Personal Derived Health Information: A Foundation to Preparing the United States for Disasters and Public Health Emergencies

2012 ◽  
Vol 6 (3) ◽  
pp. 303-310 ◽  
Author(s):  
Cheryl Irmiter ◽  
Italo Subbarao ◽  
Jessica Nitin Shah ◽  
Patricia Sokol ◽  
James J. James
Keyword(s):  
Public Health ◽  
Health Information ◽  
Expert Panel ◽  
First Responders ◽  
The United States ◽  
Public Health Emergency ◽  
Personal Health Information ◽  
Personal Health ◽  
Great Effort ◽  
Public Health Response

ABSTRACTBackground: In the days following a disaster/public health emergency, there is great effort to ensure that everyone receives appropriate care and lives are saved. However, evacuees following a disaster/public health emergency often lack access to personal health information that is vital to receive or maintain quality care. Delayed treatment and interruptions of medication regimens often contribute to excess morbidity and mortality following a disaster/public health emergency. This study sought to define a set of minimum health information elements that can be maintained in a personal health record (PHR) and given to first responders/receivers within the first 96 hours of a disaster/public health response to improve clinical health outcomes.Methods: A mixed methods approach of qualitative and quantitative data gathering and analyses was completed. Expert panel members (n = 116) and existing health information elements were sampled for this study; 55% (n = 64) of expert panel members had clinical credentials and determined the health information. From an initial set of six sources, a step-wise process using a Likert scale survey and thematic data analyses, including interrater reliability and validity checks, produced a set of minimum health information elements.Results: The results identified 30 essential elements from 676 existing health information elements, a reduction of approximately 95%. The elements were grouped into seven domains: identification, emergency contact, health care contact, health profile –past medical history, medication, major allergies/diet restrictions, and family information.Conclusions: Leading experts in clinical disaster preparedness identified a set of minimum health information elements that first responders/receivers must have to ensure appropriate and timely care. If this set of elements is used as the fundamental information for a PHR, and automatically updated and validated during clinical encounters and medication changes, it is conceivable that following large-scale disasters clinical outcomes may be improved and more lives may be saved.(Disaster Med Public Health Preparedness. 2012;6:303-310)

How Research Will Adapt to HIPAA: A View from Within the Healthcare Delivery System

2002 ◽  
Vol 28 (4) ◽  
pp. 491-502
Author(s):  
Mary L. Durham
Keyword(s):  
Health Information ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Business Associations ◽  
Electronic Information ◽  
Healthcare Delivery System ◽  
Institutional Review

While the new Health Insurance Privacy and Accountability Act (HIPAA) research rules governing privacy, confidentiality and personal health information will challenge the research and medical communities, history teaches us that the difficulty of this challenge pales in comparison to the potential harms that such regulations are designed to avoid. Although revised following broad commentary from researchers and healthcare providers around the country, the HIPAA privacy requirements will dramatically change the way healthcare researchers do their jobs in the United States. Given our reluctance to change, we risk overlooking potentially valid reasons why access to personal health information is restricted and regulated. In an environment of electronic information, public concern, genetic information and decline of public trust, regulations are ever-changing. Six categories of HIPAA requirements stand out as transformative: disclosure accounting/tracking, business associations, institutional review board (IRB) changes, minimum necessary requirements, data de-identification, and criminal and civil penalties.

