High risk yet invisible: conflicting narratives on social research involving children and young people, and the role of research ethics committees

2015 ◽  
Vol 41 (4) ◽  
pp. 709-729 ◽  
Author(s):  
Sarah Parsons ◽  
Chris Abbott ◽  
Lorna McKnight ◽  
Chris Davies
Keyword(s):  
High Risk ◽  
Young People ◽  
Research Ethics ◽  
Social Research ◽  
Ethics Committees ◽  
Research Ethics Committees ◽  
Children And Young People

scholarly journals Philosophers in research ethics committees—what do they think they’re doing? An empirical-ethical analysis

2021 ◽  
Author(s):  
Charlotte Gauckler
Keyword(s):  
Research Ethics ◽  
Applied Ethics ◽  
Ethics Committees ◽  
Research Ethics Committees ◽  
Structured Interviews ◽  
Discussion Section ◽  
Philosophical Perspective ◽  
Level 3 ◽  
Practical Level

AbstractResearch ethics committees in Germany usually don’t have philosophers as members and if so, only contingently, not provided for by statute. This is interesting from a philosophical perspective, assuming that ethics is a discipline of philosophy. It prompts the question what role philosophers play in those committees they can be found in. Eight qualitative semi-structured interviews were conducted to explore the self-perception of philosophers regarding their contribution to research ethics committees. The results show that the participants generally don’t view themselves as ethics experts. They are rather unanimous on the competencies they think they contribute to the committee but not as to whether those are philosophical competencies or applied ethical ones. In some cases they don’t see a big difference between their role and the role of the jurist member. In the discussion section of this paper I bring up three topics, prompted by the interviews, that need to be addressed: (1) I argue that the interviewees’ unwillingness to call themselves ethics experts might have to do with a too narrow understanding of ethics expertise. (2) I argue that the disagreement among the interviewees concerning the relationship between moral philosophy and applied ethics might be explained on a theoretical or on a practical level. (3) I argue that there is some lack of clarity concerning the relationship between ethics and law in research ethics committees and that further work needs to be done here. All three topics, I conclude, need further investigation.

scholarly journals Ethical complexities in child co-research

2017 ◽  
Vol 15 (1) ◽  
pp. 1-16 ◽  
Author(s):  
Merle Spriggs ◽  
Lynn Gillam
Keyword(s):  
Research Ethics ◽  
Research Methodology ◽  
Social Research ◽  
Ethics Committees ◽  
Research Ethics Committees ◽  
Human Research Ethics ◽  
Children’S Agency ◽  
New Findings ◽  
Need For Support ◽  
And Training

Child co-research has become popular in social research involving children. This is attributed to the emphasis on children’s rights and is seen as a way to promote children’s agency and voice. It is a way of putting into practice the philosophy, common amongst childhood researchers, that children are experts on childhood. In this article, we discuss ethical complexities of involving children as co-researchers, beginning with an analysis of the literature, then drawing on data from interviews with researchers who conduct child co-research. We identify six ethical complexities, some of which are new findings which have not been mentioned before in this context. In light of these possible ethical complexities, a key finding is for researchers to be reflexive – to reflect on how the research may affect child co-researchers and participants before the research starts. A separate overriding message that came out in responses from the researchers we interviewed was the need for support and training for child co-researchers. We conclude by providing a list of questions for reflexive researchers to ask of themselves when they use child co-research methodology. We also provide important questions for human research ethics committees to ask when they review projects using child co-research.

scholarly journals III. The role of the Research Ethics Committees in the regulation of Pharma-Sponsored studies

2019 ◽  
Vol 71 (5) ◽  
Author(s):  
Carlos A. Aguilar-Salinas ◽  
Virginia Pascual-Ramos ◽  
Juan G. Sierra-Madero ◽  
Alvar Loria-Acereto ◽  
Elena Zambrano-González ◽  
...  
Keyword(s):  
Research Ethics ◽  
Ethics Committees ◽  
Research Ethics Committees

Meaningful Consent to Participate in Social Research on the Part of People under the Age of Eighteen

2006 ◽  
Vol 2 (1) ◽  
pp. 19-24 ◽  
Author(s):  
Brian Williams
Keyword(s):  
Young People ◽  
Social Research ◽  
Ethics Committees ◽  
Social Scientists ◽  
Children And Young People ◽  
Case Examples ◽  
Research With Children ◽  
Differences Of Opinion ◽  
Legal Position ◽  
Ethics Of Research

This article describes changes in conventions among social scientists undertaking research with children and young people over the last decade, and discusses the legal position and aspects of the ethics of research with people under eighteen. It includes three brief case examples which illustrate the nature of the issues involved and ethics committees' responses to them, and concludes that although differences of opinion remain, a consensus is emerging about the need to let young people speak for themselves, subject to appropriate safeguards.

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