scholarly journals Addressing Health Literacy Needs in Rheumatology: Which Patient Health Literacy Profiles Need the Attention of Health Professionals?

2020 ◽  
Vol 73 (1) ◽  
pp. 100-109
Author(s):  
Mark M. Bakker ◽  
Polina Putrik ◽  
Jany Rademakers ◽  
Mart Laar ◽  
Harald Vonkeman ◽  
...  
Keyword(s):  
Health Literacy ◽  
Health Professionals ◽  
Patient Health ◽  
Literacy Profiles

scholarly journals OP0257-PARE USING PATIENT HEALTH LITERACY PROFILES TO IDENTIFY SOLUTIONS TO CHALLENGES FACED IN RHEUMATOLOGY CARE

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 162.2-162
Author(s):  
M. Bakker ◽  
P. Putrik ◽  
J. Rademakers ◽  
M. Van de Laar ◽  
H. Vonkeman ◽  
...  
Keyword(s):  
Health Literacy ◽  
The Netherlands ◽  
Health System ◽  
Demographic Data ◽  
Family Doctor ◽  
List Type ◽  
Research Support ◽  
Score Distribution ◽  
Patient Health ◽  
Literacy Profiles

Background:The prevalence of limited health literacy (i.e. cognitive and social resources of individuals to access, understand and apply health information to promote and maintain good health) in the Netherlands is estimated to be over 36% [1]. Access to and outcomes of rheumatological care may be compromised by limited patient health literacy, yet little is known about how to address this, thus action is required. As influencing individual patients’ health literacy in the rheumatology context is often unrealistic, it is paramount for the health system to be tailored to the health literacy needs of its patients. The OPtimising HEalth LIteracy and Access (Ophelia) process offers a method to inform system change [2].Objectives:Following the Ophelia approach:a. Identify health literacy profiles reflecting strengths and weaknesses of outpatients with RA, SpA and gout.b. Use the health literacy profiles to facilitate discussions on challenges for patients and professionals in rheumatological care and identify possible solutions the health system could offer to address these challenges.Methods:Patients with RA, SpA and gout attending outpatient clinics in three centres in the Netherlands completed the Health Literacy Questionnaire (HLQ) and questions on socio-demographic and health-related characteristics. Hierarchical cluster analysis using Ward’s method identified clusters based on the nine HLQ domains. Three researchers jointly examined 24 cluster solutions for meaningfulness by interpreting HLQ domain scores and patient characteristics. Meaningful clusters were translated into health literacy profiles using HLQ patterns and demographic data. A patient research partner confirmed the identified profiles. Patient vignettes were designed by combining cluster analyses results with qualitative patient interviews. The vignettes were used in two two-hour co-design workshops with rheumatologists and nurses to discuss their perspective on health literacy-related challenges for patients and professionals, and generate ideas on how to address these challenges.Results:In total, 895 patients participated: 49% female, mean age 61 years (±13.0), 25% lived alone, 18% had a migrant background, 6.6% did not speak Dutch at home and 51% had low levels of education. Figure 1 shows a heat map of identified health literacy profiles, displaying the score distribution per profile across nine health literacy domains. Figure 2 shows an excerpt of a patient vignette, describing challenges for a patient with profile number 9. The workshops were attended by 7 and 14 nurses and rheumatologists. Proposed solutions included health literacy communication training for professionals, developing and improving (visual) patient information materials, peer support for patients through patient associations or group consultations, a clear referral system for patients who need additional guidance by a nurse, social worker, lifestyle coach, pharmacist or family doctor, and more time with rheumatology nurses for target populations. Moreover, several system adaptations to the clinic, such as a central desk for all patient appointments, were proposed.Conclusion:This study identified several distinct health literacy profiles of patients with rheumatic conditions. Engaging with health professionals in co-design workshops led to numerous bottom-up ideas to improve care. Next steps include co-design workshops with patients, followed by prioritising and testing proposed interventions.References:[1]Heijmans M. et al. Health Literacy in the Netherlands. Utrecht: Nivel 2018[2]Batterham R. et al. BMC Public Health 2014, 14:694Disclosure of Interests:Mark Bakker: None declared, Polina Putrik: None declared, Jany Rademakers Speakers bureau: In March 2017, Prof. Dr. Rademakers was invited to speak about health literacy at the “Heuvellanddagen” Conference, hosted by Janssen-Cilag., Mart van de Laar Consultant of: Sanofi Genzyme, Speakers bureau: Sanofi Genzyme, Harald Vonkeman: None declared, Marc R Kok Grant/research support from: BMS and Novartis, Consultant of: Novartis and Galapagos, Hanneke Voorneveld: None declared, Sofia Ramiro Grant/research support from: MSD, Consultant of: Abbvie, Lilly, Novartis, Sanofi Genzyme, Speakers bureau: Lilly, MSD, Novartis, Maarten de Wit Grant/research support from: Dr. de Wit reports personal fees from Ely Lilly, 2019, personal fees from Celgene, 2019, personal fees from Pfizer, 2019, personal fees from Janssen-Cilag, 2017, outside the submitted work., Consultant of: Dr. de Wit reports personal fees from Ely Lilly, 2019, personal fees from Celgene, 2019, personal fees from Pfizer, 2019, personal fees from Janssen-Cilag, 2017, outside the submitted work., Speakers bureau: Dr. de Wit reports personal fees from Ely Lilly, 2019, personal fees from Celgene, 2019, personal fees from Pfizer, 2019, personal fees from Janssen-Cilag, 2017, outside the submitted work., Richard Osborne Consultant of: Prof. Osborne is a paid consultant for pharma in the field of influenza and related infectious diseases., Roy Batterham: None declared, Rachelle Buchbinder: None declared, Annelies Boonen Grant/research support from: AbbVie, Consultant of: Galapagos, Lilly (all paid to the department)

