Evaluation of an internet support group for women with primary breast cancer

Cancer ◽  
2003 ◽  
Vol 97 (5) ◽  
pp. 1164-1173 ◽  
Author(s):  
Andrew J. Winzelberg ◽  
Catherine Classen ◽  
Georg W. Alpers ◽  
Heidi Roberts ◽  
Cheryl Koopman ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Support Group ◽  
Primary Breast Cancer ◽  
Internet Support Group ◽  
Internet Support

Long-term follow-up of a randomized study of support group intervention in women with primary breast cancer

2013 ◽  
Vol 74 (4) ◽  
pp. 346-353 ◽  
Author(s):  
Helena Granstam Björneklett ◽  
Andreas Rosenblad ◽  
Christina Lindemalm ◽  
Marja-Leena Ojutkangas ◽  
Henry Letocha ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Support Group ◽  
Group Intervention ◽  
Primary Breast Cancer ◽  
Randomized Study ◽  
Long Term Follow Up

scholarly journals An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis

2018 ◽  
Vol 9 (3) ◽  
pp. 327-334
Author(s):  
Staci Martin ◽  
Kari L. Struemph ◽  
Alyssa Poblete ◽  
Mary Anne Toledo-Tamula ◽  
Robin Lockridge ◽  
...  
Keyword(s):  
Qualitative Analysis ◽  
Support Group ◽  
Neurofibromatosis Type 1 ◽  
Neurofibromatosis Type ◽  
Internet Support Group ◽  
Internet Support

scholarly journals Psychiatry on the Internet: survey of an OCD mailing list

1997 ◽  
Vol 21 (2) ◽  
pp. 95-98 ◽  
Author(s):  
Dan J. Stein
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Mailing List ◽  
Internet Survey ◽  
The Internet ◽  
Obsessive Compulsive ◽  
Compulsive Disorder ◽  
Internet Support Group ◽  
Internet Support ◽  
Source Of Information

Professionals and consumers have joined psychiatric support groups on the Internet. This paper reports on a survey of members of an obsessive-compulsive disorder (OCD) mailing list (OCD-L). Members, who were primarily patients with OCD, but included family members and professionals, were generally positive about the benefits of the list, finding it a useful source of information about treatment, and a helpful source of support. It is concluded that a useful component of the management of OCD may include Joining OCD–L or a similar Internet support group, as benefits seem to outweigh possible problems. Further study of other Internet psychiatric support groups, which may differ significantly from OCD–L, seems warranted.

scholarly journals Direction to an Internet Support Group Compared With Online Expressive Writing for People With Depression and Anxiety: A Randomized Trial

2016 ◽  
Vol 3 (2) ◽  
pp. e12 ◽  
Author(s):  
Jeremy Dean ◽  
Henry WW Potts ◽  
Chris Barker
Keyword(s):  
Social Support ◽  
Support Groups ◽  
Support Group ◽  
Expressive Writing ◽  
Satisfaction With Life ◽  
The Internet ◽  
Depression And Anxiety ◽  
Internet Support Group ◽  
Internet Support ◽  
Internet Support Groups

Background Depression and anxiety are common, often comorbid, conditions, and Internet support groups for them are well used. However, little rigorous research has been conducted on the outcome of these groups. Objective This study aimed to evaluate the efficacy of an Internet support group in reducing depression and anxiety, and increasing social support and life satisfaction. Methods A randomized trial compared direction to an existing Internet support group for depression and anxiety with an online expressive writing condition. A total of 863 (628 female) United Kingdom, United States, and Canadian volunteers were recruited via the Internet. Online, self-report measures of depression, anxiety, social support, and satisfaction with life were administered at baseline, 3, and 6 months. Results All four outcomes – depression, anxiety, social support, and satisfaction with life – improved over the 6 months of the study (all P<.001). There was no difference in outcome between the two conditions: participants responded similarly to the expressive writing and the Internet support group. Engagement with the Internet support group was low, it had high 6-month attrition (692/795, 87%) and low adherence, and it received mixed and often negative feedback. The main problems reported were a lack of comfort and connection with others, negative social comparisons, and the potential for receiving bad advice. Expressive writing had lower attrition (194/295, 65%) and participants reported that it was more acceptable. Conclusions Until further evidence accumulates, directing people with depression and anxiety to Internet support groups cannot be recommended. On the other hand, online expressive writing seems to have potential, and its use for people with depression and anxiety warrants further investigation. Trial Registration Trial Registration: Clinicaltrials.gov NCT01149265; https://clinicaltrials.gov/ct2/show/NCT01149265 (Archived by WebCite at http://www.webcitation.org/6hYISlNFT)

scholarly journals Lumbar Spine Fusion Patients’ Use of an Internet Support Group: Mixed Methods Study

2019 ◽  
Vol 21 (7) ◽  
pp. e9805
Author(s):  
Janni Strøm ◽  
Mette Terp Høybye ◽  
Malene Laursen ◽  
Lene Bastrup Jørgensen ◽  
Claus Vinther Nielsen
Keyword(s):  
Mixed Methods ◽  
Lumbar Spine ◽  
Support Group ◽  
Spine Fusion ◽  
Mixed Methods Study ◽  
Lumbar Spine Fusion ◽  
Internet Support Group ◽  
Internet Support

scholarly journals Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study

2016 ◽  
Vol 26 (3) ◽  
pp. 576-585 ◽  
Author(s):  
S. Martin ◽  
M. C. Roderick ◽  
R. Lockridge ◽  
M. A. Toledo-Tamula ◽  
A. Baldwin ◽  
...  
Keyword(s):  
Pilot Study ◽  
Support Group ◽  
Neurofibromatosis Type 1 ◽  
Neurofibromatosis Type ◽  
Internet Support Group ◽  
Internet Support
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