The Quality of Medical Information on the Internet

1998 ◽  
Vol 116 (12) ◽  
pp. 1663 ◽  
Author(s):  
Stephen D. McLeod
Keyword(s):  
Medical Information ◽  
The Internet

scholarly journals Online Information About Periviable Birth: Quality Assessment (Preprint)

2018 ◽  
Author(s):  
Adriane F Haragan ◽  
Carly A Zuwiala ◽  
Katherine P Himes
Keyword(s):  
Medical Information ◽  
The United States ◽  
The Internet ◽  
Online Information ◽  
High Quality ◽  
Comfort Care ◽  
Treatment Choices ◽  
News Stories ◽  
Google Search

BACKGROUND Over 20,000 parents in the United States face the challenge of participating in decisions about whether to use life support for their infants born on the cusp of viability every year. Clinicians must help families grasp complex medical information about their baby’s immediate prognosis as well as the risk for significant long-term morbidity. Patients faced with this decision want supplemental information and frequently seek medical information on the Internet. Empirical evidence about the quality of websites is lacking. OBJECTIVE We sought to evaluate the quality of online information available about periviable birth and treatment options for infants born at the cusp of viability. METHODS We read a counseling script to 20 pregnant participants that included information typically provided by perinatal and neonatal providers when periviable birth is imminent. The women were then asked to list terms they would use to search the Internet if they wanted additional information. Using these search terms, two reviewers evaluated the content of websites obtained via a Google search. We used two metrics to assess the quality of websites. The first was the DISCERN instrument, a validated questionnaire designed to assess the quality of patient-targeted health information for treatment choices. The second metric was the Essential Content Tool (ECT), a tool designed to address key components of counseling around periviable birth as outlined by professional organizations. DISCERN scores were classified as low quality if scores were 2, fair quality if scores were 3, and high quality if scores were 4 or higher. Scores of 6 or higher on the ECT were considered high quality. Interreviewer agreement was assessed by calculated kappa statistic. RESULTS A total of 97 websites were reviewed. Over half (57/97, 59%) were for-profit sites, news stories, or personal blogs; 28% (27/97) were government or medical sites; and 13% (13/97) were nonprofit or advocacy sites. The majority of sites scored poorly in DISCERN questions designed to assess the reliability of information presented as well as data regarding treatment choices. Only 7% (7/97) of the websites were high quality as defined by the DISCERN tool. The majority of sites did not address the essential content defined by the ECT. Importantly, only 18% of websites (17/97) indicated that there are often a number of reasonable approaches to newborn care when faced with periviable birth. Agreement was strong, with kappa ranging from .72 to .91. CONCLUSIONS Most information about periviable birth found on the Internet using common search strategies is of low quality. News stories highlighting positive outcomes are disproportionately represented. Few websites discuss comfort care or how treatment decisions impact quality of life.

scholarly journals Development of the CUE-tool through an e-Delphi study: The Credible and Usable Evaluation of patient education tool for web-sites (Preprint)

2020 ◽  
Author(s):  
Leonie Klompstra ◽  
Maria Liljeroos ◽  
Johan Lundgren ◽  
Brynja Ingadottir
Keyword(s):  
Web Sites ◽  
Health Care Professionals ◽  
Delphi Study ◽  
Medical Information ◽  
Medical Condition ◽  
Information Source ◽  
The Internet ◽  
Clinical Tool ◽  
Education Tool

BACKGROUND As patients are increasingly searching for information about their medical condition on the Internet, there is a need for health professionals to be able to guide patients towards reliable and suitable information sources on the Internet. OBJECTIVE To develop a clinical tool for healthcare professionals to assess the usability and quality of the content of websites containing medical information that could be recommended to patients. METHODS A three round modified e-Delphi study was conducted with 20 health care professionals RESULTS In round one of the e-Delphi study, of the 68 items initially created, 41 items (29 on usability, 12 on content) were rated as important or very important by more than half of the panel and selected for further evaluation in round two. In round two, of the 41 items left from round 1, 19 items were selected (9 usability, 10 content) as important or very important, by more than half of the panel, for further evaluation. As a result of round three, two items were put together as one, leaving the instrument with 18 items in total (8 usability, 10 content). We developed a webpage with the tool (which is free to access) available at: www.cesar-network.com. CONCLUSIONS The CUE-tool can be used to (a) evaluate the usability and reliability of the content of websites before recommending them to patients as a good information source; (b) identify websites that have not reliable content and/or may be difficult for patients to use; (c) develop quality websites by using the criteria in the CUE-tool; (d) identify different qualities between different websites. CLINICALTRIAL

scholarly journals Examining the Interaction Between Medical Information Seeking Online and Understanding: Exploratory Study