Importance of Medication Reconciliation as a Strategy for Health Literacy

2022 ◽  
pp. 224-237
Author(s):  
José Manuel Feliz ◽  
Marta Barroca
Keyword(s):  
Health Literacy ◽  
Communication Skills ◽  
Health Professionals ◽  
Medication Reconciliation ◽  
Drug Regimen ◽  
Communication Model ◽  
Professional Relationship ◽  
Patient Health ◽  
Model Technique

Health literacy depends on communication skills of health professionals. Assertiveness, clarity, and positivity (ACP) are a communication model/technique very useful to improve the patient-health professional relationship, adherence to treatment, health literacy, and quality of life. This model can be used in medication reconciliation (MR) – the identification of the most precise list of medication that a patient has been taking and should take, which requires a multidisciplinary participation and a better communication between health professionals and between them and the patient. When the guidance from healthcare professionals is clear and effective, patients and caregivers are more compliant to the recommended drug regimen, resulting in better health outcomes.

Toward a Better Understanding of Patient Health Literacy: A Focus on the Skills Patients Need to Find Health Information

2016 ◽  
Vol 27 (8) ◽  
pp. 1160-1176 ◽  
Author(s):  
Sara Champlin ◽  
Michael Mackert ◽  
Elizabeth M. Glowacki ◽  
Erin E. Donovan
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Health Professionals ◽  
Spatial Navigation ◽  
Online Search ◽  
Literacy Assessments ◽  
Patient Health ◽  
Definition Of Health ◽  
Definition Of ◽  
Improve Patient

While many health literacy assessments exist, this area of research lacks an instrument that isolates and reflects the four components driving this concept (abilities to find, understand, use, and communicate about health information). The purpose of this study was to determine what abilities comprise the first component, how a patient finds health information. Low ( n = 13) and adequate ( n = 14) health literacy patients, and health professionals ( n = 10) described their experiences when looking for health information and the skills they employed to complete these tasks. Major skills/themes elicited included knowing when to search, credibility assessments, finding text and numerical information, interpersonal seeking, technology and online search, and spatial navigation. Findings from this study suggest that each of the dimensions included in the definition of health literacy warrants specific attention and assessment. Given identification of the skills comprising each dimension, interventions targeting deficits across health literacy dimensions could be developed to improve patient health.

