scholarly journals Different pathways, same goals: A large‐scale qualitative study of autistic and non‐autistic patient‐generated definitions of recovery from an eating disorder

2021 ◽  
Author(s):  
Felicity Sedgewick ◽  
Jenni Leppanen ◽  
Amelia Austin ◽  
Kate Tchanturia
Keyword(s):  
Eating Disorder ◽  
Qualitative Study ◽  
Large Scale ◽  
Autistic Patient

scholarly journals A qualitative study on the multi-level process of resilience development for adults recovering from eating disorders

2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Katie Grogan ◽  
Hannah O’Daly ◽  
Jessica Bramham ◽  
Mary Scriven ◽  
Caroline Maher ◽  
...  
Keyword(s):  
Eating Disorders ◽  
Eating Disorder ◽  
Qualitative Study ◽  
Significant Proportion ◽  
Well Being ◽  
Fundamental Aspect ◽  
Increased Risk ◽  
Resilience Process ◽  
Multi Level ◽  
Level Process

Abstract Background Resilience research to date has been criticised for its consideration of resilience as a personal trait instead of a process, and for identifying individual factors related to resilience with no consideration of the ecological context. The overall aim of the current study was to explore the multi-level process through which adults recovering from EDs develop resilience, from the perspectives of clients and clinicians. The objective of this research was to outline the stages involved in the process of developing resilience, which might help to inform families and services in how best to support adults with EDs during their recovery. Method Thirty participants (15 clients; 15 clinicians) took part in semi-structured interviews, and responded to questions relating to factors associated with resilience. Using an inductive approach, data were analysed using reflexive thematic analysis. Results The overarching theme which described the process of developing resilience was ‘Bouncing back to being me’, which involved three stages: ‘Who am I without my ED?’, ‘My eating disorder does not define me’, and ‘I no longer need my eating disorder’. Twenty sub-themes were identified as being involved in this resilience process, thirteen of which required multi-level involvement. Conclusion This qualitative study provided a multi-level resilience framework for adults recovering from eating disorders, that is based on the experiences of adults with eating disorders and their treating clinicians. This framework provided empirical evidence that resilience is an ecological process involving an interaction between internal and external factors occurring between adults with eating disorder and their most immediate environments (i.e. family and social). Plain English summary Anorexia nervosa, bulimia nervosa and binge-eating disorder demonstrate high rates of symptom persistence across time and poor prognosis for a significant proportion of individuals affected by these disorders, including health complications and increased risk of mortality. Many researchers have attempted to explore how to improve recovery outcomes for this population. Eating disorder experts have emphasised the need to focus not only on the weight indicators and eating behaviours that sustain the eating disorder during recovery, but also on the psychological well-being of the person recovering. One way to achieve this is to focus on resilience, which was identified as a fundamental aspect of eating disorder recovery in previous research. This study conceptualises resilience as a dynamic process that is influenced not only at a personal level but also through the environment in which the person lives. This study gathered data from adults with eating disorders and their treating clinicians, to devise a framework for resilience development for adults recovering from eating disorders. The paper discussed ways in which these findings and the framework identified can be easily implemented in clinical practice to facilitate a better understanding of eating disorder resilience and to enhance recovery outcomes.

scholarly journals Holistic nursing care for people diagnosed with an eating disorder: A qualitative study based on patients and nursing professionals' experience

2021 ◽  
Author(s):  
Inmaculada Corral‐Liria ◽  
Miriam Alonso‐Maza ◽  
Julio González‐Luis ◽  
Sergio Fernández‐Pascual ◽  
Ricardo Becerro‐de‐Bengoa‐Vallejo ◽  
...  
Keyword(s):  
Eating Disorder ◽  
Qualitative Study ◽  
Nursing Care ◽  
Holistic Nursing ◽  
Nursing Professionals

scholarly journals Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries

2021 ◽  
pp. 1-14
Author(s):  
Federica Lucivero ◽  
Luca Marelli ◽  
Nora Hangel ◽  
Bettina Maria Zimmermann ◽  
Barbara Prainsack ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Large Scale ◽  
European Countries ◽  
Contact Tracing

scholarly journals Taking the heat or taking the temperature? A qualitative study of a large-scale exercise in seeking to measure for improvement, not blame

