The role of qualitative research in medical genetics: Listening to the voices of our patients

2008 ◽  
Vol 146A (24) ◽  
pp. 3132-3135 ◽  
Author(s):  
Barbara A. Bernhardt
Keyword(s):  
Qualitative Research ◽  
Medical Genetics

Moving Beyond Themes

2013 ◽  
Vol 2 (2) ◽  
pp. 213-227 ◽  
Author(s):  
Kristen Lucas ◽  
Suzy D’Enbeau
Keyword(s):  
Qualitative Research ◽  
Research Methods ◽  
Qualitative Research Methods

Teaching novice qualitative researchers how to move beyond first-cycle themes is a challenging endeavor. In this essay, we articulate four harmful habits that tend to impede our success: moving too quickly, privileging product over process, providing cursory coverage of analytic technique and artistry, and overlooking the role of synthesis in qualitative research. As a step toward replacing harmful habits with more healthy ones, we offer a number of practical suggestions for reimagining the qualitative research methods curriculum.

Perempuan dan Liminalitas dalam Tradisi Perkawinan Adat di Timor Tengah Selatan

2020 ◽  
Vol 6 (1) ◽  
pp. 114
Author(s):  
Marsel Eliaser Liunokas
Keyword(s):  
Qualitative Research ◽  
Research Method ◽  
Literature Study ◽  
Qualitative Research Method ◽  
South Central ◽  
A Value ◽  
Traditional Marriage ◽  
The Village ◽  
As If

Timorese culture is patriarchal in that men are more dominant than women. As if women were not considered in traditional rituals so that an understanding was built that valued women lower than men. However, in contrast to the article to be studied, this would like to see the priority of women’s roles in traditional marriages in Belle village, South Central Timor. The role of women wiil be seen from giving awards to their parents called puah mnasi manu mnasi. This paper aims to look at the meaning of the rituals of puah mnasi maun mnasi and the role and strengths that women have in traditional marriage rituals in the village of Belle, South Central Timor. The method used for this research is a qualitative research method using interview techniques with a number of people in the Belle Villa community and literature study to strengthen this writing. Based on the data obtained this paper shows that the adat rituals of puah mnasi manu mnasi provide a value that can be learned, namely respect for women, togetherness between the two families, and brotherhood that is intertwined due to customary marital affrairs.

Minangkabau Language Maintenance by the Association of Sei Jaring Community in Medan

2014 ◽  
Vol 11 (2) ◽  
Author(s):  
Yenita Uswar ◽  
Amrin Saragih ◽  
Tina Mariany Arifin
Keyword(s):  
Qualitative Research ◽  
Data Analysis ◽  
Language Maintenance ◽  
Young Generation ◽  
Third Generation ◽  
The Third ◽  
Danger Level

The objectives of this qualitative research were (1) to identify the factors that affect the Minangkabau language (ML) maintenance in Medan, (2) to discover the parents’ efforts in maintaining ML in Medan and (3) to find out the reason why the speakers have to maintain ML. The souree of data is the nembers of the Association of Sei Jaring Community (Ikatan Warga Sei Jaring: IWS) in Medan. The sample was 10 families including 10 parents and their children. The instruments of this study are a questionnaire and an interview. The questionnaire was used to answer the factors affected the maintenance of ML and how factors affected the maintenance of ML. The interview was used to discover the influence why Minangkabau’s people have to maintain ML. There are four factors in ML maintenance, the parents’ role, the role of family, the intramarriage and homeland visits. After distributing questionnaire and did some interviews it is found that IWS especially for the third generation (children) has the danger level in ML when they communicate to each other. Meanwhile, the data analysis also shows that both fathers and mothers communicate to each other with ML. This condition occurred because of the influence of the environment. Parents have to keep communication and teaching Minangkabau language continuously to their children. so, the young generation can keep the existence of ML for their future. Keywords: Minangkabau Language Maintenance, parents’ efforts, the young generation.

Communication in medical genetics and patient autonomy

2020 ◽  
pp. 17-18
Author(s):  
С.В. Шевченко ◽  
С.В. Лаврентьева
Keyword(s):  
Patient Autonomy ◽  
Medical Genetics ◽  
Legal Problems

В свете коммуникативных особенностей медико-генетической консультации рассматривается два типа этико-правовых проблем, касающихся автономии пациента. Показана роль первичной консультации в их решении. In this paper we considered two types of ethical and legal problems regarding patient autonomy in perspective of the communicative features of the medical genetics. Also, this paper shows the role of the primary consultation in solution of this problems.

