so that nurses can provide efficient caring for these patients.

scholarly journals Resilience, Emotional Intelligence, and Occupational Performance in Family Members Who Are the Caretakers of Patients with Dementia in Spain: A Cross-Sectional, Analytical, and Descriptive Study

2021 ◽  
Vol 10 (18) ◽  
pp. 4262
Author(s):  
María Nieves Gómez-Trinidad ◽  
Carlos Alexis Chimpén-López ◽  
Laura Rodríguez-Santos ◽  
Manuel Alfredo Moral ◽  
Juan Rodríguez-Mansilla
Keyword(s):  
Emotional Intelligence ◽  
Family Caregivers ◽  
Functional Performance ◽  
Leisure Activities ◽  
Self Care ◽  
Occupational Performance ◽  
Family Dynamic ◽  
Cross Sectional ◽  
People With Dementia ◽  
Relationship Of

Background: The concern in the scientific community for the study of people with dementia and their families is comprehensible, especially the importance of knowing the effects that caring for the patient has on their family dynamic, paying special attention to the main caregiver. The objective of this study was to analyze the relationship of resilience and emotional intelligence with functional performance in the main caregivers of people with dementia in Spain according to the phase of the disease. Methods: A cross-sectional, descriptive, and analytical study was carried out. A total of 144 primary family caregivers of patients with dementia in Spain were included in the study. The following variables were measured: sociodemographic, psychosocial, and occupational, as well as resilience and emotional intelligence. Results: The caregivers obtained a low moderate resilience (mean = 64.01 ± 14.5), an emotional intelligence bordering between moderate and high (mean = 78.48 ± 14.82), and a 61.8% self-care categorized as somewhat and quite a bit. The presence of higher levels of resilience in family caregivers of people with dementia were positively related to the time spent on self-care (r = 0.227; p = 0.033) and leisure (r = 0.262; p = 0.014), especially in the moderate phase of the disease, while in the severe phase, this relationship appeared with productivity (r = 0.355; p = 0.034). The higher levels of emotional intelligence were positively related to a greater time dedicated to self-care (r = 0.233, p = 0.005), as well as the data observed in the moderate and severe phase (r = 0.214; p = 0.046 and r = 0.398; p = 0.016 respectively). Conclusions: The primary caregivers of relatives with dementia who have higher levels of resilience and emotional intelligence spend more time on self-care and leisure activities, especially in the moderate phase of the disease.

“Patience, please”

2016 ◽  
Vol 4 (1) ◽  
pp. 90-113
Author(s):  
Christine Wyles
Keyword(s):  
Direct Observation ◽  
Dementia Care ◽  
Disruptive Behaviour ◽  
Participatory Action ◽  
People With Dementia ◽  
Antecedents And Consequences ◽  
The Individual ◽  
Relationship Of ◽  
Challenging Behaviours ◽  
The Relationship

A significant number of people with dementia show challenging behaviours; one of the most challenging is vocally disruptive behaviour (VDB). VDB may be difficult to manage in all settings but particularly in rest homes and private dementia care hospitals. In a 2011 study direct observation of VDB was used to analyse the incidence, content of and response to VDB in two private New Zealand residential dementia care hospitals. Examples of VDB from both hospitals are discussed to illustrate the nature of VDB, both purposive and non-purposive. The relationship of the antecedents and consequences to the VDB are highlighted. Possible interventions to reduce VDB are reviewed. This challenging behaviour is highly variable and case specific. Caregivers would benefit from specific training to equip themselves with a range of interventions to allow for the individual needs of residents and the changing nature of the behaviour. More studies that use direct observation and participatory action research would enhance the current understanding of VDB and how to effectively manage it.

The relationship of the scleractinian corals to the rugose corals

Paleobiology ◽  
1980 ◽  
Vol 6 (02) ◽  
pp. 146-160 ◽  
Author(s):  
William A. Oliver
Keyword(s):  
Critical Points ◽  
Scleractinian Corals ◽  
Convincing Evidence ◽  
Early Triassic ◽  
Rugose Corals ◽  
History Of ◽  
The Subject ◽  
Relationship Of ◽  
The Relationship ◽  
Biologic Factors

The Mesozoic-Cenozoic coral Order Scleractinia has been suggested to have originated or evolved (1) by direct descent from the Paleozoic Order Rugosa or (2) by the development of a skeleton in members of one of the anemone groups that probably have existed throughout Phanerozoic time. In spite of much work on the subject, advocates of the direct descent hypothesis have failed to find convincing evidence of this relationship. Critical points are:(1) Rugosan septal insertion is serial; Scleractinian insertion is cyclic; no intermediate stages have been demonstrated. Apparent intermediates are Scleractinia having bilateral cyclic insertion or teratological Rugosa.(2) There is convincing evidence that the skeletons of many Rugosa were calcitic and none are known to be or to have been aragonitic. In contrast, the skeletons of all living Scleractinia are aragonitic and there is evidence that fossil Scleractinia were aragonitic also. The mineralogic difference is almost certainly due to intrinsic biologic factors.(3) No early Triassic corals of either group are known. This fact is not compelling (by itself) but is important in connection with points 1 and 2, because, given direct descent, both changes took place during this only stage in the history of the two groups in which there are no known corals.

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