Māori Research(er) in Three Poems

2018 ◽  
Vol 2 (1) ◽  
pp. 35
Author(s):  
Jacquie Kidd
Keyword(s):  
Palliative Care ◽  
Health Literacy ◽  
Cultural Identity ◽  
Focus Groups ◽  
Health Professionals ◽  
Bell Hooks ◽  
Face To Face ◽  
The Third ◽  
Ruth Behar ◽  
Seeking Help

These three poems re-present the findings from a research project that took place in 2013 (Kidd et al. 2018, Kidd et al. 2014). The research explored what health literacy meant for Māori patients and whānau when they accessed palliative care. Through face-to-face interviews and focus groups we engaged with 81 people including patients, whānau, bereaved loved ones, support workers and health professionals. The poems are composite, written to bring some of our themes to life. The first poem is titled Aue. This is a Māori lament that aligns to English words such as ‘oh no’, or ‘arrgh’, or ‘awww’. Each stanza of the poem re-presents some of the stories we heard throughout the research. The second poem is called Tikanga. This is a Māori concept that encompasses customs, traditions and protocols. There are tikanga rituals and processes that guide all aspects of life, death, and relationships. This poem was inspired by an elderly man who explained that he would avoid seeking help from a hospice because ‘they leave tikanga at the door at those places’. His choice was to bear his pain bravely, with pride, within his cultural identity. The third poem is called ‘People Like Me’. This is an autoethnographical reflection of what I experienced as a researcher which draws on the work of scholars such as bell hooks (1984), Laurel Richardson (1997) and Ruth Behar (1996). These and many other authors encourage researchers to use frustration and anger to inform our writing; to use our tears to fuel our need to publish our research.

scholarly journals Understanding disadvantaged adolescents’ perception of health literacy through a systematic development of peer vignettes

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Hannah R. Goss ◽  
Clare McDermott ◽  
Laura Hickey ◽  
Johann Issartel ◽  
Sarah Meegan ◽  
...  
Keyword(s):  
Health Literacy ◽  
Young People ◽  
Research Methods ◽  
Health Behaviours ◽  
Potential Health ◽  
Socially Disadvantaged ◽  
Unhealthy Behaviour ◽  
Health Related ◽  
Literacy Profiles ◽  
Improve Health

Abstract Background Adolescence represents a crucial phase of life where health behaviours, attitudes and social determinants can have lasting impacts on health quality across the life course. Unhealthy behaviour in young people is generally more common in low socioeconomic groups. Nevertheless, all adolescents should have a fair opportunity to attain their full health potential. Health literacy is positioned as a potential mediating factor to improve health, but research regarding health literacy in adolescents and socially disadvantaged populations is limited. As part of Phase one of the Ophelia (OPtimising HEalth LIterAcy) framework, The purpose of this study was to explore the perceptions of socially disadvantaged Irish adolescents in relation to health literacy and related behaviours, and utilise this data to develop relevant vignettes. Methods A convergent mixed method design was used to co-create the vignettes. Questionnaires were completed by 962 adolescents (males n = 553, females n = 409, Mean age = 13.97 ± 0.96 years) from five participating disadvantaged schools in Leinster, Ireland. Focus groups were also conducted in each school (n = 31). Results were synthesised using cluster and thematic analysis, to develop nine vignettes that represented typical male and female subgroups across the schools with varying health literacy profiles. These vignettes were then validated through triangular consensus with students, teachers, and researchers. Discussion The co-creation process was a participatory methodology which promoted the engagement and autonomy of the young people involved in the project. The vignettes themselves provide an authentic and tangible description of the health issues and health literacy profiles of adolescents in this context. Application of these vignettes in workshops involving students and teachers, will enable meaningful engagement in the discussion of health literacy and health-related behaviours in Irish young people, and the potential co-designing of strategies to address health literacy in youth. Conclusion As guided by the Ophelia framework, the use of authentic, interactive and participatory research methods, such as the co-creation of vignettes, is particularly important in groups that are underserved by traditional research methods. The approach used in this study could be adapted to other contexts to represent and understand stakeholders’ perceptions of health, with a view to explore, and ultimately improve, health literacy.

scholarly journals International survey for assessing COVID-19’s impact on fear and health: study protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e048720
Author(s):  
Kris Yuet-Wan Lok ◽  
Daniel Yee Tak Fong ◽  
Janet Y.H. Wong ◽  
Mandy Ho ◽  
Edmond PH Choi ◽  
...  
Keyword(s):  
Health Literacy ◽  
International Study ◽  
Ethics Committees ◽  
Well Being ◽  
International Perspective ◽  
Community Dwelling ◽  
Health Study ◽  
The World ◽  
Patient Health ◽  
Health Related

