scholarly journals Inception of a pediatric cancer caregiver support group guided by parental needs

2021 ◽  
Author(s):  
Vasudha N. Rao ◽  
Rajeshwari Rajeshwari ◽  
Revathi Rajagopal ◽  
Michelle Normen
Keyword(s):  
Support Group ◽  
Pediatric Cancer ◽  
Caregiver Support ◽  
Cancer Caregiver

Cancer Caregiver Support Group

1997 ◽  
Vol 18 (1) ◽  
pp. 31-37 ◽  
Author(s):  
Ora Gilbar
Keyword(s):  
Support Group ◽  
Caregiver Support ◽  
Cancer Caregiver

Faktor Caregiver dan Kekambuhan Klien Skizofrenia

1970 ◽  
Vol 5 (1) ◽  
Author(s):  
Laeli Farkhah ◽  
Suryani S ◽  
Taty Hernawaty
Keyword(s):  
Support Group ◽  
Caregiver Support ◽  
Consecutive Sampling

Caregiver merupakan orang yang bertanggung jawab memberikan perawatan secara langsung dalam segala situasi,baik saat pasien kambuh atau tidak kambuh. Beberapa faktor caregiver yang berhubungan dengan kekambuhanpasien skizofrenia adalah dukungan keluarga, pengetahuan tentang pengobatan skizofrenia, peristiwa kehidupan yang penuh stres, dan kualitas hidup caregiver. Penelitian ini bertujuan untuk menganalisis faktor caregiver yang berhubungan dengan kekambuhan pasien skizofrenia. Penelitian ini merupakan penelitian deskriptif analitikdengan rancangan crosssectional. Pengambilan sampel dengan consecutive sampling sebanyak 30 orang. Datadikumpulkan menggunakan kuesioner. Analisis data menggunakan uji korelasi Pearson Product Moment untukmelihat hubungan antara dua variabel dan uji regresi logistik untuk menentukan faktor yang dominan berhubungan dengan frekuensi kekambuhan pasien skizofrenia. Hasil penelitian menunjukkan semua variabel memiliki hubungan dengan frekuensi kekambuhan pasien skizofrenia. Variabel dukungan keluarga memiliki hubungan yangkuat dengan arah hubungan yang negatif (r = -0,630). Variabel pengetahuan keluarga memiliki hubungan yangsedang dengan arah hubungan yang negatif (r = -0,820). Variabel kualitas hidup memiliki hubungan yang sangatkuat dengan arah hubungan yang negatif (r = -0,560). Variabel peristiwa hidup penuh stres memiliki hubunganyang sedang dengan arah hubungan yang positif (r = 0,447). Hasil analisis regresi logistik menunjukkan bahwafaktor caregiver yang paling dominan berhubungan dengan dengan kekambuhan adalah kualitas hidup dengannilai r = -0,560 dan koefisien determinannya (r2) yaitu 0,768 yang memiliki kekuatan hubungan (OR) 25,093.Dari penelitian ini dapat disimpulkan bahwa kualitas hidup caregiver merupakan faktor yang paling dominanterhadap kekambuhan. Penelitian ini merekomendasikan agar perawat berperan aktif dalam meningkatkan kualitashidup caregiver dan pentingnya caregiver support group dalam rangka meningkatkan kualitas hidup caregiver.

Abstract P851: Embracing Virtual Connection: An Innovative Systemwide Approach to Support Groups

Stroke ◽  
2021 ◽  
Vol 52 (Suppl_1) ◽  
Author(s):  
Carly J Rossi ◽  
Nicole Westensee ◽  
Dienst Elizabeth ◽  
Danielle Hagedorn ◽  
Julie Schafer ◽  
...  
Keyword(s):  
Support Groups ◽  
Support Group ◽  
High Risk Patient ◽  
Stroke Survivors ◽  
Group Leaders ◽  
Caregiver Support ◽  
Stroke Population ◽  
Virtual Platform ◽  
Problem Solve ◽  
Virtual Support

