Commercial Products That Convey Personal Health Information in Emergencies

2011 ◽  
Vol 5 (4) ◽  
pp. 261-265 ◽  
Author(s):  
Vishnu C. Potini ◽  
Dilani N. Weerasuriya ◽  
Douglas W. Lowery-North ◽  
Arthur L. Kellermann
Keyword(s):  
Health Information ◽  
Health Care Providers ◽  
Web Sites ◽  
Personal Health Information ◽  
Primary Sources ◽  
Personal Health ◽  
Care Providers ◽  
Sources Of Information ◽  
Wide Range ◽  
E Mail

ABSTRACTObjective: Describe commercially available products and services designed to convey personal health information in emergencies.Methods: The search engine Google®, supplemented by print ads, was used to identify companies and organizations that offer relevant products and services to the general market. Disease-specific, health system, and health plan-specific offerings were excluded. Vendor web sites were the primary sources of information, supplemented by telephone and e-mail queries to sales representatives. Perfect inter-rater agreement was achieved.Results: Thirty-nine unique vendors were identified. Eight sell engraved jewelry. Three offer an embossed card or pamphlet. Twelve supply USB drives with various features. Eleven support password-protected web sites. Five maintain national call centers. Available media differed markedly with respect to capacity and accessibility. Quoted prices ranged from a one-time expenditure of $3.50 to an annual fee of $200. Associated features and annual fees varied widely.Conclusion: A wide range of products and services exist to help patients convey personal health information. Health care providers should be familiar with their features, so they can access the information in a disaster or emergency.(Disaster Med Public Health Preparedness. 2011;5:261–265)

scholarly journals Patient portals and personal health information online: perception, access, and use by US adults

2016 ◽  
Vol 24 (e1) ◽  
pp. e173-e177 ◽  
Author(s):  
Sue Peacock ◽  
Ashok Reddy ◽  
Suzanne G Leveille ◽  
Jan Walker ◽  
Thomas H Payne ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Health Care Providers ◽  
Race And Ethnicity ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Providers ◽  
Patient Portals ◽  
The Past ◽  
Patient Race

Background: Access to online patient portals is key to improving care, but we have limited understanding of patient perceptions of online portals and the characteristics of people who use them. Methods: Using a national survey of 3677 respondents, we describe perceptions and utilization of online personal health information (PHI) portals. Results: Most respondents (92%) considered online PHI access important, yet only 34% were offered access to online PHI by a health care provider, and just 28% accessed online PHI in the past year. While there were no differences across race or ethnicity in importance of access, black and Hispanic respondents were significantly less likely to be offered access (P = .006 and <.001, respectively) and less likely to access their online PHI (P = .041 and <.001, respectively) compared to white and non-Hispanic respondents. Conclusion: Health care providers are crucial to the adoption and use of online patient portals and should be encouraged to offer consistent access regardless of patient race and ethnicity.

scholarly journals Differences in Electronic Personal Health Information Tool Use Between Rural and Urban Cancer Patients in the United States: Secondary Data Analysis

JMIR Cancer ◽  
10.2196/17352 ◽  
2020 ◽  
Vol 6 (2) ◽  
pp. e17352
Author(s):  
Alexandra Greenberg-Worisek ◽  
Liaa Ferede ◽  
Joyce Balls-Berry ◽  
Ian Marigi ◽  
Emily Valentin Mendez ◽  
...  
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Cancer Patients ◽  
Health Information Technology ◽  
Health Information ◽  
Health Care Providers ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Providers ◽  
Rural And Urban

Background Studies have previously shown that rural cancer patients are diagnosed at later stages of disease. This delay is felt throughout treatment and follow-up, reflected in the fact that rural patients often have poorer clinical outcomes compared with their urban counterparts. Objective Few studies have explored whether there is a difference in cancer patients’ current use of health information technology tools by residential location. Methods Data from 7 cycles of the Health Information National Trends Survey (HINTS, 2003-2017) were merged and analyzed to examine whether differences exist in managing electronic personal health information (ePHI) and emailing health care providers among rural and urban cancer patients. Geographic location was categorized using Rural-Urban Continuum Codes (RUCCs). Bivariate analyses and multivariable logistic regression were used to determine whether associations existed between rural/urban residency and use of health information technology among cancer patients. Results Of the 3031 cancer patients/survivors who responded across the 7 cycles of HINTS, 797 (26.9%) resided in rural areas. No difference was found between rural and urban cancer patients in having managed ePHI in the past 12 months (OR 0.78, 95% CI 0.43-1.40). Rural cancer patients were significantly less likely to email health care providers than their urban counterparts (OR 0.52, 95% CI 0.32-0.84). Conclusions The digital divide between rural and urban cancer residents does not extend to general ePHI management; however, electronic communication with providers is significantly lower among rural cancer patients than urban cancer patients. Further research is needed to determine whether such disparities extend to other health information technology tools that might benefit rural cancer patients as well as other chronic conditions.

