scholarly journals Validity of the severe impairment battery, brief praxis test, and dementia questionnaire for persons with intellectual disabilities in differentiating dementia status in individuals with Down syndrome

2020 ◽  
Vol 16 (S6) ◽  
Author(s):  
Elizabeth Wallace ◽  
Jordan Harp ◽  
Kathryn L. Pelt ◽  
Lisa Koehl ◽  
Allison M. Caban‐Holt ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Intellectual Disabilities ◽  
Severe Impairment Battery ◽  
Severe Impairment

scholarly journals Rates, causes, place and predictors of mortality in adults with intellectual disabilities with and without Down syndrome: cohort study with record linkage

BMJ Open ◽  
2020 ◽  
Vol 10 (5) ◽  
pp. e036465 ◽  
Author(s):  
Sally-Ann Cooper ◽  
Linda Allan ◽  
Nicola Greenlaw ◽  
Paula McSkimming ◽  
Adam Jasilek ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Cohort Study ◽  
Intellectual Disabilities ◽  
Mortality Risk ◽  
Record Linkage ◽  
Causes Of Death ◽  
Percutaneous Endoscopic Gastrostomy Tube ◽  
Clinical Predictors ◽  
Endoscopic Gastrostomy ◽  
Adults With Intellectual Disabilities

ObjectivesTo investigate mortality in adults with intellectual disabilities: rates, causes, place, demographic and clinical predictors.DesignCohort study with record linkage to death data.SettingGeneral community.Participants961/1023 (94%) adults (16–83 years; mean=44.1 years; 54.6% male) with intellectual disabilities, clinically examined in 2001–2004; subsequently record-linked to their National Health Service number, allowing linkage to death certificate data, 2018.Outcome measuresStandardised mortality ratios (SMRs), underlying and all contributing causes of death, avoidable deaths, place, and demographic and clinical predictors of death.Results294/961 (30.6%) had died; 64/179 (35.8%) with Down syndrome, 230/783 (29.4%) without Down syndrome. SMR overall=2.24 (1.98, 2.49); Down syndrome adults=5.28 (3.98, 6.57), adults without Down syndrome=1.93 (1.68, 2.18); male=1.69 (1.42, 1.95), female=3.48 (2.90, 4.06). SMRs decreased as age increased. More severe intellectual disabilities increased SMR, but ability was not retained in the multivariable model. SMRs were higher for most International Statistical Classification of Diseases and Related Health Problems, 10th Revision chapters. For adults without Down syndrome, aspiration/reflux/choking and respiratory infection were the the most common underlying causes of mortality; for Down syndrome adults ‘Down syndrome’, and dementia were most common. Amenable deaths (29.8%) were double that in the general population (14%); 60.3% died in hospital. Mortality risk related to percutaneous endoscopic gastrostomy/tube fed, Down syndrome, diabetes, lower respiratory tract infection at cohort-entry, smoking, epilepsy, hearing impairment, increasing number of prescribed drugs, increasing age. Bowel incontinence reduced mortality risk.ConclusionsAdults with intellectual disabilities with and without Down syndrome have different SMRs and causes of death which should be separately reported. Both die younger, from different causes than other people. Some mortality risks are similar to other people, with earlier mortality reflecting more multimorbidity; amenable deaths are also common. This should inform actions to reduce early mortality, for example, training to avoid aspiration/choking, pain identification to address problems before they are advanced, and reasonable adjustments to improve healthcare quality.

scholarly journals An Examination of the Severe Impairment Battery as a Measure of Cognitive Decline in Clients with Down's Syndrome

2002 ◽  
Vol 6 (1) ◽  
pp. 89-96 ◽  
Author(s):  
Karen McKenzie ◽  
Cyan Harte ◽  
Elaine Sinclair ◽  
Edith Matheson ◽  
Shona Patrick ◽  
...  
Keyword(s):  
Cognitive Decline ◽  
Down's Syndrome ◽  
Down’S Syndrome ◽  
Severe Impairment Battery ◽  
Severe Impairment
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