IntroductionCOVID-19, caused by the SARS-CoV-2, has been one of the most highly contagious and rapidly spreading virus outbreak. The pandemic not only has catastrophic impacts on physical health and economy around the world, but also the psychological well-being of individuals, communities and society. The psychological and social impacts of the COVID-19 pandemic internationally have not been well described. There is a lack of international study assessing health-related impacts of the COVID-19 pandemic, especially on the degree to which individuals are fearful of the pandemic. Therefore, this study aims to (1) assess the health-related impact of the COVID-19 pandemic in community-dwelling individuals around the world; (2) determine the extent various communities are fearful of COVID-19 and (3) identify perceived needs of the population to prepare for potential future pandemics.Methods and analysisThis global study involves 30 countries. For each country, we target at least 500 subjects aged 18 years or above. The questionnaires will be available online and in local languages. The questionnaires include assessment of the health impacts of COVID-19, perceived importance of future preparation for the pandemic, fear, lifestyles, sociodemographics, COVID-19-related knowledge, e-health literacy, out-of-control scale and the Patient Health Questionnaire-4. Descriptive statistics will be used to describe participants’ characteristics, perceptions on the health-related impacts of COVID-19, fear, anxiety and depression, lifestyles, COVID-19 knowledge, e-health literacy and other measures. Univariable and multivariable regression models will be used to assess the associations of covariates on the outcomes.Ethics and disseminationThe study has been reviewed and approved by the local ethics committees in participating countries, where local ethics approval is needed. The results will be actively disseminated. This study aims to map an international perspective and comparison for future preparation in a pandemic.

scholarly journals Preoperative bariatric surgery programme barriers facing Pacific patients in Auckland, New Zealand as perceived by health sector professionals: a qualitative study

BMJ Open ◽  
2019 ◽  
Vol 9 (11) ◽  
pp. e029525
Author(s):  
Tamasin Taylor ◽  
Wendy Wrapson ◽  
Ofa Dewes ◽  
Nalei Taufa ◽  
Richard J Siegert
Keyword(s):  
Bariatric Surgery ◽  
New Zealand ◽  
Health Literacy ◽  
Health Professionals ◽  
Health Sector ◽  
Publicly Funded ◽  
Attrition Rates ◽  
Pacific Health ◽  
Emotional Safety ◽  
Minority Ethnic

Minority ethnic patient groups typically have the highest bariatric surgery preoperative attrition rates and lowest surgery utilisation worldwide. Eligible patients of Pacific Island ethnicity (Pacific patients) in New Zealand (NZ) follow this wider trend.ObjectivesThe present study explored structural barriers contributing to Pacific patients’ disproportionately high preoperative attrition rates from publicly-funded bariatric surgery in Auckland, NZ.SettingPublicly-funded bariatric surgery programmes based in the wider Auckland area, NZ.DesignSemi-structured interviews with health sector professionals (n=21) were conducted.Data were analysed using an inductive thematic approach.ResultsTwo primary themes were identified: (1) Confidence negotiating the medical system, which included Emotional safety in clinical settings and Relating to non-Pacific health professionals and (2) Appropriate support to achieve preoperative goals, which included Cultural considerations, Practical support and Relating health information. Clinical environments and an under-representation of Pacific staff were considered to be barriers to developing emotional safety, trust and acceptance of the surgery process with patients and their families. Additionally, economic deprivation and lower health literacy impacted preoperative goals.ConclusionsHealth professionals’ accounts indicated that Pacific patients face substantial levels of disconnection in bariatric surgery programmes. Increasing representation of Pacific ethnicity by employing more Pacific health professionals in bariatric teams and finding novel solutions to implement preoperative programme components have the potential to reduce this disconnect. Addressing cultural competency of staff, increasing consultancy times and working in community settings may enable staff to better support Pacific patients and their families. Programme structures could be more accommodating to practical barriers of attending appointments, managing patients’ preoperative health goals and improving patients’ health literacy. Given that Pacific populations, and other patients from minority ethnic backgrounds living globally, also face high rates of obesity and barriers accessing bariatric surgery, our findings are likely to have broader applicability.

