scholarly journals Hospital Costs and Quality of Life During 4 Years After Very Preterm Birth

2010 ◽  
Vol 164 (7) ◽  
pp. 657 ◽  
Author(s):  
Emmi Korvenranta
Keyword(s):  
Quality Of Life ◽  
Preterm Birth ◽  
Hospital Costs ◽  
Very Preterm ◽  
Very Preterm Birth

Frühgeburtlichkeit: Wie geht es den Eltern, wenn die Kinder erwachsen sind?

2017 ◽  
Vol 221 (06) ◽  
pp. 262-263
Keyword(s):  
Quality Of Life ◽  
Preterm Birth ◽  
Very Preterm ◽  
Very Preterm Birth

Wolke D et al. Very Preterm Birth and Parentsʼ Quality of Life 27 Years Later. Pediatrics 2017; 140 (3). pii: e20171263. doi:10.1542/peds.2017-1263 Frühgeborene haben in vielerlei Hinsicht einen schweren Start ins Leben. Aber auch ihre Eltern sind oft über viele Jahre starken Belastungen ausgesetzt. Müssen Mütter und Väter von ehemaligen Frühgeborenen auch dann noch mit Einschränkungen der Lebensqualität rechnen, wenn ihre Kinder bereits das Erwachsenenalter erreicht haben? Mit dieser Frage hat sich die Bayerische Longitudinalstudie beschäftigt.

scholarly journals Self-reported Quality of Life at Middle School Age in Survivors of Very Preterm Birth

2019 ◽  
Vol 173 (5) ◽  
pp. 487 ◽  
Author(s):  
Barbara Schmidt ◽  
Peter J. Anderson ◽  
Elizabeth V. Asztalos ◽  
Lex W. Doyle ◽  
Ruth E. Grunau ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Middle School ◽  
Preterm Birth ◽  
School Age ◽  
Very Preterm ◽  
Very Preterm Birth

scholarly journals Changes in quality of life into adulthood after very preterm birth and/or very low birth weight in the Netherlands

2013 ◽  
Vol 11 (1) ◽  
pp. 51 ◽  
Author(s):  
Afra van Lunenburg ◽  
Sylvia M van der Pal ◽  
Paula van Dommelen ◽  
Karin M van der Pal – de Bruin ◽  
Jack Bennebroek Gravenhorst ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Birth Weight ◽  
Preterm Birth ◽  
Low Birth Weight ◽  
The Netherlands ◽  
Very Low Birth Weight ◽  
Very Preterm ◽  
Very Preterm Birth

scholarly journals 435 Changes in Quality of Life into Adulthood after very Preterm Birth and/or Very Low Birth Weight in the Netherlands

2012 ◽  
Vol 97 (Suppl 2) ◽  
pp. A128-A128
Author(s):  
S. v. d. Pal ◽  
A. v. Lunenburg ◽  
C. Lanting ◽  
K. v. d. P. Bruin ◽  
J. B. Gravenhorst ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Birth Weight ◽  
Preterm Birth ◽  
Low Birth Weight ◽  
The Netherlands ◽  
Very Low Birth Weight ◽  
Very Preterm ◽  
Very Preterm Birth

scholarly journals Very Preterm Birth and Parents’ Quality of Life 27 Years Later

PEDIATRICS ◽  
2017 ◽  
Vol 140 (3) ◽  
pp. e20171263 ◽  
Author(s):  
Dieter Wolke ◽  
Nicole Baumann ◽  
Barbara Busch ◽  
Peter Bartmann
Keyword(s):  
Quality Of Life ◽  
Preterm Birth ◽  
Very Preterm ◽  
Very Preterm Birth

Health-Related Quality of Life Into Adulthood After Very Preterm Birth

PEDIATRICS ◽  
2016 ◽  
Vol 137 (4) ◽  
pp. e20153148-e20153148 ◽  
Author(s):  
N. Baumann ◽  
P. Bartmann ◽  
D. Wolke
Keyword(s):  
Quality Of Life ◽  
Preterm Birth ◽  
Health Related Quality ◽  
Very Preterm ◽  
Very Preterm Birth ◽  
Related Quality ◽  
Health Related

scholarly journals Improving quality of care and outcome at very preterm birth: the Preterm Birth research programme, including the Cord pilot RCT

2019 ◽  
Vol 7 (8) ◽  
pp. 1-280 ◽  
Author(s):  
Lelia Duley ◽  
Jon Dorling ◽  
Susan Ayers ◽  
Sandy Oliver ◽  
Charles William Yoxall ◽  
...  
Keyword(s):  
Preterm Birth ◽  
Meta Analysis ◽  
Qualitative Interviews ◽  
Randomised Trial ◽  
Neonatal Care ◽  
Very Preterm ◽  
Very Preterm Birth ◽  
Cord Clamping ◽  
Comparative Review