scholarly journals Differences in Electronic Personal Health Information Tool Use Between Rural and Urban Cancer Patients in the United States: Secondary Data Analysis (Preprint)

2019 ◽  
Author(s):  
Alexandra Greenberg-Worisek ◽  
Liaa Ferede ◽  
Joyce Balls-Berry ◽  
Ian Marigi ◽  
Emily Valentin Mendez ◽  
...  
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Cancer Patients ◽  
Health Information Technology ◽  
Health Information ◽  
Health Care Providers ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Providers ◽  
Rural And Urban

BACKGROUND Studies have previously shown that rural cancer patients are diagnosed at later stages of disease. This delay is felt throughout treatment and follow-up, reflected in the fact that rural patients often have poorer clinical outcomes compared with their urban counterparts. OBJECTIVE Few studies have explored whether there is a difference in cancer patients’ current use of health information technology tools by residential location. METHODS Data from 7 cycles of the Health Information National Trends Survey (HINTS, 2003-2017) were merged and analyzed to examine whether differences exist in managing electronic personal health information (ePHI) and emailing health care providers among rural and urban cancer patients. Geographic location was categorized using Rural-Urban Continuum Codes (RUCCs). Bivariate analyses and multivariable logistic regression were used to determine whether associations existed between rural/urban residency and use of health information technology among cancer patients. RESULTS Of the 3031 cancer patients/survivors who responded across the 7 cycles of HINTS, 797 (26.9%) resided in rural areas. No difference was found between rural and urban cancer patients in having managed ePHI in the past 12 months (OR 0.78, 95% CI 0.43-1.40). Rural cancer patients were significantly less likely to email health care providers than their urban counterparts (OR 0.52, 95% CI 0.32-0.84). CONCLUSIONS The digital divide between rural and urban cancer residents does not extend to general ePHI management; however, electronic communication with providers is significantly lower among rural cancer patients than urban cancer patients. Further research is needed to determine whether such disparities extend to other health information technology tools that might benefit rural cancer patients as well as other chronic conditions.

scholarly journals Implementing and Utilizing the Personal Health Library (PHL) to Enable True Care Integration and Management (Preprint)

2020 ◽  
Author(s):  
Nariman Ammar ◽  
James E Bailey ◽  
Robert L Davis ◽  
Arash Shaban-Nejad
Keyword(s):  
Health Care ◽  
Health Information ◽  
Health Care Providers ◽  
Linked Data ◽  
Digital Health ◽  
Single Point ◽  
Personal Health ◽  
Care Providers ◽  
Care Integration ◽  
Modern Development

BACKGROUND Traditionally, health data management has been EMR-based and mostly handled by health care providers. Mechanisms are needed to give patients more control over their health conditions. Personal Health Libraries (PHLs) provide a single point of secure access to patients' digital health information that can help empower patients to make better-informed decisions about their health. OBJECTIVE This article reports our efforts on leveraging tools and methods from artificial intelligence and knowledge representation to construct a private, decentralized PHL that supports interoperability and, ultimately, true care integration. Also, it describes the technological infrastructures required to build Hybrid Recommendation Systems that query the PHL to deliver tailored push notification interventions focused on improving self-care behaviors in diabetic and cancer adults from underserved communities. METHODS For the construction and management of the PHL, we leverage several technological infrastructures, including the Social Linked Data (Solid) platform, which builds on the W3C protocol standard and vocabularies as well as the Linked Open Data Stack. Solid enriches the Linked Data stack with modern development tools including JavaScript-based frameworks (e.g., React), which makes both integration tasks using APIs and building Solid enabled applications a seamless experience. RESULTS To showcase the framework functionalities we present a prototype design and demonstrate the main features through two use case scenarios motivated both by requirements identified in the literature and by recommendations from Physicians from both Hematology and Preventive medicine fields at two children’s hospitals in Memphis, TN. CONCLUSIONS The proposed platform incorporates social determinants of health (SDoH) and ODLs in addition to digital health information to provide insights for informing both therapeutic and preventive interventions in chronic disease management. The PHL helps patients and their caregivers take a central role in making decisions regarding their health and equips health care providers with informatics tools to support the collection and interpretation of the collected knowledge

scholarly journals Common Consumer Health-Related Needs in the Pediatric Hospital Setting: Lessons from an Engagement Consultation Service