Examination Of Health Literacy Levels Of Mothers: An Interdisciplinary Study With A Child Developmental Perspective

2021 ◽  
Vol 6 (14) ◽  
pp. 35-44
Author(s):  
burçin aysu ◽  
Neriman ARAL ◽  
Fatih AYDOĞDU ◽  
Figen GÜRSOY
Keyword(s):  
Health Literacy ◽  
Child Development ◽  
Normal Distribution ◽  
Health Professionals ◽  
Quantitative Data ◽  
Qualitative Data ◽  
Education Level ◽  
Assessment Process ◽  
Development Professionals ◽  
Development Perspective

Introduction and aim: When health literacy is considered in terms of family and especially mother, its importance increases even more. Because the health literacy of the mother and the health of the child are related to each other, the probability of the children of mothers with high health literacy to be healthy is also high. Considering this situation, it is emphasized that health literacy is an important concept for child development professionals, who are one of the health professionals working with children. Because child development professionals involve families and especially mothers in the process while working with children, health literacy can also affect mothers' involvement in the process. Determining the health literacy of mothers and handling it with a child development perspective; It is thought that it will also guide interdisciplinary research on health literacy. In this study, it is aimed to determine the health literacy of mothers and to discuss them with a child development perspective. Method: In the study, residing in Mamak district of Ankara were included 100 mothers. Mixed method was used in the research. Quantitative data were collected with the “Adult Health Literacy Scale”, and qualitative data were collected through the “Questionnaire Form”. Ethics committee approval was obtained before starting to collect data in the study. Afterwards, the participants were given detailed information about the research and consent forms were signed. The research was conducted on a voluntary basis. After the quantitative data were collected, they were processed into the SPSS package program, and whether the data showed normal distribution was examined with the kolmogrov smirnov test. Since the data showed a normal distribution, Anova and t tests, which are parametric tests, were used in the analysis of quantitative data. Qualitative data were analyzed by descriptive analysis method. Results: As a result of the research, it was found that the health literacy levels of the mothers differed significantly according to the variables of education level, education level of the spouse and having a chronic disease. It has been determined that mothers consult physicians for health issues, receive support from health professionals about their children's health problems, and explain the concept of health as physical, mental, social well-being and protection of health. Conclusions and recommendations: In line with the results obtained from the research; preparing early intervention programs as child developers to increase mothers' health literacy levels, conducting health literacy screening in clinical settings and including the assessment of mothers' health literacy in the child's assessment process, it may be recommended to plan studies involving fathers on health literacy.

scholarly journals Public recognition of mental disorders and beliefs about treatment: changes in Australia over 16 years

2012 ◽  
Vol 200 (5) ◽  
pp. 419-425 ◽  
Author(s):  
Nicola J. Reavley ◽  
Anthony F. Jorm
Keyword(s):  
Mental Health ◽  
Health Literacy ◽  
Mental Disorders ◽  
Mental Health Professionals ◽  
National Survey ◽  
Health Professionals ◽  
Mental Health Literacy ◽  
Public Recognition ◽  
Similar Survey ◽  
Treatment Changes

BackgroundA 1995 Australian national survey of mental health literacy showed poor recognition of disorders and beliefs about treatment that differed from those of health professionals. A similar survey carried out in 2003/4 showed some improvements over 8 years.AimsTo investigate whether recognition of mental disorders and beliefs about treatment have changed over a 16-year period.MethodA national survey of 6019 adults was carried out in 2011 using the same questions as the 1995 and 2003/4 surveys.ResultsResults showed improved recognition of depression and more positive ratings for a range of interventions, including help from mental health professionals and antidepressants.ConclusionsAlthough beliefs about effective medications and interventions have moved closer to those of health professionals since the previous surveys, there is still potential for mental health literacy gains in the areas of recognition and treatment beliefs for mental disorders. This is particularly the case for schizophrenia.

scholarly journals Provider and patient perception of psychiatry patient health literacy

2017 ◽  
Vol 15 (2) ◽  
pp. 908-908 ◽  
Author(s):  
Opal Bacon ◽  
Amy VandenBerg ◽  
Meghan E. May
Keyword(s):  
Health Literacy ◽  
Patient Perception ◽  
Patient Health
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