Background: Following a statewide stay-at-home order, Centura Stroke Support Group meetings were postponed indefinitely due to our high-risk patient population. Throughout the organization, stroke coordinators and support group leaders recognized the importance of community and continued support for the stroke population. The objective was to develop a creative survivor & caregiver support offering following social distancing guidelines given the Covid-19 restrictions, while collaborating & expanding opportunities for stroke support across the Centura system. Purpose: We hypothesized that we could successfully support stroke survivors & caregivers through a virtual platform during the pandemic & improve accessibility regardless of participant location or transportation. Methods: Group leaders assessed stroke survivors & caregivers ongoing needs through weekly outreach identifying the importance of the support group and a need for continued group access during the Covid-19 pandemic. Attendee’s indicated an interest in virtual support & a willingness to learn the required virtual platform. Leaders collaborated across the system to organize efforts in reaching survivors & caregivers at each hospital while sharing group curriculum & education systemwide; thus, allowing groups to meet at different times and increasing overall accessibility. Facilitators worked with individuals to problem solve potential issues navigating a virtual format. Results: The virtual format successfully provided support from the comfort & safety of home. Attendance increased in comparison to an in-person format. When asked about preference for an in-person setting only vs. a combination of in-person & virtual format, 80% selected a combination format. Working together across the system, stroke coordinators & group facilitators benefitted from a broader range of resources and connected the greater stroke community across Colorado. Conclusion: Regardless of future restrictions, hospitals should consider virtual support groups to increase accessibility for survivors & caregivers. There are benefits of the virtual platform which expand access to support by reducing barriers such as community availability and transportation.

scholarly journals GIVE A PIECE OF YOUR MIND: A CONTENT ANALYSIS OF A FACEBOOK SUPPORT GROUP FOR DEMENTIA CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S850-S850
Author(s):  
Jenny A Lagervall ◽  
Madeline R Lag ◽  
Sophie Brickman ◽  
Rebecca E Ingram ◽  
Leilani Feliciano
Keyword(s):  
Support Groups ◽  
Caregiver Burden ◽  
Support Group ◽  
Coping Strategy ◽  
Online Support ◽  
Online Support Groups ◽  
Dementia Caregivers ◽  
Caregiver Support ◽  
Emotional Tone ◽  
Grief Reactions

Abstract The online environment offers individuals a means of obtaining information, support, and social connection. Older adults are growing users of the internet1. Online support groups (e.g., Facebook groups) have been found to provide health-related information and encourage mental well-being2. They may be particularly advantageous for caregivers of individuals diagnosed with dementia, as it is difficult to leave loved ones with dementia alone. However, the mechanisms by which online support groups engage caregivers, and the content of support, have yet to be explored. In the current study, content from 100 posts from a private Facebook caregiver support group were evaluated for gender of post author, relationship to the person receiving care, distress, emotional tone, grief reaction, caregiver burden, and coping strategy. Results indicated that caregiver distress was associated with the presence of grief reactions, negative emotional tone, and higher caregiver burden. Utilizing venting as a coping strategy was associated with higher caregiver burden, similar to what is observed in a traditional in-person support group. Online communication for caregivers may provide an indication of caregivers’ psychological well-being, as specific coping strategies and grief reactions indicated higher levels of caregiver burden and distress. Research on interventions for dementia caregivers may benefit from a focus on online social support as a means of accessing caregivers and treatment delivery.

scholarly journals A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

2016 ◽  
Vol 15 (1) ◽  
pp. 110-124 ◽  
Author(s):  
Kimberson Tanco ◽  
Ji Chan Park ◽  
Agustina Cerana ◽  
Amy Sisson ◽  
Nikhil Sobti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Literature Search ◽  
Healthcare Delivery ◽  
Self Report ◽  
Caregiver Distress ◽  
Pediatric Cancer Patients ◽  
Cancer Caregiver

AbstractObjective:Caregivers of cancer patients face intense demands throughout the course of the disease, survivorship, and bereavement. Caregiver burden, needs, satisfaction, quality of life, and other significant areas of caregiving are not monitored regularly in the clinic setting, resulting in a need to address the availability and clinical effectiveness of cancer caregiver distress tools. This review aimed to determine the availability of cancer caregiver instruments, the variation of instruments between different domains of distress, and that between adult and pediatric cancer patient populations.Method:A literature search was conducted using various databases from 1937 to 2013. Original articles on instruments were extracted separately if not included in the original literature search. The instruments were divided into different areas of caregiver distress and into adult versus pediatric populations. Psychometric data were also evaluated.Results:A total of 5,541 articles were reviewed, and 135 articles (2.4%) were accepted based on our inclusion criteria. Some 59 instruments were identified, which fell into the following categories: burden (n = 26, 44%); satisfaction with healthcare delivery (n = 5, 8.5%); needs (n = 14, 23.7%); quality of life (n = 9, 15.3%); and other issues (n = 5, 8.5%). The median number of items was 29 (4–125): 20/59 instruments (33.9%) had ≤20 items; 13 (22%) had ≤20 items and were psychometrically sound, with 12 of these 13 (92.3%) being self-report questionnaires. There were 44 instruments (74.6%) that measured caregiver distress for adult cancer patients and 15 (25.4%) for caregivers of pediatric patients.Significance of results:There is a significant number of cancer caregiver instruments that are self-reported, concise, and psychometrically sound, which makes them attractive for further research into their clinical use, outcomes, and effectiveness.