Perubahan Pemaknaan Peran Perempuan Muslim dalam Pengasuhan Anak di Pedesaan Kawasan Prambanan

2019 ◽  
Author(s):  
Muryanti Muryanti
Keyword(s):  
Qualitative Research ◽  
Public Sector ◽  
Urban Area ◽  
Rural Area ◽  
Day Care ◽  
Rural Society ◽  
Muslim Women ◽  
Economic Reason ◽  
Domestic Worker

Muslim women worked in public sector in all variant jobs not only in urban area, but also in rural area phenomena. They had been doing it because of freedom, education, solidarity, or economic reason. When Muslim women worked in public sector, the new problems were appears, about care of children in the house as domestic work. These phenomenons were related to Indonesian’s culture and Islam perspective that believed the jobs of care of children was women burden. This article described about changing of meaning the role of Muslim women in the caring children. There were many institutions replaced care children, like day care etc. This article used qualitative research with observation and interview. The result of research, there were changing care of children in rural society. Before 2000, Muslim women were depend on family (extend family), neighbors, domestic worker, but in 2013, they prefered care of their children in the new institution (day care) because this institution gave early education to the child and save. But, majority Muslim women in this research believed that domestic works are their jobs.

Studying Globalization at Home

2017 ◽  
Author(s):  
Sunil Bhatia
Keyword(s):  
Qualitative Research ◽  
Lived Experience ◽  
Participant Observation ◽  
Cultural Narratives ◽  
Cultural Codes ◽  
Qualitative Approaches ◽  
Interpretive Methods ◽  
Significant Interest ◽  
At Home

This chapter documents the ethnographic context in which the interviews and participant observation were conducted for the study presented in this book. It also situates the study within the context of narrative inquiry and develops arguments about the role of self-reflexivity in doing ethnography at “home” and producing qualitative forms of knowledge that are based on personal, experiential, and cultural narratives. It is argued that there is significant interest in the adoption of interpretive methods or qualitative research in psychology. The qualitative approaches in psychology present a provocative and complex vision of how the key concepts related to describing and interpreting cultural codes, social practices, and lived experience of others are suffused with both poetical and political elements of culture. The epistemological and ontological assumptions undergirding qualitative research reflect multiple “practices of inquiry” and methodologies that have different orientations, assumptions, values, ideologies, and criterion of excellence.

scholarly journals How Does Sustainability Affect Consumer Choices in the Fashion Industry?

Resources ◽  
2021 ◽  
Vol 10 (4) ◽  
pp. 38
Author(s):  
Leandro Pereira ◽  
Rita Carvalho ◽  
Álvaro Dias ◽  
Renato Costa ◽  
Nelson António
Keyword(s):  
Qualitative Research ◽  
Research Methodology ◽  
Great Majority ◽  
Fashion Industry ◽  
Qualitative Research Methodology ◽  
The World ◽  
Consumer Perspectives ◽  
Immense Potential ◽  
General Perspective

The fashion industry being one of the most polluting industries in the world means that it is an industry with an immense potential for change. Consumers are central and are closely intertwined with how companies act. This research reflects consumer perspectives and practices towards the topic of sustainability implemented in the fashion industry. The relevance of sustainability in the fashion industry and the key role of consumers in its implementation are undeniable and confirmed by consumers in a representation of general awareness and concern, despite not always being translated into actual practices. A qualitative research methodology, followed by a set of interviews conducted with consumers, revealed that the great majority are implementing a variety of practices when making their buying choices towards fashion items. Barriers such as lack of education, information, knowledge and transparency were identified, and this aspect was shared by consumers as a reason why they are not motivated to make more conscious decisions. Companies should educate consumers from a general perspective and focus on the group of consumers that are not implementing sustainability in the fashion industry in their buying choices, as they represent the potential for the future.

Conceptualizing Qualitative Data

2021 ◽  
pp. 104973232110249
Author(s):  
Alex Broom
Keyword(s):  
Qualitative Research ◽  
Qualitative Data ◽  
Theory Development ◽  
Wide Range

Qualitative research is practiced across diverse disciplines and contexts, and this produces a wide range of perspectives on the role of conceptualization and theory development. It also results in a hugely varied mix of submissions to qualitative research journals in terms of their level of conceptual elevation. This editorial explores why we conceptualize qualitative data, and some common challenges evident in current qualitative practice.

Phylogenetic approach in medical genetics. Evidence for deleterious role of ND5 gene defect in Leigh patients

Mitochondrion ◽  
2006 ◽  
Vol 6 (5) ◽  
pp. 19-20
Author(s):  
S. Zhadanov ◽  
E. Grechanina ◽  
Yu. Grechanina ◽  
V. Gusar ◽  
N. Fedoseeva ◽  
...  
Keyword(s):  
Medical Genetics ◽  
Gene Defect ◽  
Nd5 Gene
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