Patient advocate on Norcross bill: OTPs still involved

2021 ◽  
Vol 33 (47) ◽  
pp. 6-6
Author(s):  
Alison Knopf
Keyword(s):  
Patient Advocate

scholarly journals A qualitative evaluation of a nurse-led pre-operative stoma education program for bladder cancer patients

2021 ◽  
Author(s):  
Elizabeth Marie Wulff-Burchfield ◽  
Maryellen Potts ◽  
Katherine Glavin ◽  
Moben Mirza
Keyword(s):  
Bladder Cancer ◽  
Cancer Patients ◽  
Education Program ◽  
Management Practices ◽  
Self Management ◽  
Invasive Bladder Cancer ◽  
Educational Approach ◽  
Muscle Invasive Bladder Cancer ◽  
Patient Advocate ◽  
Muscle Invasive

Abstract Introduction Radical cystectomy remains the standard of care for muscle-invasive bladder cancer and high-risk non-muscle-invasive bladder cancer. Postoperative ostomy education is common, but patients struggle to maintain self-management practices. A preoperative ostomy education program was developed to meet this need, and we conducted a qualitative study with participating patient-caregiver dyads to evaluate the educational and psychosocial impacts of the program and examine alignment with program objectives. Materials and methods A qualitative descriptive study was conducted utilizing a thematic analysis approach. Sixteen patients, eighteen caregivers, and three program educators completed semi-structured interviews from 3 to 18 months post the program. Interviews were audio-recorded and transcribed. Thirteen end-of-course surveys from the initial educational program cohort were transcribed, coded, analyzed; this data was triangulated with patient, caregiver, and educator interviews. Results Analysis uncovered three themes: (1) Patient and caregiver motivation to attend the program, (2) attitudes toward this life-changing event, and (3) education. For theme 1, patients and caregivers cited lack of knowledge, fear, and concern about ostomy surgery and care as motivation. For theme 2, there were a variety of attitudes toward the ostomy, ranging from avoidance to acceptance, and a similar breadth of attitudes toward caregiving, with some patients and caregivers describing ongoing dependence and other patients seeking complete independence. For theme 3, the interactive curriculum was determined to be effective, and the patient advocate was cited as the most memorable program component. Conclusions A formal preoperative ostomy education program employing an interactive educational approach and featuring a patient advocate can prepare bladder cancer patients and caregivers for ostomy self-management and post-ostomy life.

scholarly journals Being a Patient Representative Is More Work Than Being a Patient Advocate—Done Right, It Is Also Likely to Be More Effective

2021 ◽  
Vol 28 (2) ◽  
pp. 1017-1019
Author(s):  
Richard Wassersug
Keyword(s):  
Health Outcomes ◽  
Background Knowledge ◽  
Positive Influence ◽  
Patient Advocate ◽  
Different Types ◽  
Health Related ◽  
Patient Representative

For a patient to be effective as a “patient representative” within a health-related organization, work and more than just accepting an honorific title is required. I argue that for a patient to be most effective as a patient representative requires different types of background knowledge and commitment than being a “patient advocate”. Patients need to be cautious about how, when, and where they take on an official role of either an “advocate” or “representative”, if they truly want to be a positive influence on health outcomes.

Understanding the nurseʼs role as a patient advocate

Nursing ◽  
2018 ◽  
Vol 48 (4) ◽  
pp. 55-58 ◽  
Author(s):  
Lois Gerber
Keyword(s):  
Patient Advocate

Hospice volunteer as patient advocate: A trait approach

2010 ◽  
Vol 8 (2) ◽  
pp. 159-167 ◽  
Author(s):  
Carol A. Savery ◽  
Nichole Egbert
Keyword(s):  
Locus Of Control ◽  
Patient Advocacy ◽  
Patient Rights ◽  
Patient Centered ◽  
Internal Locus ◽  
Internal Locus Of Control ◽  
Patient Advocate ◽  
Hospice Volunteers ◽  
Patient Advocates ◽  
Additional Support

AbstractObjective:The purpose of this study is to examine traits of hospice volunteers that facilitate their success in this informal caregiving role, with the larger goal of alleviating the family caregiver burden and providing additional support to the hospice patient. To achieve this goal, a new scale was developed to tap into how hospice volunteers view their patient advocacy role.Method:Participants were 136 trained hospice volunteers from the Midwest who had direct contact with hospice patients. Volunteers mailed anonymous surveys that included measures of argumentativeness, locus of control, attitudes toward patient advocacy, and key demographic items. A new scale was developed to measure patient advocacy by hospice volunteers called the Hospice Volunteer as Patient Advocate.Results:Submitting this scale to exploratory factor analysis, two factors emerged: duty as patient advocate and support of patient rights. After performing a multiple regression analysis, results showed that female volunteers who were high in internal locus of control were more likely to perceive that volunteers have a duty as patient advocates. Younger volunteers with more years of volunteer experience, higher levels of internal locus of control, and lower external locus of control were more likely to support patient rights.Significance of results:The findings of this study could be used to formalize hospice volunteers' role as patient advocates, thus better utilizing them as committed, caring communicators and improving patient-centered care at end-of-life.

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