Abstract TP403: Caring for the Caregiver After Stroke

Stroke ◽  
2020 ◽  
Vol 51 (Suppl_1) ◽  
Author(s):  
Laurel Packard ◽  
Tricia Tubergen ◽  
Jamie DuVerneay ◽  
Adrienne Veenstra ◽  
Muhib Khan
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Mental Health Problems ◽  
Emotional Adjustment ◽  
Stroke Survivor ◽  
Respite Care ◽  
Physical And Mental Health ◽  
Caregiver Support ◽  
New Normal ◽  
Long Term Study

Background: After diagnosis of a chronic progressive condition or emergent neurologic event, the focus is on the survivor and his/her adaptation to a ‘new normal’. Often these survivors or neurologic disease/injury require physical or emotional support and supervision from a caregiver. Research tells us that the act of caregiving is stressful, and often leads to physical and mental health problems for the caregiver1. Caregivers are often forced to adjust to a ‘new normal’ themselves, and verbalize feelings of loss associated with the relationship with the person they are caring for and indicate an inability to engage in tasks that they enjoy2. Studies also indicate that support often helps caregivers identify the positive attributes to caregiving, and that community recognition/support leads to positive coping behaviors3. Purpose: The purpose is to inform the audience of the novel Stroke Caregiver Support Group with respite care provided in Grand Rapids, MI. Methods: An analysis of feedback from stroke caregivers attending this support group was conducted. Within this analysis, meaningful support group topics and respite care services were described, with analysis of how these topics benefitted the caregiver and the adjustment to life caring for a stroke survivor. Results: Stroke caregivers appreciate a caregiver only support group as a venue to share difficult feelings with peers and promote self-reflection. All participants indicated a strong desire to continue to attend this support group and appreciate focus topics on finances and emotional adjustment after stroke. Conclusions: There are few caregiver-only support groups available for those caring for a loved one after a stroke. Although many diagnosis specific survivor support groups (stroke, TBI, Alzheimer’s, etc.) exist, few target the caregiver and offer a time for respite and support with a professional moderator. A care-giver only stroke support group has shown positive anecdotal value. Long-term study on any health-related benefits and qualitative impact is recommended.

Factors Associated with Attendance at Caregiver Support Group Meetings

1990 ◽  
Vol 15 (3) ◽  
pp. 93-108 ◽  
Author(s):  
Valerie C. Burks ◽  
Dale A Lund ◽  
Robert D. Hill
Keyword(s):  
Support Group ◽  
Caregiver Support ◽  
Factors Associated ◽  
Group Meetings

3. Learning Modules in a Support Group Context for Caregivers of Individuals with Alzheimer’s Disease and Related Dementias

2017 ◽  
Author(s):  
Wafa Nurdin ◽  
Aicha Wane
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Community Dwelling ◽  
Daily Activities ◽  
Caregiver Support ◽  
Learning Modules ◽  
The Impact

The majority of community dwelling individuals with dementia have informal caregivers. With the risk of developing care related stress, it is important for community agencies, like the Alzheimer Society of Kingston (ASK), to provide support, resources, and information. The goal of this intervention was that caregivers of individuals with Alzheimer’s disease and related dementias (ADRD) would improve physical, social, and mental well-being. A search of the literature, as well as surveys of support group facilitators, forty caregivers, and consultation with ASK helped determine information relevant to the caregivers. The purpose of this project was to develop learning modules on: a) using a problem-based strategy to assist with daily activities of the person they are caring for; b) self-care strategies; c) positive coping strategies; d) assertive communication skills, and e) home environment safety to be delivered during caregiver support groups. The module on a problem-based strategy to assist with daily activities was pilot tested, utilizing five caregivers. It was found that the learning module was approximately 30 minutes over the stated timeframe and the case study component of the module was ineffective. Recommendations include implementing the module as two parts. Furthermore, additional research is needed on the impact of the modules on caregiver stress and burden.

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