Background Being born very premature (i.e. before 32 weeks’ gestation) has an impact on survival and quality of life. Improving care at birth may improve outcomes and parents’ experiences. Objectives To improve the quality of care and outcomes following very preterm birth. Design We used mixed methods, including a James Lind Alliance prioritisation, a systematic review, a framework synthesis, a comparative review, qualitative studies, development of a questionnaire tool and a medical device (a neonatal resuscitation trolley), a survey of practice, a randomised trial and a protocol for a prospective meta-analysis using individual participant data. Setting For the prioritisation, this included people affected by preterm birth and health-care practitioners in the UK relevant to preterm birth. The qualitative work on preterm birth and the development of the questionnaire involved parents of infants born at three maternity hospitals in southern England. The medical device was developed at Liverpool Women’s Hospital. The survey of practice involved UK neonatal units. The randomised trial was conducted at eight UK tertiary maternity hospitals. Participants For prioritisation, 26 organisations and 386 individuals; for the interviews and questionnaire tool, 32 mothers and seven fathers who had a baby born before 32 weeks’ gestation for interviews evaluating the trolley, 30 people who had experienced it being used at the birth of their baby (19 mothers, 10 partners and 1 grandmother) and 20 clinicians who were present when it was being used; for the trial, 261 women expected to have a live birth before 32 weeks’ gestation, and their 276 babies. Interventions Providing neonatal care at very preterm birth beside the mother, and with the umbilical cord intact; timing of cord clamping at very preterm birth. Main outcome measures Research priorities for preterm birth; feasibility and acceptability of the trolley; feasibility of a randomised trial, death and intraventricular haemorrhage. Review methods Systematic review of Cochrane reviews (umbrella review); framework synthesis of ethics aspects of consent, with conceptual framework to inform selection criteria for empirical and analytical studies. The comparative review included studies using a questionnaire to assess satisfaction with care during childbirth, and provided psychometric information. Results Our prioritisation identified 104 research topics for preterm birth, with the top 30 ranked. An ethnographic analysis of decision-making during this process suggested ways that it might be improved. Qualitative interviews with parents about their experiences of very preterm birth identified two differences with term births: the importance of the staff appearing calm and of staff taking control. Following a comparative review, this led to the development of a questionnaire to assess parents’ views of care during very preterm birth. A systematic overview summarised evidence for delivery room neonatal care and revealed significant evidence gaps. The framework synthesis explored ethics issues in consent for trials involving sick or preterm infants, concluding that no existing process is ideal and identifying three important gaps. This led to the development of a two-stage consent pathway (oral assent followed by written consent), subsequently evaluated in our randomised trial. Our survey of practice for care at the time of birth showed variation in approaches to cord clamping, and that no hospitals were providing neonatal care with the cord intact. We showed that neonatal care could be provided beside the mother using either the mobile neonatal resuscitation trolley we developed or existing equipment. Qualitative interviews suggested that neonatal care beside the mother is valued by parents and acceptable to clinicians. Our pilot randomised trial compared cord clamping after 2 minutes and initial neonatal care, if needed, with the cord intact, with clamping within 20 seconds and initial neonatal care after clamping. This study demonstrated feasibility of a large UK randomised trial. Of 135 infants allocated to cord clamping ≥ 2 minutes, 7 (5.2%) died and, of 135 allocated to cord clamping ≤ 20 seconds, 15 (11.1%) died (risk difference –5.9%, 95% confidence interval –12.4% to 0.6%). Of live births, 43 out of 134 (32%) allocated to cord clamping ≥ 2 minutes had intraventricular haemorrhage compared with 47 out of 132 (36%) allocated to cord clamping ≤ 20 seconds (risk difference –3.5%, 95% CI –14.9% to 7.8%). Limitations Small sample for the qualitative interviews about preterm birth, single-centre evaluation of neonatal care beside the mother, and a pilot trial. Conclusions Our programme of research has improved understanding of parent experiences of very preterm birth, and informed clinical guidelines and the research agenda. Our two-stage consent pathway is recommended for intrapartum clinical research trials. Our pilot trial will contribute to the individual participant data meta-analysis, results of which will guide design of future trials. Future work Research in preterm birth should take account of the top priorities. Further evaluation of neonatal care beside the mother is merited, and future trial of alternative policies for management of cord clamping should take account of the meta-analysis. Study registration This study is registered as PROSPERO CRD42012003038 and CRD42013004405. In addition, Current Controlled Trials ISRCTN21456601. Funding This project was funded by the National Institute for Health Research (NIHR) Programme Grants for Applied Research programme and will be published in full in Programme Grants for Applied Research; Vol. 7, No. 8. See the NIHR Journals Library website for further project information.

scholarly journals MATERNAL DEPRESSION FOLLOWING VERY PRETERM BIRTH † 1584

1996 ◽  
Vol 39 ◽  
pp. 266-266 ◽  
Author(s):  
Ronald Hagan ◽  
Sherryl Pope ◽  
Sharon Evans ◽  
Sue Priest ◽  
Rosie Rooney ◽  
...  
Keyword(s):  
Preterm Birth ◽  
Maternal Depression ◽  
Very Preterm ◽  
Very Preterm Birth
Sign in / Sign up

Export Citation Format

Share Document