2018 ◽  
Vol 09 (03) ◽  
pp. 595-603 ◽  
Author(s):  
Daniel Lee ◽  
Robert Cronin ◽  
Jamie Robinson ◽  
Shilo Anders ◽  
Kim Unertl ◽  
...  
Keyword(s):  
Health Care Providers ◽  
Web Sites ◽  
Pediatric Patients ◽  
Hospital Setting ◽  
Consumer Health ◽  
Care Providers ◽  
Sources Of Information ◽  
Consultation Service ◽  
Online Groups ◽  
Health Related

Background Informed and engaged parents may influence outcomes for childhood illness. Understanding the needs of the caregivers of pediatric patients is a critical first step in promoting engagement in their child's care. In 2014, we developed an Engagement Consultation Service at the Monroe Carell Jr. Children's Hospital at Vanderbilt. This service determines the health-related needs of the caregivers of hospitalized children and makes educational or technology recommendations to meet those needs and support engagement. Objectives This report describes the most common health-related needs identified in the caregivers of hospitalized pediatric patients and details the recommended interventions to meet those needs. Methods The most commonly reported consumer health-related needs from our 3-year experience with the Engagement Consultation Service were extracted from consultations notes. Each need was classified by semantic type using a taxonomy of consumer health needs. Typical recommendations for each need and their administration were detailed. Results The most frequently recognized needs involved communicating with health care providers after discharge, using medical devices, distinguishing between benign and concerning symptoms, knowing what questions to ask providers and remembering them, finding trustworthy sources of information online, understanding disease prognosis, and getting emotional support. A variety of apps, Web sites, printed materials, and online groups were recommended. Conclusion The parents of hospitalized patients share several common health-related needs that can be addressed with educational and technology interventions. An inpatient Engagement Consultation Service provides a generalizable framework for identifying health-related needs and delivers tools to meet those needs and promote engagement during and after hospitalizations.

A Survey of Security Standards Applicable to Health Information Systems

2013 ◽  
Vol 7 (4) ◽  
pp. 22-36 ◽  
Author(s):  
Francis Akowuah ◽  
Xiaohong Yuan ◽  
Jinsheng Xu ◽  
Hong Wang
Keyword(s):  
Information Systems ◽  
Health Information ◽  
Health Information Systems ◽  
Personal Health Information ◽  
Security And Privacy ◽  
Personal Health ◽  
Healthcare Organizations ◽  
Starting Point ◽  
Wide Range ◽  
Security Standards

The information maintained by Health Information Systems (HIS) is often faced with security threats from a wide range of sources. Some government's regulations require healthcare organizations and custodians of personal health information to take practical steps to address the security and privacy needs of personal health information. Standards help to ensure an adequate level of security is attained, resources are used efficiently and the best security practices are adopted. In this paper, the authors survey security standards applicable to healthcare industry including Control OBjective for Information and related Technology (COBIT), ISO/IEC 27002:2005, ISO/IEC 27001:2005, NIST Special Publication 800-53, ISO 27799:2008, HITRUST Common Security Framework (CSF), ISO 17090:2008, ISO/TS 25237:2008, etc. This survey informs the audience currently available standards that can guide the implementation of information security programs in healthcare organizations, and provides a starting point for IT management in healthcare organizations to select a standard suitable for their organizations.

To Tell or Not to Tell? Professional and Lay Perspectives on the Disclosure of Personal Health Information in Community-Based Dementia Care

2004 ◽  
Vol 23 (3) ◽  
pp. 203-215 ◽  
Author(s):  
C. Shawn Tracy ◽  
Neil Drummond ◽  
Lorraine E. Ferris ◽  
Judith Globerman ◽  
Philip C. Hébert ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Health Information ◽  
Information Exchange ◽  
Early Stage ◽  
Personal Health Information ◽  
Best Interests ◽  
Personal Health ◽  
Care Providers ◽  
Health And Social Care ◽  
Strong Control

ABSTRACTDevelopments in information technology and the ongoing restructuring of health services to increase provision in community settings militate in favour of a streamlining of communications and the exchange of information about patients among health and social care providers. Yet the principles of confidentiality and privacy appear to inhibit this process. In order to explore the practical, ethical, and legal imperatives attendant upon personal health information exchange, we conducted a series of interviews with professional care providers, persons with early-stage dementia, and their family caregivers. The findings indicate some degree of discordance. Professionals reported valuing disclosure both to colleagues and family caregivers on the basis of its being in the patients' best interests. Patients also valued inter-professional exchange, but sought strong control over disclosure to family members. Family caregivers valued being kept informed of the patient's condition, even without the latter's consent. Implications for research and policy are discussed.