2018 ◽  
Vol 198 ◽  
pp. 157-164 ◽  
Author(s):  
Natalie Armstrong ◽  
Liz Brewster ◽  
Carolyn Tarrant ◽  
Ruth Dixon ◽  
Janet Willars ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Large Scale

FRI0562 THE PERSPECTIVE OF YOUNG PEOPLE WITH INFLAMMATORY ARTHRITIS ON PATIENT REPORTED OUTCOME MEASURES: RESULTS OF A EUROPE-WIDE SURVEY

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 883-883
Author(s):  
A. Alunno ◽  
E. Mosor ◽  
T. Stamm ◽  
P. Studenic
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Personal Experience ◽  
Large Scale ◽  
Young Patients ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Self Management ◽  
Research Support ◽  
Patient Reported

Background:Although patient-reported outcome measures (PROMs) are widely used in clinical practice and research, it is unclear if these instruments adequately cover the perspective of young people (18-35 years) with inflammatory arthritis (IA). We recently performed focus groups on PROMs with 53 young IA patients from 4 European countries, but the perspective of these patients has never been explored on a large scale.Objectives:To explore personal experience, opinions and beliefs of young people with IA across Europe concerning PROMs content, characteristics and ways of administration in order to inform EULAR points to consider (PtC) for including the perspective of young patients with IA into PROMs.Methods:Based on the results of our previous qualitative study, a task force including patients, rheumatologists and health professionals developed an online survey. The survey covered personal experience, preferences and opinions concerning PROMs. After being pilot tested and revised accordingly, the survey was distributed through the EULAR people with arthritis and rheumatism in Europe (PARE), Young PARE networks and the Emerging EULAR Network (EMEUNET).Results:547 people (88% females) from 29 countries aged 18-35 years with a diagnosis of juvenile idiopathic arthritis, rheumatoid arthritis, Still’s disease, psoriatic arthritis or spondyloarthritis completed the survey (Figure 1). Thirty-seven percent of respondents reported they never filled a PROM. A North-South and West-East Europe gradient was observed (30.4% vs 56.3% and 25.5% vs 58.8% respectively). Figure 2 outlines key findings of our survey. Among respondents having filled PROMs (n=313), two thirds perceived their access to PROM results useful for self-management of their health. Discomfort while filling PROMs was an issue for nearly half of the respondents, as questions were perceived as scaring or not relevant. This discomfort, the fear of judgement, or inadequate assessed time frames were major reasons for difficulties in translating the health experience into a rating scale. Still 75% use their own experience in the past as reference. Among several reasons, people scored differently from what they felt to emphasize how much better or worse they felt from previous assessment. Concerning preferences of numerical rating scales (NRS) or visual analogue scales (VAS) explored in all respondents regardless having ever filled in PROMs, those in favour of VAS mainly reasoned this by having more possibilities to select and those favouring NRS by better readability and interpretation. Maintaining a sitting position, preparing food, doing physical activity, intimacy and sleep problems were the items selected most frequently in the survey as in the qualitative study to be included in PROMs. The implementation of discussion on self-management, education/work and support possibilities at regular clinic visits was considered important by over 60% of responders. Overall, electronic capturing of PROMs was preferred over paper-based questionnaires (57% vs 13%).Conclusion:Our survey explored for the first time the personal experience and opinions of young people with IA concerning PROMs on a large scale and confirmed the results obtained in the qualitative study. This survey informed the EULAR PtC for including the perspective of young patients with IA into PROMs.References:[1] Mosor E et al. Arthritis Rheumatol. 2019; 71 (suppl 10)Disclosure of Interests:Alessia Alunno: None declared, Erika Mosor: None declared, Tanja Stamm Grant/research support from: AbbVie, Roche, Consultant of: AbbVie, Sanofi Genzyme, Speakers bureau: AbbVie, Roche, Sanofi, Paul Studenic Grant/research support from: Abbvie

scholarly journals Exploring the experience of being viewed as “not sick enough”: a qualitative study of women recovered from anorexia nervosa or atypical anorexia nervosa

