“Holding your breath”: Interviews with young people who have undergone predictive genetic testing for Huntington disease

Rony E. Duncan; Lynn Gillam; Julian Savulescu; Robert Williamson; John G. Rogers; Martin B. Delatycki

doi:10.1002/ajmg.a.31720

“Holding your breath”: Interviews with young people who have undergone predictive genetic testing for Huntington disease

American Journal of Medical Genetics Part A ◽

10.1002/ajmg.a.31720 ◽

2007 ◽

Vol 143A (17) ◽

pp. 1984-1989 ◽

Cited By ~ 38

Author(s):

Rony E. Duncan ◽

Lynn Gillam ◽

Julian Savulescu ◽

Robert Williamson ◽

John G. Rogers ◽

...

Keyword(s):

Genetic Testing ◽

Young People ◽

Huntington Disease ◽

Predictive Genetic Testing

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“You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)

American Journal of Medical Genetics Part C Seminars in Medical Genetics ◽

10.1002/ajmg.c.30158 ◽

2008 ◽

Vol 148C (1) ◽

pp. 47-55 ◽

Cited By ~ 63

Author(s):

Rony E. Duncan ◽

Lynn Gillam ◽

Julian Savulescu ◽

Robert Williamson ◽

John G. Rogers ◽

...

Keyword(s):

Genetic Testing ◽

Young People ◽

Familial Adenomatous Polyposis ◽

Huntington Disease ◽

Predictive Genetic Testing ◽

Adenomatous Polyposis

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Predictive genetic testing of adolescents for Huntington disease: A question of autonomy and harm

American Journal of Medical Genetics Part A ◽

10.1002/ajmg.a.32477 ◽

2008 ◽

Vol 146A (18) ◽

pp. 2443-2446 ◽

Cited By ~ 7

Author(s):

Fiona H. Richards

Keyword(s):

Genetic Testing ◽

Huntington Disease ◽

Predictive Genetic Testing

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Predictive Genetic Testing: The Huntington Disease Model

Encyclopedia of Life Sciences ◽

10.1002/9780470015902.a0005617.pub2 ◽

2009 ◽

Author(s):

Aad Tibben ◽

Emilia Bijlsma

Keyword(s):

Genetic Testing ◽

Huntington Disease ◽

Disease Model ◽

Predictive Genetic Testing

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The highly anxious individual presenting for Huntington disease-predictive genetic testing: the psychiatrist's role in assessment and counseling

Huntington Disease - Handbook of Clinical Neurology ◽

10.1016/b978-0-12-801893-4.00008-0 ◽

2017 ◽

pp. 99-105 ◽

Cited By ~ 1

Author(s):

Mark Groves

Keyword(s):

Genetic Testing ◽

Huntington Disease ◽

Predictive Genetic Testing ◽

Anxious Individual

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The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis

Familial Cancer ◽

10.1007/s10689-009-9294-0 ◽

2009 ◽

Vol 9 (1) ◽

pp. 27-35 ◽

Cited By ~ 18

Author(s):

Rony E. Duncan ◽

Lynn Gillam ◽

Julian Savulescu ◽

Robert Williamson ◽

John G. Rogers ◽

...

Keyword(s):

Genetic Testing ◽

Young People ◽

Familial Adenomatous Polyposis ◽

Developmentally Appropriate ◽

Predictive Genetic Testing ◽

Adenomatous Polyposis ◽

Appropriate Care

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Predictive Genetic Testing: The Huntington Disease Model

Encyclopedia of Life Sciences ◽

10.1002/9780470015902.a0005617.pub3 ◽

2016 ◽

pp. 1-6

Author(s):

Aad Tibben ◽

Emilia Bijlsma

Keyword(s):

Genetic Testing ◽

Huntington Disease ◽

Disease Model ◽

Predictive Genetic Testing

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Letter to the Editor in response to Duncan RE and Delatycki MB. Predictive genetic testing in young people for adult-onset conditions: Where is the empirical evidence?′

Clinical Genetics ◽

10.1111/j.1399-0004.2006.0609a.x ◽

2006 ◽

Vol 69 (5) ◽

pp. 450-451 ◽

Cited By ~ 1

Author(s):

F Richards

Keyword(s):

Genetic Testing ◽

Young People ◽

Empirical Evidence ◽

Predictive Genetic Testing ◽

Adult Onset ◽

Letter To The Editor

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Predictive genetic testing in young people: When is it appropriate?

Journal of Paediatrics and Child Health ◽

10.1111/j.1440-1754.2004.00481.x ◽

2004 ◽

Vol 40 (11) ◽

pp. 593-595 ◽

Cited By ~ 20

Author(s):

RE Duncan

Keyword(s):

Genetic Testing ◽

Young People ◽

Predictive Genetic Testing

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Huntington Disease: Predictive Genetic Testing

Encyclopedia of Life Sciences ◽

10.1002/9780470015902.a0005633 ◽

2006 ◽

Author(s):

David Craufurd

Keyword(s):

Genetic Testing ◽

Huntington Disease ◽

Predictive Genetic Testing

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Importance of psychiatric examination in predictive genetic testing for Huntington disease

Neurologia i Neurochirurgia Polska ◽

10.5114/ninp.2013.39070 ◽

2013 ◽

Vol 47 (6) ◽

pp. 534-541 ◽

Cited By ~ 2

Author(s):

Tereza Uhrová ◽

Jana Židovská ◽

Jana Koblihová ◽

Jiří Klempíř ◽

Veronika Majerová ◽

...

Keyword(s):

Genetic Testing ◽

Huntington Disease ◽

Predictive Genetic Testing ◽

Psychiatric Examination

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