The Quality of Web Sites' Health Information on Minimal Invasive Repair of Pectus Excavatum Using the DISCERN Instrument

2020 ◽  
Author(s):  
Wietse P. Zuidema ◽  
Maarten J. Graumans ◽  
Jan W. A. Oosterhuis ◽  
Alida F. W. van der Steeg ◽  
Ernest van Heurn
Keyword(s):  
Health Information ◽  
Health Care Providers ◽  
Web Sites ◽  
Pectus Excavatum ◽  
Medical Information ◽  
Treatment Options ◽  
The Internet ◽  
Care Providers ◽  
Related Information

Abstract Introduction The Internet is a frequently used tool for patients with pectus excavatum (PE) to get information about symptoms and treatment options. In addition, it is used by both health care providers as a marketing tool and support group systems. The Internet health information varies in precision, quality, and reliability. The study purpose was to determine the quality of information on the PE Web sites using the DISCERN instrument, including information about operation and potential complications after a Nuss bar procedure. Materials and Methods Four search engines, Google, Yahoo, Ask, and Bing, were used to explore seven key terms concerning PE. Search language was English. The DISCERN quality instrument was used to evaluate the Web sites. Also, information on possible complications was scored per Web site. Results A total of 560 Web sites were assessed in March 2019. Excluded were 139 Web sites. There were 333 duplicates, leaving 88 unique Web sites. Of these, 58.1% were hospital-related information Web sites, 28.4% medical information Web sites, and 3.4% patient forum sites. Interactive multimedia was used on 21.6% of the sites. Pain postoperatively was mentioned on 64.8% of the sites, while only 9.1% mentioned the mortality risk of the surgical correction of PE for Nuss bar placement. The quality of the unique Web sites showed a mean DISCERN score of 42.5 (standard deviation 12.2). Medical information Web sites, encyclopedia, and government-sponsored sites had higher DISCERN scores. Hospital-related information sites, medical companies, and lay persons' sites, had lower total scores. Conclusion The overall quality of PE Web sites is low to moderate, with serious shortcomings.

Accessibility of women to health information in Tanzania

2017 ◽  
Vol 66 (6/7) ◽  
pp. 415-429 ◽  
Author(s):  
Ronald Benard ◽  
Monica Samwel Chipungahelo
Keyword(s):  
Health Information ◽  
Health Care Providers ◽  
Information Needs ◽  
Survey Method ◽  
Care Providers ◽  
Sources Of Information ◽  
Cross Sectional ◽  
Content Type ◽  
The Government ◽  
Types Of Information

Purpose The aim of this study is to examine accessibility of health information to women in Tanzania with reference to the Morogoro region. The specific objectives of the study were: first, to identify the health information needs of women; second, to determine the accessibility of the needed health information to women in the study area; and third, to determine the preferred sources of information used by women in accessing health information in the study area. Design/methodology/approach A descriptive survey method – cross-sectional design – was used. Semi-structured questionnaires with both open- and close-ended questions were used to collect data from four wards of Morogoro Municipal Council, Tanzania. Key informant interviews were conducted with 12 women from four wards, 3 women were selected from each ward. Findings The findings also indicated that there was a significant relationship between wards and accessibility to certain types of information which were concerning hypertension, family planning, malaria and typhoid. Although information on diabetes and hypertension had lower percentages of accessibility in all four wards, the study findings revealed that medical doctors, pharmacy shops and family were the main sources of information used by women to access health information. Radio and television were rated as preferred sources of information required by women, whereas internet, local herb hawkers and mobile phones were rated as non-preferable. It is therefore recommended that the government through health-care providers and medical librarians should be proactive in creating awareness and disseminate health information on non-communicable diseases such as hypertension and diabetes to women. Practical implications This paper provides practical recommendations on how to improve accessibility of health information in the communities. Social implications The paper has an implication of improving accessibility of health information to women in the communities. Originality/value The paper provides appropriate knowledge that is needed in improving access to health information in Tanzanian communities and in other developing countries communities.

eSelf or Computerized Self Network

2013 ◽  
Vol 3 (2) ◽  
pp. 20-32
Author(s):  
Fereydoon Baradaran Bagheri
Keyword(s):  
Health Care Providers ◽  
Complex Adaptive System ◽  
Personal Health Information ◽  
Personal Health ◽  
Conceptual System ◽  
Self Awareness ◽  
Care Providers ◽  
Complex Adaptive ◽  
Optimal Health ◽  
Self Knowledge

Empowering individuals is carried out through improving self-knowledge and self-awareness and maximization of their autonomous self-regulatory potential. In order to improve individual self-knowledge the author needs to provide evidence-based and need-oriented information to individuals and help them to process and self-reflect this information This paper attempts to describe a conceptual system, called Electronic-Self or Computerized Self Network, encompassing Medical Informatics Systems, Personal Informatics System, and Optimal Health Care Providers and explain how such a system can be considered as a practical solution. eSelf a complex adaptive system and based complexity sciences rules. eSelf strategy for individual empowerment based on each individual should be in personal health context play two role philosopher and scientist in personal health information processing and embodied self awareness.

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