scholarly journals PROTOCOL: Education Support Services for Improving School Engagement and Academic Performance of Children and Adolescents with a Chronic Health Condition: A Systematic Review

2013 ◽  
Vol 9 (1) ◽  
pp. 1-153
Author(s):  
Michelle A. Tollit ◽  
Susan M. Sawyer ◽  
Savithiri Ratnapalan ◽  
Tony Barnett
Keyword(s):  
Systematic Review ◽  
Academic Performance ◽  
Children And Adolescents ◽  
Support Services ◽  
School Engagement ◽  
Chronic Health Condition ◽  
Health Condition ◽  
Chronic Health ◽  
Education Support

Psychosocial Risks of Chronic Health Conditions in Childhood and Adolescence

PEDIATRICS ◽  
1993 ◽  
Vol 92 (6) ◽  
pp. 876-878 ◽  
Author(s):  
Keyword(s):  
Children And Adolescents ◽  
Health Condition ◽  
Work And Family ◽  
Chronic Health Conditions ◽  
Health Conditions ◽  
Medical Attention ◽  
Childhood And Adolescence ◽  
Chronic Health ◽  
Persistent Symptoms ◽  
The Impact

Chronic health conditions affect many children and adolescents. These conditions are illnesses or impairments that are expected to last for an extended period of time and require medical attention and care that is above and beyond what would normally be expected for a child or adolescent of the same age, extensive hospitalization, or in-home health services.1 These conditions include, among others, juvenile rheumatoid arthritis, asthma, cystic fibrosis, diabetes, spina bifida, hemophilia, seizure disorders, neuromuscular disease, acquired immunodeficiency syndrome, and congenital heart diseases. Although each specific condition may be relatively or extremely rare, when they are considered together, many children and adolescents are affected. Health conditions may be characterized by their duration and their severity. Although these terms are often linked, they refer to different aspects of a health condition. A chronic condition is generally one that has lasted or is expected to last more than a defined period of time, usually 3 months or longer. Conditions vary widely in their onset, course, and duration.2 Severity refers to the impact a condition has on a child's physical, intellectual, psychological, or social functioning.3 This impact may occur as a result of persistent symptoms, required treatments, limitations of activity or mobility, or interference with school, recreation, work, and family activities. Current estimates are that between 10 and 20 million American children and adolescents have some type of chronic health condition or impairment. Most of these conditions are relatively mild and interfere little with the children's ability to participate in usual childhood activities.4 However.

scholarly journals Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis

2021 ◽  
Vol 2 ◽  
Author(s):  
Linda Nguyen ◽  
Hanae Davis ◽  
Samantha Bellefeuille ◽  
Jessica Havens ◽  
Susan M. Jack ◽  
...  
Keyword(s):  
Transition To Adulthood ◽  
Chronic Health Condition ◽  
Health Condition ◽  
General Information ◽  
Healthcare Management ◽  
Advisory Council ◽  
Inclusion Criteria ◽  
Chronic Health ◽  
Text Document ◽  
Document Review

Background: As children and adolescents with a chronic health condition (CHC) age and transition to adulthood, many will increasingly assume responsibilities for the management of their healthcare. For individuals with CHCs, family members including siblings often provide significant and varied supports. There are a range of resources in Canada to support siblings of individuals with a CHC, but these resources are not synthesized and the extent to which they relate to healthcare management remains unclear.Purpose: The purpose of this document review was to identify, describe, and synthesize the types of resources currently available to provide general information and healthcare management information about how siblings can provide support to individuals with CHCs in Canada.Methods: Print and electronic resources were systematically identified and retrieved from the websites of organizations, treatment centers, and children's hospitals that are part of Children's Healthcare Canada. Each unique resource was treated as a text document. Documents that met the following inclusion criteria were included: addressed the topic of siblings of individuals with a CHC and written in English. Data were extracted from included documents and qualitative conventional content analysis was conducted. Throughout the process of this review, we partnered with a Sibling Youth Advisory Council.Results: The systematic search yielded 1,628 non-duplicate documents, of which 163 documents met the inclusion criteria. Of the total of 163 documents, they were delivered in the following formats: 17 (10%) general informational products (e.g., booklets, videos) about a CHC and sibling relationships, 39 about support programs and workshops (24%), 34 news articles (21%) that described the roles of siblings, and 6 (3%) healthcare management informational products (e.g., toolkit, tipsheets), 31 blogs (19%) and 39 interviews (24%) with parents and siblings. In the blogs and interviews, siblings and parents described how siblings developed knowledge and skills for healthcare management, as well as their role and identity over time.Significance: This study identified that there are limited resources available about healthcare management for siblings of CHC in Canada. Resources are needed to facilitate conversations in the family about the role of siblings with healthcare management of their sibling with a CHC.

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