Development of a culturally sensitive narrative intervention to promote genetic counseling among African American women at risk for hereditary breast cancer

Cancer ◽  
2021 ◽  
Author(s):  
Vida Henderson ◽  
Ifeanyi Beverly Chukwudozie ◽  
DeLawnia Comer‐Hagans ◽  
Vickii Coffey ◽  
Giesela Grumbach ◽  
...  
Keyword(s):  
Breast Cancer ◽  
At Risk ◽  
African American ◽  
Genetic Counseling ◽  
African American Women ◽  
Hereditary Breast Cancer ◽  
Culturally Sensitive ◽  
American Women ◽  
Narrative Intervention

Abstract B33: Motivating African American women with hereditary breast cancer risk to participate in genetic counseling

2018 ◽  
Author(s):  
DeLawnia Comer-HaGans ◽  
Zo Ramamonjiarivelo ◽  
Shirley Spencer ◽  
Beverly Chukwudozie ◽  
Vida Henderson ◽  
...  
Keyword(s):  
Breast Cancer ◽  
African American ◽  
Genetic Counseling ◽  
Breast Cancer Risk ◽  
Cancer Risk ◽  
African American Women ◽  
Hereditary Breast Cancer ◽  
American Women

scholarly journals Exploring the Perceptions of African American Breast Cancer Survivors on Endocrine Therapy: A Mixed Methods Study (Preprint)

2020 ◽  
Author(s):  
Sara Belle Donevant ◽  
Sue P Heiney ◽  
Cassandra Wineglass ◽  
Benjamin Schooley ◽  
Akanksha Singh ◽  
...  
Keyword(s):  
Breast Cancer ◽  
African American ◽  
Side Effects ◽  
Cancer Survivors ◽  
African American Women ◽  
Endocrine Therapy ◽  
Quantitative Data ◽  
Breast Cancer Survivors ◽  
Culturally Sensitive ◽  
American Women

BACKGROUND Although the incidence of breast cancer is lower in African American women than white women, they have decreased survival rate. This problem may be due to poor adherence to endocrine therapy which decreases the likelihood of recurrence. Accessible and culturally sensitive interventions to improve survival may decrease mortality. OBJECTIVE The purpose of this article is to describe the process of obtaining qualitative and quantitative data to guide the development of the proposed mHealth app, STORY+. METHODS We recruited 20 African American women with breast cancer. We used quantitative data collection and qualitative interviewing to collect data about their experiences with managing endocrine therapy and its side effects, understanding the value and purpose of endocrine therapy, and using technology in the breast cancer journey. RESULTS We found the women only had general knowledge of the purpose of endocrine therapy but were committed to adherence due to their health care provider’s recommendation. These women used their smartphones far more than a computer. The smartphone provided social connection, information, and practical ways to adhere to treatment. Most participants want a culturally sensitive app to assist them with adherence and connect them with other women that were diagnosed with breast cancer and were African American, not white. CONCLUSIONS Further research is needed to develop a culturally sensitive app for African American women with breast cancer to improve adherence to endocrine therapy. Our work strongly suggests this population would use the app to connect with other African American breast cancer survivors and manage endocrine therapy including side effects.

Abstract B5: Cultural factors in obesity in African American women at increased risk for hereditary breast cancer

2008 ◽  
Author(s):  
LaShanda Jones Corneille ◽  
Lisa Kessler ◽  
Katherine Schmitz ◽  
Susan Domchek ◽  
Chanita Hughes Halbert
Keyword(s):  
Breast Cancer ◽  
African American ◽  
African American Women ◽  
Hereditary Breast Cancer ◽  
Cultural Factors ◽  
American Women ◽  
Increased Risk

Promoting genetic counseling among African American women with hereditary risk for breast cancer.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e13639-e13639
Author(s):  
Pooja Parekh ◽  
Vida Henderson ◽  
Kent Hoskins ◽  
LeChaun Kendall ◽  
Jessica Madrigal ◽  
...  
Keyword(s):  
Breast Cancer ◽  
African American ◽  
Genetic Counseling ◽  
African American Women ◽  
Genetic Counselor ◽  
Culturally Sensitive ◽  
Integrative Model ◽  
Baseline Survey ◽  
Post Intervention ◽  
The Impact

e13639 Background: Breast cancer (BC) mortality is substantially higher for African American (AA) women compared to their white counterparts. Genetic counseling (GC) is a key step in management of women with hereditary BC risk, but medically underserved women of color are less likely to receive these services. We report preliminary data from a pilot study examining the impact of a culturally sensitive, multimedia educational video created to motivate AA women with hereditary BC risk to attend GC. Development of the intervention was guided by the Integrative Model of Behavioral Prediction and qualitative research with the target audience. Methods: AA women eligible for GC for hereditary BC according to national criteria were identified through cancer genetic risk assessment (CGRA) performed at the time of a screening mammogram at the University of Illinois Health System in Chicago, IL, and were invited to participate in the study. Participants completed a baseline survey, viewed the educational intervention, and completed a post-intervention survey. The surveys included five-item Likert scales on intentions to act on the information presented, normative beliefs about GC, knowledge, and acceptability of the intervention. Responses were summarized as frequencies and proportions, and changes pre/post-intervention were evaluated using McNemar’s test. Results: The proportion of participants (n = 30) who rated they were “Extremely Likely” to make an appointment with a genetic counselor increased from 50% at baseline to 70% following the intervention (p = 0.04). After viewing the video, the proportion who rated they were “Extremely Likely” to speak with their doctor about genetic counseling increased from 60% to 77% (p = 0.10). There was a 16.6% increase (p = 0.05) in the proportion of women who indicated their family would be interested in learning more about GC, and 96.6% and 90% of participants agreed that the intervention video was enjoyable to watch and that they could relate to what the actors were saying, respectively. Changes in intentions to act on the information presented were not accompanied by changes in knowledge. Conclusions: A culturally sensitive multimedia intervention based on a theoretical model of health behavior increased intentions to attend GC among high risk AA women. The intervention was enjoyable for minority women to watch and increased intentions to discuss GC with family members. These findings indicate that culturally tailored motivational interventions have the potential to increase uptake of GC in underserved communities.

scholarly journals Attitudes about genetic testing and genetic testing intentions in African American women at increased risk for hereditary breast cancer

2005 ◽  
Vol 7 (4) ◽  
pp. 230-238 ◽  
Author(s):  
Lisa Kessler ◽  
Aliya Collier ◽  
Kiyona Brewster ◽  
Chachira Smith ◽  
Benita Weathers ◽  
...  
Keyword(s):  
Breast Cancer ◽  
African American ◽  
Genetic Testing ◽  
African American Women ◽  
Hereditary Breast Cancer ◽  
American Women ◽  
Increased Risk

Abstract B31: Creating a mobile device-based educational animation for African American women with hereditary breast cancer risk

2018 ◽  
Author(s):  
Zo Ramamonjiarivelo ◽  
DeLawnia Comer-Hagans ◽  
Ifeanyi Beverly Chukwudozie ◽  
Shirley Spencer ◽  
Vida Henderson ◽  
...  
Keyword(s):  
Breast Cancer ◽  
African American ◽  
Breast Cancer Risk ◽  
Cancer Risk ◽  
African American Women ◽  
Mobile Device ◽  
Hereditary Breast Cancer ◽  
American Women
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