JMIR Cancer ◽  
10.2196/13240 ◽  
2019 ◽  
Vol 5 (2) ◽  
pp. e13240 ◽  
Author(s):  
Rei Kobayashi ◽  
Masato Ishizaki
Keyword(s):  
Health Literacy ◽  
Information Seeking ◽  
Medical Information ◽  
Likert Scale ◽  
The Internet ◽  
Online Information ◽  
Information Navigation ◽  
The Mean ◽  
Online Information Seeking

Background Online information seeking on medical topics by patients can have beneficial effects by helping them decide on treatment options and fostering better relationships with doctors. The quality of websites and processes of seeking information online have mostly been studied, with a focus on the accuracy and reliability of websites; however, few studies have examined the relationship between other aspects of quality and the processes of seeking medical information online. Objective This exploratory study aimed to shed light on the quality of websites used for information seeking from the perspective of understanding medical information in combination with seeking it online. Methods The study participants were 15 Japanese university students with no problem using the internet. A questionnaire survey about health literacy (47 items on a 4-point Likert scale) and information navigation skills on the internet (8 items on a 5-point Likert scale) was conducted before participants engaged in online information seeking and qualitative interviews. The students searched for information on a disease and its treatment. The websites viewed were gathered from search behavior recorded by software and browser logs. Follow-up interviews were conducted to elicit explanations from the participants about the assignments and their views of online information seeking. The explanations were evaluated by 55 health care professionals on a 3-point Likert scale and then assessed based on their comments and the participant interviews. Results The mean age of the participants was 20.6 years (median 21; SD 1.06). All participants were able to access reliable websites with information relevant to the assignments. The mean ratings of the students’ explanations were 108.6 (median 109; range=83-134) for the disease and 105.6 (median 104; range=87-117) for its treatment. The inter-rater reliability were 0.84 (95% CI 0.77-0.90) and 0.95 (95% CI 0.93-0.97), indicating good and excellent, respectively. The mean of the sum of the health literacy skills was 115.1 (median 115; range=80-166) and the mean for information navigation skills was 25.9 (median 26; range=17-36), respectively. Health literacy and information navigation skills were moderately correlated (r=0.54; 95% CI 0.033-0.822; P=.04). Among the four stages of health literacy, understanding and appraising (r=0.53; 95% CI 0.025-0.820; P=.04) were moderately correlated with information navigation skills (r=0.52; 95% CI 0.013-0.816; P=.046). The participants had no difficulties operating and browsing the internet and considered medical and public institution websites to be reliable; however, due to unfamiliarity with medical terms, they had difficulties choosing a site from the results obtained and comparing and synthesizing information provided by different sites. They also looked for sites providing orderly information in plain language but provided explanations from sites that gave inadequate interpretations of information. Conclusions This study revealed interactions between searching the internet for, and understanding, medical information by analyzing the processes of information seeking online, physicians’ evaluations and comments about the participants’ explanations, and the participants’ perceptions.

Quality of medical information on the Internet

JAMA ◽  
1997 ◽  
Vol 278 (8) ◽  
pp. 632b-632 ◽  
Author(s):  
J. Mack
Keyword(s):  
Medical Information ◽  
The Internet

Quality of information about mental disease on the Internet: A comparative and longitudinal study of entries form Baidu Encyclopedia and Wikipedia (Preprint)

2021 ◽  
Author(s):  
Jing Ma ◽  
Lisha Jiang ◽  
Jianchen Luo ◽  
Linli Zheng ◽  
Meiou Wang ◽  
...  
Keyword(s):  
Health Information ◽  
Medical Information ◽  
Mental Disease ◽  
Information Service ◽  
The Internet ◽  
Positive Trend ◽  
Online Information ◽  
Disease Information ◽  
Medical Network

BACKGROUND The Internet has evolved the approaches of medical information spread. Demands of online information searching on mental disease expanded. The Wikipedia and Baidu Encyclopedia are popular information source. Websites with information on mental disease have not been systematically evaluated. OBJECTIVE The research aimed to estimate the quality of mental disease information on the internet and to evaluate all aspects including timeliness to value the information quality from Baidu Encyclopedia and Wikipedia to help users to make better choice. Besides, establishing a perfect relevant online health information examine and supervision system, in order to satisfy public self-help mental medical information service needs. METHODS We retrieved the entries on mental disease from the International Statistical Classification of Diseases and Related Health Problems 10th Revision Version 2016 codes on Wikipedia (in English) and Baidu Encyclopedia (in Chinese) in 2018 and 2021. Subject sites were accessed by DISCERN. The comparison between 2 engines as well as 3 years follow-up and timeliness were calculated. RESULTS The number of entries on mental disease we found in 2018 is 34 on Baidu Encyclopedia and 36 on Wikipedia and 37 entries on both Baidu Encyclopedia and Wikipedia in 2021. In 2018, the DISCERN score of Baidu Encyclopedia entries in section 1 and section 3 were lower than those of Wikipedia articles (11.21±4.57 vs 26.25±3.21, p<.001; 2.06±.74 vs 2.53±.94, p<.05). Significantly differences can also be found in total score and all sections in 2021 between 2 engines (total score, 26.29±11.03 vs 44.31±9.77, all 3 sections, p<.001). The DISCERN score of Wikipedia articles during 3 years showed significant increase (all 3 sections, p<.001; total, p<.001). The mean update interval varies greatly from Baidu Encyclopedia (824.79 days in 2018; 945.73 days in 2021) to Wikipedia (34.17 days in 2018;50.46 days in 2021) (p<.001). CONCLUSIONS Despite the general poor quality of mental disease entries in both two engines, Wikipedia expressed to be a better source of online mental disease information compared to Baidu Encyclopedia, with higher reliability, better treatment advice and shorter update interval. Our findings reflected the existing deficit of general website mental health information, suggested a reference for further and better medical network information order. Based on this foundation, it is essential to encourage people to seek professional help rather than believe the ambiguous source information from Internet. The quality of these entries has been improved during 3 years. This positive trend is encouraging that we can expect better online information service in the coming future.

