scholarly journals Breast cancer research among African-American women

Cancer ◽  
2002 ◽  
Vol 97 (S1) ◽  
pp. 335-341
Author(s):  
Larry W. Figgs
Keyword(s):  
Breast Cancer ◽  
Cancer Research ◽  
African American ◽  
African American Women ◽  
Breast Cancer Research ◽  
American Women

Bridging the Gap: Racial concordance as a strategy to increase African American participation in breast cancer research

2017 ◽  
Vol 24 (11) ◽  
pp. 1548-1561 ◽  
Author(s):  
Georita M Frierson ◽  
Bernardine M Pinto ◽  
Deanna C Denman ◽  
Pierre A Leon ◽  
Alex D Jaffe
Keyword(s):  
Breast Cancer ◽  
Cancer Research ◽  
African American ◽  
African American Women ◽  
Rhode Island ◽  
Cultural Sensitivity ◽  
Breast Cancer Survivors ◽  
Breast Cancer Research ◽  
Minority Participation ◽  
Racial Concordance

Lack of African American females in breast cancer research has been receiving substantial attention. This study seeks to identify research perceptions and motivating factors needed to increase racial/ethnic minority participation in breast cancer research. A total of 57 African American women (Σ = 47.8 years), from Rhode Island and Texas, completed a questionnaire and focus group. While many participants were not breast cancer survivors, they reported knowledge of their racial group’s risk for breast cancer. One major finding that could be seen as both a facilitator and barrier is racial concordance between participant and researcher. Cultural sensitivity and trust building is recommended to increase minority participation.

scholarly journals Sistas Taking a Stand for Breast Cancer Research (STAR) Study: A Community-Based Participatory Genetic Research Study to Enhance Participation and Breast Cancer Equity among African American Women in Memphis, TN

2018 ◽  
Vol 15 (12) ◽  
pp. 2899 ◽  
Author(s):  
Alana Smith ◽  
Gregory Vidal ◽  
Elizabeth Pritchard ◽  
Ryan Blue ◽  
Michelle Martin ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Research ◽  
African American ◽  
African American Women ◽  
Genetic Research ◽  
Health Questionnaire ◽  
Cancer Genetic ◽  
Community Based ◽  
American Women ◽  
Research Studies

African American women are substantially underrepresented in breast cancer genetic research studies and clinical trials, yet they are more likely to die from breast cancer. Lack of trust in the medical community is a major barrier preventing the successful recruitment of African Americans into research studies. When considering the city of Memphis, TN, where the percentage of African Americans is significantly higher than the national average and it has a high rate of breast cancer mortality inequities among African American women, we evaluated the feasibility of utilizing a community-based participatory (CBPR) approach for recruiting African American women into a breast cancer genetic study, called the Sistas Taking A Stand for Breast Cancer Research (STAR) study. From June 2016 and December 2017, African American women age 18 and above were recruited to provide a 2 mL saliva specimen and complete a health questionnaire. A total of 364 African American women provided a saliva sample and completed the health questionnaire. Greater than 85% agreed to be contacted for future studies. Educational workshops on the importance of participating in cancer genetic research studies, followed by question and answer sessions, were most successful in recruitment. Overall, the participants expressed a strong interest and a willingness to participate in the STAR study. Our findings highlight the importance of implementing a CBPR approach that provides an educational component detailing the importance of participating in cancer genetic research studies and that includes prominent community advocates to build trust within the community.

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