The HIPAA Privacy Rule: Reviewing the Post-Compliance Impact on Public Health Practice and Research

2003 ◽  
Vol 31 (S4) ◽  
pp. 70-72 ◽  
Author(s):  
Lora Kutkat ◽  
James G. Hodge ◽  
Thomas Jeffry ◽  
Diana M. Bontá
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Information ◽  
Public Health Practice ◽  
Personal Health Information ◽  
Personal Health ◽  
Health Plans ◽  
Privacy Rule ◽  
Public Health Officials ◽  
Hipaa Privacy Rule

Current economic conditions have coincided with the implementation of the Health Insurance Portability and Accountability Act (HIPAA) and forced public health officials to consider how to ethically incorporate compliance into their already strained budgets, while maintaining the integrity and intent of the legislation.As of April 14, 2003, the HIPAA Privacy Rule provides a new federal floor of protections for personal health information. The Privacy Rule establishes standards for the protection of health information held by many physicians’ offices, health plans, and health care clearinghouses. The Rule protects personal health information by establishing conditions regulating the use and disclosure of individually identifiable health information by these entities, also referred to as covered entities. The Rule does not prevent the daily operations of health care establishments (i.e., the treatment of patients and the collection of payment).

The future state of patient engagement? Personal health information use, attitudes towards health, and health behavior

2019 ◽  
Vol 32 (4) ◽  
pp. 199-208
Author(s):  
Kristine R Hearld ◽  
Larry R Hearld ◽  
Henna Budhwani ◽  
Deirdre McCaughey ◽  
Leandra Y Celaya ◽  
...  
Keyword(s):  
Health Status ◽  
Health Behaviors ◽  
Health Information ◽  
Perceived Health ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Perceived Health Status ◽  
Preventative Health ◽  
Patient Confidence

The past decade has given rise to interest in the effects of health care information on personal well-being. However, investigations to-date typically centered on mass communication programs in health rather than on individuals’ psychosocial characteristics, agency, and behaviors associated with their engagement with this information. Considering this gap, we examined whether the availability of personal health information is associated with health prevention behaviors in the United States. Using multivariable path analysis and data from the 2017 Health Information National Trends Survey, we investigate whether the use of personal health information is associated with positive, preventative health behaviors (healthy eating, tobacco smoking, and exercise), and if this relationship is mediated by patient confidence in their ability to care for themselves and by their self-perceived health status. Findings indicate that the use of health information, at low levels, is important for improving patient attitudes regarding their health status and confidence in caring for themselves. Perceived health-status and patient confidence, in turn, are associated with preventative health behaviors. Notably, too much information does not necessarily result in positive health behaviors among patients. Organizations may wish to critically assess how much information they make readily available to the populations they serve.

Building a Public-Private Partnership to Enhance Laboratory Preparedness and Response in the United States

2020 ◽  
pp. 1-4 ◽  
Author(s):  
Reynolds M. Salerno ◽  
Jasmine Chaitram ◽  
Joanne D. Andreadis
Keyword(s):  
Public Health ◽  
Clinical Laboratory ◽  
Diagnostic Testing ◽  
Health Sector ◽  
High Volume ◽  
The United States ◽  
Public Health Emergency ◽  
Public Health Response ◽  
The Public ◽  
Communication And Coordination

ABSTRACT The public health community has recognized that it cannot handle responses to all possible public health emergencies on its own. The public health sector has deep scientific expertise and excels at initial identification, complex characterization, and test development. The private sector has many resources and capabilities that can complement and augment the public health response. This is especially true in the clinical laboratory sector. Many commercial laboratories are designed for high-volume, high-throughput diagnostic testing in a way that public health laboratories are not. Significant steps have been taken since 2017 to improve the communication and coordination between public health and the private clinical laboratory community, especially during a response to a public health emergency. This paper describes the strong foundation that has been built for an improved clinical and public health laboratory response to the next public health emergency.

scholarly journals Differences in Access to and Use of Electronic Personal Health Information Between Rural and Urban Residents in the United States

2017 ◽  
Vol 34 ◽  
pp. s30-s38 ◽  
Author(s):  
Alexandra J. Greenberg ◽  
Danielle Haney ◽  
Kelly D. Blake ◽  
Richard P. Moser ◽  
Bradford W. Hesse
Keyword(s):  
United States ◽  
Health Information ◽  
The United States ◽  
Personal Health Information ◽  
Personal Health ◽  
Urban Residents ◽  
Rural And Urban
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