scholarly journals Young adult female cancer survivors' unmet information needs and reproductive concerns contribute to decisional conflict regarding posttreatment fertility preservation

Cancer ◽  
2016 ◽  
Vol 122 (13) ◽  
pp. 2101-2109 ◽  
Author(s):  
Catherine Benedict ◽  
Bridgette Thom ◽  
Danielle N. Friedman ◽  
Debbie Diotallevi ◽  
Elaine M. Pottenger ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Fertility Preservation ◽  
Adult Female ◽  
Information Needs ◽  
Decisional Conflict ◽  
Reproductive Concerns ◽  
Female Cancer Survivors

Young adult female cancer survivors’ concerns about genetic cancer risk in offspring.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 121-121
Author(s):  
Nirupa Jaya Raghunathan ◽  
Bridgette Thom ◽  
Danielle Novetsky Friedman ◽  
Catherine Benedict ◽  
Joanne Frankel Kelvin
Keyword(s):  
Young Adult ◽  
Cancer Risk ◽  
Cancer Survivors ◽  
Adult Female ◽  
Genetic Diagnosis ◽  
Family Health ◽  
Genetic Mutations ◽  
Accurate Information ◽  
Reproductive Concerns ◽  
Female Cancer Survivors

121 Background: More than 362,000 female cancer survivors under 40 years old live in the US. Research consistently shows no increased cancer risk among offspring of cancer survivors in the absence of a hereditary cancer. Still survivors voice concerns over the health of future children. This analysis explores young adult female cancer survivors’ (YAFCS) perceptions of genetic cancer risk and related reproductive concerns. Methods: Eligible females were aged 18-35, at least one year post-treatment. Participants were recruited using social media posts from 17 young adult cancer advocacy groups and directed to an anonymous web-based survey that included the Reproductive Concerns after Cancer Scale (RCACS), with a 3-item “Concerns about Future Child Health” subscale. Results: 346 YAFCS completed the full survey, and based on logic-based branching, 192 respondents could have completed the RCACS: 177 (92%) completed the entire scale and 187 (97%) completed the child’s health subscale. Mean RCACS score was 58.5 (sd = 11.6; range 22-86); mean child’s health score was 11.3 (sd = 3.3; range 3-15), with a negative skew. At the item-level, 65% of the sample worried about passing along cancer risk to offspring; 71% worried about family health history affecting future children; and 60% were afraid their children would have a high chance of getting cancer. RCACS and child’s health subscale scores did not vary by age, race, education, income, or diagnosis. Further, mean scores did not vary between survivors of family cancer syndromes (breast, ovarian, colorectal) and those with other diagnoses (RCACS: t = 1.4, df = 175, p = .14; child’s health: t = 0.02, df = 185, p = .99). Conclusions: Despite studies showing minimal genetic cancer risk in offspring of survivors, many YAFCS have concerns about the health of future children. This may be related to mistaken beliefs that genetic mutations within tumor cells are transmissible or unawareness of availability of pre-implantation genetic diagnosis for embryo selection in those with transmissible genetic mutations. There is a need to educate patients about these issues to enable them to make family building choices based on accurate information about genetic risk.

scholarly journals A Multidimensional Scale to Measure the Reproductive Concerns of Young Adult Female Cancer Survivors

2013 ◽  
Author(s):  
Jessica R. Gorman ◽  
H. Irene Su ◽  
Samantha C. Roberts ◽  
Sally A. Dominick ◽  
John P. Pierce ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adult Female ◽  
Reproductive Concerns ◽  
Female Cancer Survivors

scholarly journals A multidimensional scale to measure the reproductive concerns of young adult female cancer survivors

2013 ◽  
Author(s):  
Jessica R. Gorman ◽  
H. Irene Su ◽  
Samantha C. Roberts ◽  
Sally A. Dominick ◽  
John P. Pierce ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adult Female ◽  
Reproductive Concerns ◽  
Female Cancer Survivors

“Twistin' the night away”: Fertility preservation in young adult female cancer survivors

Cancer ◽  
2016 ◽  
Vol 123 (4) ◽  
pp. 707-708
Author(s):  
Ernesto Zanet ◽  
Rosanna Ciancia ◽  
Mariagrazia Michieli ◽  
Umberto Tirelli
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Fertility Preservation ◽  
Adult Female ◽  
Female Cancer Survivors

Reply to “Twistin' the night away”: Fertility preservation in young adult female cancer survivors

Cancer ◽  
2016 ◽  
Vol 123 (4) ◽  
pp. 708-709
Author(s):  
Catherine Benedict ◽  
Bridgette Thom ◽  
Danielle N. Friedman ◽  
Debbie Diotallevi ◽  
Elaine M. Pottenger ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Fertility Preservation ◽  
Adult Female ◽  
Female Cancer Survivors

scholarly journals Fertility information needs and concerns post-treatment contribute to lowered quality of life among young adult female cancer survivors

2018 ◽  
Vol 26 (7) ◽  
pp. 2209-2215 ◽  
Author(s):  
Catherine Benedict ◽  
Bridgette Thom ◽  
Danielle N. Friedman ◽  
Elaine Pottenger ◽  
Nirupa Raghunathan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Cancer Survivors ◽  
Adult Female ◽  
Information Needs ◽  
Post Treatment ◽  
Female Cancer Survivors

scholarly journals A multidimensional scale to measure the reproductive concerns of young adult female cancer survivors

2013 ◽  
Vol 8 (2) ◽  
pp. 218-228 ◽  
Author(s):  
Jessica R. Gorman ◽  
H. Irene Su ◽  
John P. Pierce ◽  
Samantha C. Roberts ◽  
Sally A. Dominick ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adult Female ◽  
Reproductive Concerns ◽  
Female Cancer Survivors
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