scholarly journals Quality of care received and patient-reported regret in prostate cancer: Analysis of a population-based prospective cohort

Cancer ◽  
2016 ◽  
Vol 123 (1) ◽  
pp. 138-143 ◽  
Author(s):  
Jordan A. Holmes ◽  
Jeannette T. Bensen ◽  
James L. Mohler ◽  
Lixin Song ◽  
Merle H. Mishel ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Quality Of Care ◽  
Prospective Cohort ◽  
Population Based ◽  
Patient Reported

Quality-of-life outcomes for prostate cancer treatment in Australia.

2013 ◽  
Vol 31 (6_suppl) ◽  
pp. 143-143
Author(s):  
Jeremy L. Millar ◽  
Susan M. Evans ◽  
Mark Frydenberg ◽  
Declan G. Murphy ◽  
Damien M. Bolton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Cancer Treatment ◽  
Public Hospital ◽  
Population Based ◽  
Life Outcomes ◽  
Hospital Type ◽  
Prostate Cancer Treatment ◽  
Patient Reported

143 Background: We aimed to use a population based quality registry established in Australia, to review patient-reported health-related QOL after the diagnosis of Prostate Cancer (PCa). Methods: Prospective registry of men with PCa from statutory notifications to the canonical population-based cancer registry in Victoria. An "opt-off" mechanism used. Coverage expanded from 30%-80% of State population over time. Demographics and disease features, management, and outcomes from medical record; men phoned at 12 and 24 months (m), interviewed with script including SF12 and items from standard form (UCLA PCI) for specific QOL outcomes. Urinary, rectal, and sexual function bother (UB, RB, and SB) scores where analysed by univariate and multivariable modelling for relationship of these with presentation or management factors, adjusting for risk. Results: Men from 8/2008 - 2/2011; 1.9% of eligible opted out. Followed 1172 to 12 & 24 m. Median diagnosis age 65 yr; median PSA 6.8 ng/mL; 97.3% clinically localised with 47.7% having NCCN intermediate risk. 520 had treatment with Radical Prostatectomy (RP) (89 also with external beam-EBRT), 171 had EBRT (with or without HDR brachy), and 211 seed implant (SI). 226 had no treatment (NT) in the first 12 m. 52.5% managed in public hospitals, rest private. Univariate analysis: UB associated with management type, and hospital type, and RB and SB associated with these factors, as well as age and disease stage. On multivariate regression SB at 12 m was associated with increasing age (p=0.002) and radical treatment types (RP and EBRT/HDR, p<0.001 and 0.003 respectively)—except SI—compared to NT; RB was associated with SI (0.02) and EBRT/HDR (0.007) and treatment in a public hospital (0.006); and UB was associated with public hospital (<0.001). All associations at 12 m remained significant at 24 m. SF12 physical score had a positive association with RP vs NT (0.014), hospital type (0.001) and younger age. SF12 mental health also showed associations. Conclusions: A large scale registry in Australia assessing patient-reported quality of life outcomes after prostate cancer treatment shows patterns similar to that seen in North American reports.

Creation of a standardized set of patient-centered outcomes for advanced prostate cancer: An international effort.

2015 ◽  
Vol 33 (7_suppl) ◽  
pp. 282-282
Author(s):  
Alicia Katherine Morgans ◽  
Annelotte van Bommel ◽  
Caleb Stowell ◽  
David F. Penson ◽  
Keyword(s):  
Prostate Cancer ◽  
Quality Of Care ◽  
Outcome Measures ◽  
Clinical Data ◽  
Advanced Prostate Cancer ◽  
International Health ◽  
Bowel Dysfunction ◽  
Patient Reported Outcome Measures ◽  
Patient Reported

282 Background: Clinical trials and international registries assess outcomes considered relevant to men with advanced prostate cancer (CaP). However, we lack a single standardized set of outcomes, making direct comparisons between populations and quality of care assessments challenging. We sought to create a minimum standardized set of outcomes relevant to men with advanced CaP. Methods: The International Consortium for Health Outcomes Measurement assembled a multi-disciplinary working group to create a minimum set of measures to collect for men with advanced CaP. We used a modified Delphi method to establish pertinent measures and case-mix characteristics. Results: Approximately 24 experts, including clinicians and patient advocates, from North America, Europe, and Australia participated. We defined the included population as men with metastatic prostate cancer or biochemical recurrence who failed or were ineligible for salvage therapy. Outcomes important to all men with advanced CaP, such as overall survival, and measures specific to subgroups, such as time to metastasis, were identified. Measures gathered from clinical data include risk-stratification characteristics and measures of disease control. Patient-reported outcome measures, like pain control, depression, and erectile, urinary, and bowel dysfunction, were also identified. Conclusions: Standardized outcome measures are necessary to assess quality of care across different populations, and are critical to ensure value in health care. Our international, multi-disciplinary team identified clinical data and patient-reported outcomes to provide a basis for international health outcome comparisons and future assessments of quality of care for men with advanced CaP.

scholarly journals Cohort profile: the Martinique Cancer Registry and the quality of life prostate cancer cohort (QoL Prostate-MQ): challenges and prospects for reducing disparities in the Caribbean

BMJ Open ◽  
2018 ◽  
Vol 8 (7) ◽  
pp. e021540 ◽  
Author(s):  
Clarisse Joachim ◽  
Jacqueline Veronique-Baudin ◽  
Thierry Almont ◽  
Stephen Ulric-Gervaise ◽  
Jonathan Macni ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prostate Cancer ◽  
Patient Outcomes ◽  
Cancer Registry ◽  
Cancer Registries ◽  
Population Based ◽  
Patient Reported Outcome ◽  
Patient Reported ◽  
The Caribbean

PurposeRecording cancer data in cancer registries is essential for producing reliable population-based data for service planning, monitoring and evaluation. Prostate cancer (PCa) remains the most frequent type of cancer in terms of incidence and mortality in men in the Caribbean. The quality of life PCa cohort will assess quality of life and patient outcomes in Martinique using a digital platform for patient-reported outcome measures.ParticipantsThe Martinique Cancer Registry database is the largest clinical database among the French population-based cancer registries in the Caribbean, including more than 38 000 cancer cases, with 1650 new cancer cases per year, including 550 new PCa cases per year (2010–2014 latest period). In 2018, follow-up will include vital status, assessment of quality of life with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire (QLQ) Core 30 and the Prostate cancer module QLQ-PR25. Urinary incontinence and erectile dysfunction recorded prior to treatment will be analysed 1 and 5 years after treatment.Findings to dateThe registry includes data on circumstances of diagnosis, clinical stage at diagnosis. For PCa, the registry includes blood prostate-specific antigen level at the time of diagnosis, Gleason score and primary treatment.Future plansFurther studies will provide detailed data regarding the quality of diagnosis and management of patients with PCa in Martinique; analysing quality of care will be the next challenge.Quality of life and patient outcomes will be evaluated using a digital platform for patient-reported outcome measurement and electronic records.

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