2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Kari Eiring ◽  
Trine Wiig Hage ◽  
Deborah Lynn Reas
Keyword(s):  
Anorexia Nervosa ◽  
Eating Disorder ◽  
Qualitative Study ◽  
Help Seeking ◽  
Severity Of Illness ◽  
Physical Sign ◽  
Structured Interviews ◽  
Restrictive Eating ◽  
Eating Disorder Symptoms ◽  
Atypical Anorexia Nervosa

Abstract Background Despite common misconceptions, an individual may be seriously ill with a restrictive eating disorder without an outwardly recognizable physical sign of the illness. The aim of this qualitative study was to investigate the perspectives of individuals who have previously battled a restrictive eating disorder who were considered “not sick enough” by others (e.g., peers, families, healthcare professionals) at some point during their illness, and to understand the perceived impact on the illness and recovery. Such misconceptions are potentially damaging, and have been previously linked with delayed help-seeking and poorer clinical outcomes. Methods Seven women who had recovered from anorexia nervosa or atypical anorexia nervosa participated in semi-structured interviews. Interviews were transcribed and interpretive phenomenological analysis was used. Results Three main themes emerged: (1) dealing with the focus upon one’s physical appearance while battling a mental illness, (2) “project perfect”: feeling pressure to prove oneself, and (3) the importance of being seen and understood. Participants reported that their symptoms were occasionally met with trivialization or disbelief, leading to shame, confusion, despair, and for some, deterioration in eating disorder symptoms which drove further weight loss. In contrast, social support and being understood were viewed as essential for recovery. Conclusion To facilitate treatment seeking and engagement, and to optimize chances of recovery, greater awareness of diverse, non-stereotypical presentations of restrictive eating disorders is needed which challenge the myth that weight is the sole indicator of the presence or severity of illness.

Non-commemorative memory in news production: Discovering underlying motivations for journalists’ memory work

2019 ◽  
pp. 175069801986315 ◽  
Author(s):  
Stefanie Trümper ◽  
Irene GB Broer
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
The Netherlands ◽  
Storm Surge ◽  
Large Scale ◽  
News Production ◽  
News Reporting ◽  
Memory Work ◽  
Bare Potential ◽  
Key Events

Memory in journalism has largely been investigated in relation to the commemoration of historical key events. This article sheds light on everyday, less obvious forms of memory in journalism with a focus on non-commemorative memory. We carried out a large-scale content analysis of contemporary newspaper articles (n = 2799) about two historic storm surge disasters in the Netherlands (1953) and Germany (1962) and a subsequent qualitative study based on 10 interviews with Dutch and German journalists. Combining content-based results with actor views enabled us to look below the surface of memory in news reporting and lay bare potential triggers, justifications, and underlying motivations for memory use. We found that journalists frequently use memory to connect past, present, and future, driven by a range of professional, economic, ideological, and cultural motivations that go beyond commemoration. We propose the term “strategic motivations” to better understand the dynamics of memory in journalism.

scholarly journals Patients’ views on a new treatment for Bulimia nervosa and binge eating disorder combining physical exercise and dietary therapy (the PED-t). A qualitative study

2019 ◽  
Vol 27 (6) ◽  
pp. 503-520 ◽  
Author(s):  
Maria Bakland ◽  
Jan H. Rosenvinge ◽  
Rolf Wynn ◽  
Jorunn Sundgot-Borgen ◽  
Therese Fostervold Mathisen ◽  
...  
Keyword(s):  
Eating Disorder ◽  
Qualitative Study ◽  
Physical Exercise ◽  
Bulimia Nervosa ◽  
Binge Eating ◽  
Binge Eating Disorder ◽  
Dietary Therapy ◽  
New Treatment

Determining the Feasibility of a National Prospective Eating Disorder Registry: A Qualitative Study

2016 ◽  
Vol 58 (2) ◽  
pp. S38
Author(s):  
Allegra L. Spalding ◽  
Sara F. Forman ◽  
Rollyn M. Ornstein ◽  
Kathleen A. Mammel ◽  
Elizabeth R. Woods ◽  
...  
Keyword(s):  
Eating Disorder ◽  
Qualitative Study
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