Implementation of rheumatology health care transition processes and adaptations to systems under stress: a mixed methods study

2021 ◽  
Author(s):  
Joyce C. Chang ◽  
Cora Sears ◽  
Nicole Bitencourt ◽  
Rosemary Peterson ◽  
Risa Alperin ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Care Transition ◽  
Transition Processes ◽  
Health Care Transition

Differences in Health Care Transition Views, Practices, and Barriers Amongst North American Pediatric Rheumatology Clinicians from 2010 to 2018

2021 ◽  
pp. jrheum.200196 ◽  
Author(s):  
Kiana Johnson ◽  
Cuoghi Edens ◽  
Rebecca E. Sadun ◽  
Peter Chira ◽  
Aimee O. Hersh ◽  
...  
Keyword(s):  
Health Care ◽  
Pediatric Rheumatology ◽  
Primary Care Providers ◽  
Care Transition ◽  
Care Providers ◽  
Transition Processes ◽  
Health Care Transition ◽  
Healthcare Transition ◽  
Transition Clinic ◽  
Current Assessment

Objective Since 2010, the rheumatology community has developed guidelines and tools to improve healthcare transition . In this study we aimed to compare current transition practices and beliefs among Childhood Arthritis and Rheumatology Research Alliance (CARRA) rheumatology providers with transition practices from a 2010 provider survey published by Chira et al. Methods In 2018, CARRA members completed a 25-item online survey about healthcare transition. Got Transition’s™ Current Assessment of Health Care Transition Activities was used to measure clinical transition processes on a scale of 1 (basic) to 4 (comprehensive). Bivariate analyses were used to compare 2010 and 2018 survey findings. Results Over half of CARRA members completed the survey (217/396), including pediatric rheumatologists, adult- and pediatric-trained rheumatologists, pediatric rheumatology fellows, and advanced practice providers. The most common target age to begin transition planning was 15-17 (49%). Most providers transferred patients prior to age 21 or older (75%). Few providers used the American College of Rheumatology transition tools (31%) or have a dedicated transition clinic (23%). Only 17% had a transition policy in place, and 63% did not consistently address healthcare transition with patients. When compared to the 2010 survey, improvement was noted in three of twelve transition barriers: availability of adult primary care providers, availability of adult rheumatologists, and pediatric staff transition knowledge and skills (p<0.001 for each). Nevertheless, the mean Current Assessment score was less than 2 for each measurement. Conclusion This study demonstrates improvement in certain transition barriers and practices since 2010, although implementation of structured transition processes remains inconsistent.

Beliefs About Health Care Transition in Pediatric Thoracic Organ Transplant

2010 ◽  
Author(s):  
Cindy L. Buchanan ◽  
Debra Lefkowitz ◽  
Karen McCandless ◽  
Samuel Goldfarb
Keyword(s):  
Health Care ◽  
Organ Transplant ◽  
Care Transition ◽  
Health Care Transition ◽  
Thoracic Organ

Health-care Transition: A Vital Part of Care, Growth, and Change for Pediatric Patients

2021 ◽  
Vol 42 (12) ◽  
pp. 684-693
Author(s):  
Lynn F. Davidson ◽  
Maya H. Doyle
Keyword(s):  
Health Care ◽  
Transition Process ◽  
Smooth Transition ◽  
Pediatric Care ◽  
Care Transition ◽  
Care Needs ◽  
Adult Care ◽  
Health Care Transition ◽  
Care Gaps ◽  
Growth And Change

Preparing all youth for the transition to adult-oriented care, adulthood itself, and a greater responsibility for their own health and health-care is an essential part of pediatric care. This process, typically described as health-care transition, can occur throughout ongoing pediatric health-care to prepare patients for transfer to an adult clinician and integration into adult care. Gaps remain in practice and in outcomes research regarding health-care transition. This review discusses recent literature, details best practices, and recommends guidance and tools to assist pediatric clinicians in providing a smooth transition process and a successful transfer to adult care for youth with and without special health-care needs.

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