Comparison of search strategies and quality of medical information of the internet: a study relating to ankle sprain

Injury ◽  
2001 ◽  
Vol 32 (6) ◽  
pp. 473-476 ◽  
Author(s):  
Diederik Groot ◽  
Gerben ter Riet ◽  
Khalid S. Khan ◽  
Kate Misso
Keyword(s):  
Ankle Sprain ◽  
Medical Information ◽  
Search Strategies ◽  
The Internet

Quality of Medical Information on the Internet

JAMA ◽  
1997 ◽  
Vol 278 (8) ◽  
pp. 632 ◽  
Author(s):  
John Mack
Keyword(s):  
Medical Information ◽  
The Internet

scholarly journals Patients’ Use of the Internet to Find Reliable Medical Information About Minor Ailments: Vignette-Based Experimental Study

10.2196/12278 ◽  
2019 ◽  
Vol 21 (11) ◽  
pp. e12278 ◽  
Author(s):  
Joyce Kwakernaak ◽  
Just A H Eekhof ◽  
Margot W M De Waal ◽  
Elisabeth A M Barenbrug ◽  
Niels H Chavannes
Keyword(s):  
Experimental Study ◽  
Medical Information ◽  
Search Strategies ◽  
The Internet ◽  
Search Term ◽  
Internet Search ◽  
High Quality ◽  
Mcnemar Test ◽  
Minor Ailments

Background Little is known about the exact process of how patients search for medical information on the internet and what they retrieve. There is especially a paucity of literature on browsing for information on minor ailments, a term used for harmless diseases that are very common in the general population and thus have a significant impact on health care. Objective This vignette-based experimental study aimed to explore what kind of Web-based search strategies are applied and how search strategies, demographic characteristics, and the quality of the visited websites relate to finding the right diagnosis. Additional goals were to describe how searching on the Web influences one’s perception of the severity of the potential diagnosis and whether or not the participants would discuss the information they found on the internet with their doctors. Methods Out of 1372 survey participants, 355 were randomly sampled, and 155 of them were recruited and assigned to one of four clinical scenarios. Each search term they used was classified as one of three search strategies: (1) hypothesis testing, (2) narrowing within the general hypothesis area, and (3) symptom exploration. The quality of the websites used was determined by using the DISCERN instrument. To compare the diagnostic accuracy of the participants before and after the internet search, a McNemar test was used. Chi-square tests were used to describe which factors are related to the chosen search strategy. A multivariate binary logistic regression model was constructed to predict which factors are related to finding a sound diagnosis after searching the internet for health information. Results Most participants (65.8%, 102/155) used the symptom exploration strategy. However, this depends on the assigned scenario (P<.001) and the self-estimated severity score of the symptoms before the internet search (P=.001). A significant relation was found between choosing an accurate diagnosis and age (odds ratio [OR] 0.94, 95% CI 0.90 to 0.98) and the clinical scenario, as well as the use of high-quality websites (OR 7.49, 95% CI 1.85 to 30.26). Browsing the internet did not lead to a statistically significant change in participants’ beliefs about the severity of the condition (McNemar test, P=.85). Most participants (65%) shared their retrieved information with their physician and most of them (75%) received a positive response. Conclusions Our findings suggest that most patients use a symptom-based approach; however, if patients expect the potential diagnosis to be severe, they tend to use a hypothesis verification strategy more often and are therefore prone to certain forms of bias. In addition, self-diagnosing accuracy is related to younger age, the symptom scenario, and the use of high-quality websites. We should find ways to guide patients toward search strategies and websites that may more likely lead to accurate decision making.

Quality of Medical Information on the Internet

JAMA ◽  
1997 ◽  
Vol 278 (8) ◽  
pp. 632 ◽  
Author(s):  
Karen Strauss
Keyword(s):  
Medical Information ◽  
The Internet
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